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Blood Results Back. Doctor Is Unhelpful.


sabin112

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sabin112 Rookie

Hi there all,

 

I just got my blood results back today and the read as follows:

 

anti TTG IgA: 75 Units (0-20) HH

Endomysial Ab: POSITIVE A

Comment: These results support a diagnosis of coeliac disease.

 

My doctor said that it looks like I have coeliac disease, but it's not so bad, so I can eat a little gluten. That goes against eveything I've read on this sight. I thought if you have coeliac disease, regardless of symptoms, you cannot eat any gluten.

 

What I want to ask is should I ask for a biopsy next or just give up eating all gluten as soon as possible.

 

Any help would be appreciated.

 

 


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mushroom Proficient

anti TTG IgA: 75 Units (0-20) HH

Endomysial Ab: POSITIVE A

Comment: These results support a diagnosis of coeliac disease.

 

My doctor said that it looks like I have coeliac disease, but it's not so bad, so I can eat a little gluten. T

 

With those results on those particular tests, I would think it is pretty definite that you are celiac.  Whether or not you want biopsy confirmation of how much damage is up to you (and your health system/doctor).  By the way, what rock did he crawl back under after making that caveman pronouncement?   He is so totally wrong, of course.  It's like saying you just have a little bit of cancer so it doesn't matter if we don't get it all :wacko:

GottaSki Mentor

Could not have said it any better.

Clearly you have celiac disease.

Clearly your doctor is not up to date.

Let us know how we can help!

Welcome to the Forum :)

kareng Grand Master

I have really slow Internet now so I can't get you links. Google " celiac centers". Univ of Chicago has an easy one to read. You will see that they all say it is not OK to eat a little gluten. You could show some of them to your doctor. He might look at them because they are from " real" doctors.

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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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