Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eye Drops And Gut Reaction


flowerqueen

Recommended Posts

flowerqueen Community Regular

I've recently been prescribed caramellose sodium drops for dry eye syndrome due to my thyroid disease and have noticed my stomach hurting increasingly more each day, in the way it does when I've been contaminated with gluten. Has anyone else had this problem?

The leaflet included with the drops doesn't mention any reaction with the stomach but when I looked at the chemical compound on line, it mentioned it was non toxic, and hypoallergenic (unless there is a wheat intolerance) I contacted the pharmacy and they rang the drug company, and they said they have never had any reaction in this way recorded and more or less thought it must be something else. I stopped using the drops last night as a precaution and am still having symptoms (I've been taking them for 10 days). Any suggestions? Could I be barking up the wrong tree? I've checked everything I've eaten and have no other clues other than the eye drops.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

It really said " unless their is a wheat intolerance"? I can't imagine how an eye drop would have irritating things like wheat in it.

flowerqueen Community Regular

It really said " unless their is a wheat intolerance"? I can't imagine how an eye drop would have irritating things like wheat in it.

Yes it did.  If you think about it, it makes sense.  When you put eye drops in, they drain down through the nose, and things which drain through the nose end up in the stomach.  That's why some people of here are worried about inhaling flour, wheat etc.

Gemini Experienced

I've recently been prescribed caramellose sodium drops for dry eye syndrome due to my thyroid disease and have noticed my stomach hurting increasingly more each day, in the way it does when I've been contaminated with gluten. Has anyone else had this problem?

The leaflet included with the drops doesn't mention any reaction with the stomach but when I looked at the chemical compound on line, it mentioned it was non toxic, and hypoallergenic (unless there is a wheat intolerance) I contacted the pharmacy and they rang the drug company, and they said they have never had any reaction in this way recorded and more or less thought it must be something else. I stopped using the drops last night as a precaution and am still having symptoms (I've been taking them for 10 days). Any suggestions? Could I be barking up the wrong tree? I've checked everything I've eaten and have no other clues other than the eye drops.

 

 

Here are some links that will be useful to you:  Open Original Shared LinkOpen Original Shared Link

 

Open Original Shared Link

 

I am in no way a fan of Wiki but in researching this medicine, I found something interesting.  Look under "Uses" on the second link and right there, in the first paragraph, there it is.....a reference to wheat intolerance.  I am still trying to figure that one out myself. 

 

I have Sjogren's Syndrome and use Restasis eye drops for dry eye, which is the leading Rx here in the States for dry eye.  I see you are in the UK?

 

You may want to be tested for Sjogren's, if your eyes are that bad that you are being given drops to use for it.  It is a blood test.  The Restasis works very well.  I had never heard of the one you mentioned but I wouldn't if you are in a different country.  The Restasis is safe for Celiacs and yes, you are 100% correct in that you have to screen eyedrops cause they do go down the throat after application.

 

This is a first for eye drops for me....never heard of one that is not safe for Celiacs and I would love to know the reason why.  Back to research..... :)

flowerqueen Community Regular

Many thanks for replying.  I had already tried the sites you had spotted and drew a blank with the NHS one, mainly because it appears that the information is sourced from a third party and not NHS themselves. I had also seen the information you had spotted on wikipedia, like you, I am always sceptical about the information on there as you don't necessarily know who has provided the information.  Having said that, because it mentioned wheat sensitivity, it made me question whether I was right in my assumption. 

 

I will look into everything else you said, as it pays to be open minded in these things. Thanks :)

Here are some links that will be useful to you:  Open Original Shared LinkOpen Original Shared Link

 

Open Original Shared Link

 

I am in no way a fan of Wiki but in researching this medicine, I found something interesting.  Look under "Uses" on the second link and right there, in the first paragraph, there it is.....a reference to wheat intolerance.  I am still trying to figure that one out myself. 

 

I have Sjogren's Syndrome and use Restasis eye drops for dry eye, which is the leading Rx here in the States for dry eye.  I see you are in the UK?

 

You may want to be tested for Sjogren's, if your eyes are that bad that you are being given drops to use for it.  It is a blood test.  The Restasis works very well.  I had never heard of the one you mentioned but I wouldn't if you are in a different country.  The Restasis is safe for Celiacs and yes, you are 100% correct in that you have to screen eyedrops cause they do go down the throat after application.

 

This is a first for eye drops for me....never heard of one that is not safe for Celiacs and I would love to know the reason why.  Back to research..... :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.