Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Guessed Completely Wrong...


kitgordon

Recommended Posts

kitgordon Explorer

I spent the entire fall and early winter trying to cure what I thought was DH. Tried low iodine, went crazy trying to locate hidden gluten in my life... turns out the "rash" was bedbug bites! Just sharing this because they are apparently epidemic, and the bites really looked and felt much like all the descriptions of DH that I have read, so if anyone thinks they have DH when you never have before - it might be worth looking into. Disgusting and embarrassing, but at least treatable. 

 

And you can have them even if your house is very clean (mine is!). They don't like filth - not like roaches - what they like is blood, so if you have blood, you can have bedbugs.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

Oh my gosh you poor thing.  That is awful!  

mommida Enthusiast

I'm glad you have figured out what the problem is/was!

 

If you are a clean freak, you must have gone ballistic.  What did you have to do to get rid of them?

bartfull Rising Star

If you stay in motels or even go to movie theaters, there is a chance you can bring them home. If you buy anything "soft", such as clothing or bedding at yard sales, you could bring them home. More paranoia on my part? Well, maybe. But this is what I have learned on the internet.

 

I never go anywhere so I haven't stayed in a motel in years. I don't go to the movies because I don't have time anyway. I DO however, shop at yard sales. Anything I buy goes immediately to the laundrymat rather than taking them home to wash them.

mommida Enthusiast

They say that what happens in New York is an indicator for what will happen in smaller cities accross the country.  It can play out on average of 3 years.  New York city clothing stores have been closed for business due to bed bug infestation.  Probably every airplane flight is just transporting the little blood suckers.  YUCK

 

This is a growing problem.  How extreme will it get?

sisterlynr Explorer

Much more prevalent than facilities want people to know.  Just the stigma of being unclean but that is not the case.  My doctor asked me about bed bugs and scabies.  I actually agreed to the medication for scabies.  I was desperate for a cure!   No one in my house had bites or blister/lesions like me, I knew it couldn't be either cause those bugs are not particular when it comes to having a meal of human blood. . .  :o

 

So glad you found a cure and so glad it wasn't DH . . . whew!

GFinDC Veteran

Darn buglies are hungry!  It's about time to get some flea treatment ready too. Warm weather brings them out.  My cat likes to go outside and she will find them no mater where they try to hide.  Glad you figured it out!  I think bed bugs are much easier to deal with than DH anyway.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kitgordon Explorer

Thanks, yes it was rather awful - but also a relief in a sense because there is an obvious (though expensive and annoying) cure for bedbugs. Clean everything out of your bedroom, vacuum thoroughly, run all clothes through a hot wash and dry, send curtains to the dry cleaner, throw away dust ruffle and bedspread, encase the mattress, have the exterminators in, let them apply the freeze treatment and spray, keep your stuff out of the bedroom for a week so they can come back and repeat the treatment, cross your fingers that they got every last bug and egg - and begin to heal.

 

Incidentally, it is possible for only one person in a house (or even a bed) to have the bites. My husband sleeps with me and never had any bites we could see. Apparently some people are just not reactive to the darn things. Or they just thought I was sweeter than him!  :D

GFinDC Veteran

Maybe you are just very tasty Kit!  :D  I believe that about one person getting bit more than another.  My ex would get multiple mosquitoes bites  while I would get one or 2.  We were having a little discussion about DE (diatomaceous earth) in another thread.  One of the uses of DE is to kill insects.  You can sprinkle on your carpets and it will kill them naturally.  It is not harmful to people.  It's fairly inexpensive so might be another thing to try.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748

    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.