Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Lactose Intolerance, But Nothing From Gluten


DistressedNewbie

Recommended Posts

DistressedNewbie Newbie

Hi everyone,

 
I have heard before that Celiac disease can make one lactose intolerant over time due to intestinal damage. 
 
I have never been lactose intolerant, at least with symptoms, when I was younger (I am now 20) but now I can't eat even a single slice of cheese without getting either lots of gas, acid reflux or even cramping and diarrhea.
 
I feel the effects of eating dairy instantaneously. Yet if I were to just eat a product containing gluten, such as a slice of bread, I get no symptoms at all. If my lactose intolerance is caused by damage from Celiac's, shouldn't I also feel symptoms from the gluten as well? How can I feel just the lactose intolerance but nothing from the gluten?
 
Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

It is possible that you could be a 'silent' or 'latent' celiac.  That is to say, you have the damage in your small intestine but gluten does not present any recognizable symptoms for you.  The lactose intolerance would fit in with this diagnosis, because the damage gluten does in the small intestine temporarily destroys the ability of the gut to produce the enzyme that digests lactose.  It is not until gluten is withdrawn and the gut has healed that the enzyme production can resume.  Until then the lactose will sit in your gut and ferment and produce gas and cause cramping pain and diarrhea.

 

I still feel that you need to be tested, possibly with the endo with biopsies, because the of up-in-the-air diagnosis. :)

love2travel Mentor

This was exactly me.  I could eat all the gluten I wanted without feeling ill whatsoever.  But cheese, milk and ice cream?  No way!  I was able to ingest some cheese for awhile but am back to eating lactose-free cheese and aged cheese very occasionally.  Lactose gave me greater problems than gluten until a couple of months ago when I finally had a gluten reaction after being gluten free for nearly two years!  That reaction was not nice.  It was an accidental glutening, of course, and I felt it.

 

We have different reactions to different things and must be detectives to figure stuff out at times.  But yes, to answer your question, it certainly is possible to feel more ill from lactose than gluten.  It definitely happened to me!

Cookingpapa Rookie

Is gluten intolerance the main reason for lactose intolerance as well?

GottaSki Mentor

The enzymes necessary for digesting dairy are created in the small intestine -- celiac disease can impede this and make it difficult to digest lactose, all dairy or other foods until the digestive system has had a chance to heal.  If someone is or has had trouble with dairy it a good idea to remove for a period of time and then reintroduce.

IrishHeart Veteran

Is gluten intolerance the main reason for lactose intolerance as well?

 

It is--in the case of celiac and It can occur as a result of other intestinal diseases such as gastroenteritis and an IBD like Crohn's disease. Treatment of the underlying disorder may restore lactase levels and improve signs and symptoms, though it can take some time.

As Shroom and Ski have pointed out, if the villi are blunted, the lactase enzyme production is decreased. 

Most celiacs get dairy back. Some never do.

 

Some people actually have hereditary lactose intolerance.

Congenital lactase deficiency, also called congenital alactasia, is a disorder in which infants are unable to break down lactose in breast milk or formula. This form of lactose intolerance results in severe diarrhea. If affected infants are not given a lactose-free infant formula, they may develop severe dehydration and weight loss.

 

The key is figuring out what's CAUSING it.

Cookingpapa Rookie

I've developed my lactose intolerance after my mid 20's. I never did get tested for gluten. We've just been eating gluten free because of my wife's intolerance. Maybe worth testing myself as well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    2. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    3. - KathyR37 posted a topic in Coping with Celiac Disease
      2

      New here

    4. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Celiac attack confusion and anxiety


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,808
    • Most Online (within 30 mins)
      7,748

    mhendy123
    Newest Member
    mhendy123
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • nanny marley
      Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for  them to see better with the bowel ,but you think they would use something a little less traumatic  for ibd sufferers on the bowels by now ,I hope your feeling better today 🙏
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.