Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Antibodies Have Disappeared


Happyw5

Recommended Posts

Happyw5 Explorer

I guess I should be happy, a little over two years ago, before I went gluten free, my thyroid antibodies were high.  They never did anything about it at the time, however, I was having some symptoms I thought could be related to hypothyroid.  They checked the antibodies again, and the are within normal range.  I am still having problems that I would like to figure out, but maybe being gluten free for two years has helped stop me going into hypothyroid!  Thanks for listening

Sarah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I guess I should be happy, a little over two years ago, before I went gluten free, my thyroid antibodies were high.  They never did anything about it at the time, however, I was having some symptoms I thought could be related to hypothyroid.  They checked the antibodies again, and the are within normal range.  I am still having problems that I would like to figure out, but maybe being gluten free for two years has helped stop me going into hypothyroid!  Thanks for listening

Sarah

Great News Sarah!  Whatever the reason.

I don't know what your symptoms are, but if you feel they are food related, keep a diary of everything you consume, and keep a eye on your symptoms.

burdee Enthusiast

I guess I should be happy, a little over two years ago, before I went gluten free, my thyroid antibodies were high.  They never did anything about it at the time, however, I was having some symptoms I thought could be related to hypothyroid.  They checked the antibodies again, and the are within normal range.  I am still having problems that I would like to figure out, but maybe being gluten free for two years has helped stop me going into hypothyroid!  Thanks for listening

Sarah

 

I've been gluten free since celiac disease dx in 1994. After years of hypthyroid symptoms I was finally dx'd w/ Hashimoto's hypothyroidism in 2009. My first TPOab (antibodies) were at the top of the normal range. 2 years later they are low normal. I agree that avoiding gluten helps eliminate the antibodies. However if you had hypothyroid symptoms for years before diagnosis (and going gluten free) you may have sustained enough damage to your thyroid gland that you will need thyroid supplements.  I feel soooo much better with an effective dose of thyroid supplement. No more low blood pressure, low body temperature, fatigue, constipation and lousy fingernails.

Happyw5 Explorer

Most of my symptoms are with my menstural cycle.  I have severe PMS and heavy menstrual cycles every 25 days.  I am tired alot (which all dr's say it's because I have five children).  I am cold all the time, my body temp is never over 97.5,  which they say it's winter!  I think they figured after all the years I am just a hypochondriac!!  I have started taking chasteberry or vitex, I am hoping that it will help me get my cycles straightened out.  We will see! 

I do think that I am having some other food issues as well, but I am still in denial, I don't want to give up anything else quite yet.  I am already allergic to peanuts, hazelnuts, red grapes and raisins, soy, eggs, and I am gluten free...  I actually got very sick last night from a salad!  Everything on there was gluten free, so I don't know what bothers me...

glutenconfused Newbie

That's great news! I hope that they continue to stay normal for you. I have hashimoto's and my thyroid antibodies are through the roof (over 1000). I've always had severe symptoms, but my thyroid levels are within normal range through treatment. I was recently told to go Gluten-Free by my doctor. My doctor said that theoretically my levels should be lower with treatment so gluten may be the culprit. I hope that it helps lower my antibody levels, too.

pricklypear1971 Community Regular

Most of my symptoms are with my menstural cycle. I have severe PMS and heavy menstrual cycles every 25 days. I am tired alot (which all dr's say it's because I have five children). I am cold all the time, my body temp is never over 97.5, which they say it's winter! I think they figured after all the years I am just a hypochondriac!! I have started taking chasteberry or vitex, I am hoping that it will help me get my cycles straightened out. We will see!

I do think that I am having some other food issues as well, but I am still in denial, I don't want to give up anything else quite yet. I am already allergic to peanuts, hazelnuts, red grapes and raisins, soy, eggs, and I am gluten free... I actually got very sick last night from a salad! Everything on there was gluten free, so I don't know what bothers me...

The low body temp, exhaustion, cold, heavy cycles, etc. are symptoms of adrenal or hormone imbalances that frequently accompany hypothyroidism. I understand your antibodies may be currently in the normal range; however, if a certain amount if damage was done to your thyroid you will need to address it, along with adrenals, to feel better.

I do understand denial. I think most of us here do.

I also had gi symptoms resolve after thyroid treatment - so treating your thyroid may help.

Gemini Experienced

My thyroid antibodies were 1200 the year before I was diagnosed with Celiac.  I already was being treated for Hashi's for many years prior.  Nothing seemed to help in making them decline but I was not absorbing the meds due to Celiac.  That was 2005.  I have been gluten-free for 8 years this Easter and I just had my thyroid panel done and my antibodies are in the lower end of normal.....around 32.  So, going gluten free really was key for me, along with natural dessicated thyroid hormone.  Mine are prescription.  I will always need thyroid hormone due to the damage done but my antibodies are now happy and calm. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

I'll play the role of a doom sayer ... ;) TPO Ab can also drop off once enough of your thyroid is destroyed. Hopefully this is not true in your case.

If you are hypothyroid, you should still get treatment. Perhaps you won't need as much of the hormones now that you are gluten-free. Best wishes.

ButterflyChaser Enthusiast

Great news! :) That was one of the factors that made me want to try the gluten-free diet. I have all antibodies through the roof, but my symptoms are mostly hyperthyroidism-like (I was in menopause for 19 months and I'm barely 30!).

 

I have had this for a couple of years, on paper, but I think I've always been a higher-level hormones functioning type: ever since I have memory I was constantly hot and sweaty, high energy (read: restless and sometimes anxious), scary fast metabolism and hunger, very light periods, frequent BM (but that could have been wheat?). :ph34r:

 

I was ok, so no one ever tested me, and I guess if  had been very hyperthyroid I would have felt as awful as I have in the past, but it makes me believe that I usually function in the borderline-high range, because when I was, for a short period, in a lower "normal" range I felt severely hypo. Bizzarre.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

    2. - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

    3. - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

    4. - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

    5. - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748

    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.