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Are You Gluten Free For Your Kids?


lorka150

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lorka150 Collaborator

oops double post.


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lorka150 Collaborator

Are any of you gluten free (but not needing to be) and does it still affect you when do you consume it because you've avoided it?

Jnkmnky Collaborator

Our family is gluten free. It doesn't bother us if we go out to dinner and consume gluten full meals. No stomach issues.

taweavmo3 Enthusiast

That's how I started out......my dd had been gluten free for a few months, and I figured I'd give the diet a try, and see how I feel. I didn't want to mess with testing, I've had enough of doctors lately.

Anyway, it's been about two months now and I can tell a difference. I used to get headaches all the time, but now I hardly get any, and when I do...a simple Tylenol or Ibuprofen does the trick. I also have much less anxiety and mood swings, which is the best part. And, I've put on weight for the first time, w/out being preggo!

I did eat a cupcake at my mom's house a few weeks ago, and I felt absolutely terrible the next day. I didn't get any gastro symptoms, but I just felt depressed, irritable, and exhausted. It was the crappiest feeling, and one I don't care to have again! I don't know if I have celiac or not, but I don't really care for a definitive dx......I just feel better, and that's enough! Plus, my dd will have someone to share her diet with, which will be nice.

VydorScope Proficient

So far as we know for sure, only my 2yr son has celiac disease. My wife has no symptons and had a neg result on her blood test. I am delbiertly eating gluten only so that I can get the blood test in November, other then that we find it MUCH eaiser with a 2yr to make all three of us gluten-free. If we are blessed with a second child I am not sure what we will do yet, since if the second child is never on gluten there will be no way to know if he/she has celiac disease or not.

Jnkmnky Collaborator
So far as we know for sure, only my 2yr son has celiac disease. My wife has no symptons and had a neg result on her blood test. I am delbiertly eating gluten only so that I can get the blood test in November, other then that  we find it MUCH eaiser with a 2yr to make all three of us gluten-free. If we are blessed with a second child I am not sure what we will do yet, since if the second child is never on gluten there will be no way to know if he/she has celiac disease or not.

<{POST_SNAPBACK}>

Vincent- you know that all sorts of studies are going on regarding celiac disease thanks to the money provided by the Celiac Walks and other fundraising. There may well be a test for celiac disease that a person can take with accuracy while off of gluten, in the near future. Even if it's in the distant future... A second child of yours would probably be eligible--being as there's a minimum of 9 months guarenteed here. :)

If celiac disease is in a family and another child is born, personally, I'd make the new child gluten free---- and nursing mom gluten free as well, because the gluten DOES pass through breastmilk no matter what anyone else will tell you--- I'd just wait on a test that can dx celiac disease without the gluten in the diet. Also, having read Dangerous Grains and a few other articles about gluten grains, I figure we're all better off without the gluten anyway.

Indea88 Newbie

I am going gluten-free after my testing is done next week. My husband wont go gluten-free? He has Celiac. I dont bother with his unwillingness and stupidity. I have just been focused on healing my 2 year old, who has recently been diagnosed. Having a gluten-free house is the best way at least for me it would be....


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dwaters800 Rookie

My son was just diagnosed with gluten sensitivity, although he has not had diarrhea or weight loss yet - he has stomach pain, muscle ache, brain fog and headache. The funny thing is I quit eating wheat about 4 years ago because I just felt tired and ached when I ate it. Now I plan to go strictly gluten free along with him because I am convinced that it will be the best thing for both of us.

dwaters800 Rookie

My son was just diagnosed with gluten sensitivity, although he has not had diarrhea or weight loss yet - he has stomach pain, muscle ache, brain fog and headache. The funny thing is I quit eating wheat about 4 years ago because I just felt tired and ached when I ate it. Now I plan to go strictly gluten free along with him because I am convinced that it will be the best thing for both of us.

Ginny

skoki-mom Explorer

No, but they tend to be gluten-free for me :P Actually, my kids eat a lot of gluten-free stuff around here because I try to only cook one meal at dinner time so we all eat gluten-free for that meal. The exception is pasta, I cook them regular and me gluten-free mostly cuz it's just so freaking expensive. I have to literally pry the gluten-free chocolate chip cookies out of my youngest daughter's hands (I let her have them, but again, they are way expensive, lol!), and my oldest daughter is a pancake fiend and goes around telling everyone how the gluten-free pancakes are even better than the regular ones (Kinnikinnick mix ;)) My kids are still youngish, 7 and 5, so I figure if gluten-free gets to be normal around mom's house, it is just something they will grow with. I let them eat whatever they want for breakfast and lunch, but dinner is MINE!

Kailynsmom Apprentice

My kailyn (2 yrs old) has been gluten-free since july after blood tests and biopsy both showed no evidence of celiac disease. She's doing great and dr says he still is confident enough to give her celiac disease diagnosis. Since that time her little sister, now 11 months has weaned onto formula and began getting diahhrea. Switched to soy and she's better. Coincidence that both my kids are lactose intolerant? Perhaps, but with family history of celiac disease, dr said both kids should be gluten-free. It's just too hard to cook two meals, even though it may cost a little less for me not to eat gluten-free.

One question....anybody ever freaked over the gluten-free food prices. I recently found these AMAZING gluten-free chocolate chip cookies, but they're $4.00 for 12 cookies!! Yesterday my brother in law downed half a box and I almost lost it! I didn't know whether to scream, cry, or demand his wallet!!!

Hahaha

Mel

Guest nini

I was gluten-free first, then my daughter, but I would have to say that my husband has gone gluten-free mostly for us... we have made the house completely gluten-free. He doesn't have to be, so he will still eat it on occasion when he is out. I think he likes being gluten-free at the house because if he's eating a snack, he likes to be able to share it with our daughter and he was getting frustrated with not being able to offer her stuff when he wasn't gluten-free.

We have read Dangerous Grains too and don't think anyone should be eating gluten.

e&j0304 Enthusiast

We're trying over here, but it's been a slow transition. I don't know any good gluten-free recipies yet and Ella just basically eats hotdogs, sandwiches, and cereal for meals. Along with fruits and veggies and milk of course. She has always hated pasta and really hates gluten-free pasta. We also grill out a lot and she eats chicken.

My husband tried to be gluten-free and lasted about 12 hours and said he was starving to death. I truely believe that he has a gluten sensitivity due to his chronic fatigue, "irritable bowel", daily headaches, and overall moodiness. After all, Ella got it from somewhere, right? Actually due to her genetic testing she got one copy of the DQ1 gene from me and one from my husband so maybe we should all be gluten-free...

So far the baby is doing ok although he is almost a year old and refuses to eat solid food, spits up his milk after every feeding and has loose, watery stools about 3 times per day. Even with all of that he is gaining weight VERY well and is a healthy 23 pounds. His dr. isn't concerned about him yet.

Anyway, our whole family is hopefully going to try to go gluten-free soon.

Smunkeemom Enthusiast

I am trying to do a complete gluten lock down on the house right now, my daughter who is 2 1/2 has been gluten free for about 18 months now and it is getting annoying to cook 2 meals for dinner (although I don't have to do it often because I have found ways to gluten-free most of what I cook anyway :) )

My husband has crohn's and wants to go on the specific carbohydrate diet, which is gluten free and sugar free and dairy free and I don't think it will be near as much fun as gluten free is (seeing as how we all love our dairy) for that diet we may just single him out. I mean come on the kid can't have cake you want me to take away ice cream too? I am not seeing that happen, sorry but I really don't think so. :P

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    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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