Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Trendy Friend


kareng

Recommended Posts

Pegleg84 Collaborator

Holy s$#&e this chick is going to turn into a waif and blow away in the wind if she looses any more weight. I'm about 115(ish. Haven't weighed myself in forever) but I'm 5'1"! and if I lost any more I'd start worrying that gluten was sneaking into my diet (I lost a lot of weight dangerously fast before going gluten-free)

 

I'm also of the idea that if you're going to go gluten-free, whether to see if it will help your health or what have you, then you'd better go full-out. If you're just going to cut back on bread/pasta/etc (which people should do anyway to have a healthy diet), then don't claim to be eating gluten-free. I tell people thinking of trying gluten-free to only do so if they think their health might benefit. Otherwise, a balanced approach is best.

 

Kareng, I hope your friend comes to her senses, not just about the gluten-free thing, but that she's endangering her health by eating so little!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Ya know, once you get up on one of these soap boxes it's really too high to come down quickly.

 

I don't agree with the argument that other people are making restraunt workers screw up gluten free orders.  If the restraunt staff does something wrong, that is their responsibility.  It;s not the responsibility of a third party, who probably isn't even there at the time.  I'm pretty sure you couldn't sue that restraunt customer and win in a court.  They just aren't responsible for what the restraunt staff does.  The restraunt staff is responsible for their own actions. Blaming somebody else for the restraunt screwing up isn't fair.  That's letting the restraunt staff off the hook for their actions.  They are the ones making the food, so they are responsible if it is made wrong.

 

nvsmom Community Regular

I'm another that has no problem with trying to go gluten-free. Sure, we can educate people as to what truely going gluten-free is, but if they want to try it - great.

 

I think that letting your friend know that most processed/baked gluten-free goods are usually higher in sugar and fat than wheat flours might help her realize that all gluten-free foods aren't created equal, and aren't designed for weight loss... then again, maybe don't tell her that because she sounds quite thin already.  ;)

 

I just think that there are a lot of special diets out there and I think we should just model tolerance and try to help people meet those dietary goals. I have a friend who is a raw vegan, another who can't eat gelatin or pork for religious reasons, another who eats kosher, and a family member who avoids nightshades dues to RA; if I told my cousin that I'm cutting back on potatoes for my health, I don't think he would judge me because I don't have an official medical reason to do it, or because I'm not eliminating all nightshades. KWIM?

 

And then there is me and my kids who eat gluten-free (even though only I am the celiac in the house), eat nut free (one son with an allergy), and avoid dairy (due to my lactose intolerance and a suspected casein intolerance in one son). We are very hard to feed when you throw in the fact that a couple of my kids are embarassingly picky eaters. I do think it is getting easier to feed them (when we are out) though because knowledge of the gluten-free diet is growing as more people get interested in trying it and dabbling in it (gluten light).

 

In my opinion, we celiacs are a minority so we can't expect the majority to know how to deal with our food. It's all up to us to make sure our food is safe.... All just my own personal opinion though.  :)

GottaSki Mentor

I also have no problem with folks other than celiac going gluten-free -- I do however strongly dislike when people who "try" to go gluten-free don't really understand removing gluten -- many a teenaged girl has explained to my celiac son that he doesn't understand the gluten free diet -- lol -- he just smiles and waits for them to see that he actually does know quite a bit about it.

 

I also dislike waitstaff dismissing the need to be completely gluten-free, but when that happens we simply educate them -- I have much more time to chat with my server since I bring all my own food ;)

 

Is it fair that we all have to be ambassadors for Celiac Disease - hell no - maybe one day we will no longer be the "Rodney Dangerfield" of medical disorders -- until then I'll keep taking every opportunity to educate anyone who indicates interest or whom is serving my kids food that may harm them.

StephanieL Enthusiast

I have both intolerance and allergies.  Do I have to have my asthma attack within a certain time frame of ingesting the wrong item to make my semantics legitimate in your eyes, StephanieL ? 

 

I'm sorry, I don't at all understand your question. 

EmiPark210 Contributor

I think what gets people up in arms is the people who say they are "gluten-free" and then go and eat fried rice with regular soy sauce for example. The people who claim bread and pasta free is gluten free. And as with everything in life, we as the quote-unquote experts of what is and isn't gluten free, should take it as a learning/teaching opportunity. There are a lot of people who don't understand what the words "gluten free" mean (I gave one of them an earful today when he put normal bread in the dining hall's designated, labeled gluten free toaster) let alone just how serious those of us with celiac's have to be about things like cross contamination. 

I'm not saying get on your high horse and preach but maybe offer to show people exploring the diet the ropes and correct those who just don't know any better. 

 

But back to the original topic, that girl has more issues than just going gluten free. The more worrying thing in that post was "1000 cal diet." Hopefully her body reacts as quickly as mine does to calorie deficit (I pass out continuously after just 2 days...yay flu) and she'll realize that's not enough. 

notme Experienced

why don't they just say, "carb free" or something like that.  because if you're getting cc'd, you're not gluten free.  and if you're still getting gluten, what's the point of the whole thing?  

 

sounds like she is a "LOOK AT ME!  LOOK AT ME!" type - my daughter has a friend like that, but to the opposite.  she weighs, probably, at least 250 lbs - always "so excited to start my new diet today!"  until the next morning when she is posting a giant pancake breakfast at IHOP "my wonderful husband took me out for breakfast!  i have the best husband in the world"  evidently her diet was so secret, she didn't even tell him lolz.  or my personal favorite "my new dancersize class starts next tuesday - i can't wait!!!!"  followed by the countdown to tuesday.  the next day she is posting why she is quitting it.....  "i think i BROKE MY LEG in dance class last night"  you can set your clock by it.  (it's a self diagnosed broken leg.  it miraculously heals...)  she has stomach issues, supposedly, all the time and i have suggested that maybe she wants to try gluten free but she is *absolutely certain* that is not it.  translated to me:  she really doesn't want to help herself, she just wants to b%$@# about it to get attention.  POOR MEEEEEEEEEEEEEEEEEEEEEEEEEE!

 

here's her latest:  "i think i'm going to try 'insanity' i'm so excited!!!"  HAHAHAHAHAHAAAA!!!!  now, i have fitness instructor friends who struggle with this program.  my son does it and it kills him.  my eyes can not roll back in my head far enough.

 

no offense to anyone who has weight issues.  this chick just blows my mind....  sorry....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.