Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Glutened. Hoping For Some Insight.

ButtercupSarah

Recommended Posts

ButtercupSarah Rookie
ButtercupSarah
Posted

I attended a bachellorette party last night and was definitely glutened. I believe it happened at the bar we attended as the friends house we started the evening at is also gluten free.

I drank vodka with oranje juice and cranberry....thinking it would be safe. Maybe I am more sensitive to gluten than I thought?

I read that some people react to vodka made with gluten grains and that some concentrated juices have gluten. Has anyone else experienced this? I emailed the bar to find out what sort of vodka was being served but haven't received a response yet.

I have only been on the diet for a little over a month, but when I do get it I have pretty obvious reactions. Horrible gluten brain and feeling like my body is glued to the bed, peripheral neuropathy etc.

thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

i got glutened at a bar one time and it was because the bartenders were washing glasses at the bar in water that had (everything, i'm sure!) in it.  like using the same water for beer glasses, etc.  i always ask for a glass from the dishwasher if i can get one.  

IrishHeart Veteran
IrishHeart
Posted

My guess is something other than vodka or juices "'got ya". I have never seen a juice with gluten in it.

 

Distilled alcohols are safe for celiacs. I have never reacted to an alcohol from a gluten-containing grain. I have pretty distinct symptoms if I accidentally ingest gluten.

 

There are people who feel that they don’t tolerate distilled alcohol from gluten grains, so they choose potato vodka instead.

 

Try it again another time. Your home, your glass, plain vodka and see what happens. Experimenting is the only way you'll ever know for sure.

 

Hope you feel better soon!

Gemini Experienced
Gemini
Posted

If you have only been gluten-free for a month, that alone could be the reason you felt sick.  Alcohol is rough on the gut and hard liquor even worse. You may want to refrain from drinking any booze for a bit and give your gut a little more time to heal.  Ditto for juices....many are very acidic. 

 

Hope you feel better soon!

SensitiveMe Rookie
SensitiveMe
Posted

I use potato vodka when vodka is called for and in recipes such as vodka alla penne or making my own vanilla extract. I go to the liquor store and specifically ask for types of potato vodka they have. I use a brand called vesica which is triple distilled and imported from Poland. It is relatively inexpensive but some other brands of potato vodka are quite costly.

dilettantesteph Collaborator
dilettantesteph
Posted

I got glutened in a bar once when all I had was ice water.  Have a look at how they wash the glasses and how the ice is stored.  I should mention that I am very sensitive so typical celiacs shouldn't have to worry about this.

Gemini Experienced
Gemini
Posted

I got glutened in a bar once when all I had was ice water.  Have a look at how they wash the glasses and how the ice is stored.  I should mention that I am very sensitive so typical celiacs shouldn't have to worry about this.

 Yeah...the bar owners must have stored the ice under the leaky box of Ritz crackers.  Good grief......  :blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

I got glutened in a bar once when all I had was ice water.  Have a look at how they wash the glasses and how the ice is stored.  I should mention that I am very sensitive so typical celiacs shouldn't have to worry about this.

 

It is possible to stay safe for everyone -- no matter sensitivity...it simply takes planning.  I am intolerant of a multitude of foods and have a severe problem regulating histamine so my body can't cool itself.

 

Yet....yesterday I spent the day at the zoo with Biology class -- in 90 degree heat -- impossible?  No...I carried a small hydrosize backpack with frozen water bottle, ice pack, umbrella and a couple bandanas to wet down when in need cooling...a bag of almonds and a chicken leg -- made it fine and some of my classemates borrowed the umbrella that they chuckled at when I first popped it outta my little pack.

 

I drink water and sometimes wine in every establishment I deem safe -- that would include the bars I have visited since gaining my life back.

ButtercupSarah Rookie
ButtercupSarah
Posted
  • Author

Thank you all for you advice!

 

I haven't had any problem with red wine and that is usually all I drink. It was a coyote ugly (so probably not super clean) but the glasses were plastic so I figured I was okay. The vodky i'm sure didn't help, I usually don't drink much liquor. We ate at a restaurant earlier that I usually have no problem with and they have a great gluten free menu...but it was prom night and the place was PACKED. I'll bet they were just less careful than usual and I probably got cross contaminated there.

dilettantesteph Collaborator
dilettantesteph
Posted

It is possible to stay safe for everyone -- no matter sensitivity...it simply takes planning.  I am intolerant of a multitude of foods and have a severe problem regulating histamine so my body can't cool itself.

 

Yet....yesterday I spent the day at the zoo with Biology class -- in 90 degree heat -- impossible?  No...I carried a small hydrosize backpack with frozen water bottle, ice pack, umbrella and a couple bandanas to wet down when in need cooling...a bag of almonds and a chicken leg -- made it fine and some of my classemates borrowed the umbrella that they chuckled at when I first popped it outta my little pack.

 

I drink water and sometimes wine in every establishment I deem safe -- that would include the bars I have visited since gaining my life back.

 

I hope I didn't give the impression that I was saying that it isn't possible to drink water in a bar.  I only had that problem one time.  They had the ice stored right under where they served up the draft beers.  I just meant that if you are sensitive you might want to check that out.

Kamma Explorer
Kamma
Posted

I hope I didn't give the impression that I was saying that it isn't possible to drink water in a bar.  I only had that problem one time.  They had the ice stored right under where they served up the draft beers.  I just meant that if you are sensitive you might want to check that out.

 

Yeah, I could see that.  Pulling a draft beer there's always some spillage and it's totally conceivable that some could have spilled on the ice.  Thanks for the tip, dilettantesteph.

IrishHeart Veteran
IrishHeart
Posted

Not to go too far off topic here, but having the Ice located right under the beer taps is poor planning. Those things leak constantly. (I know, my shoes stuck to the floor often enough while tending bar) Drainage and spills alone would suggest the ice NOT be placed under there, but also, ice must be open for bartenders to scoop for mixed beverages.  Having worked in bars, I can tell you, the likelihood of them being under the beer taps is very low.  The last thing you want in the ice is spilled anything--and definitely not a broken glass. (we had that happen during happy hour--not great to lose all that ice)

 

Maybe the bar Steph went to had this set up, but the traffic around the ice well is pretty heavy and if someone is standing there pulling a draft,'the other bartenders are going to be jockeying around trying to get at it. Makes no sense from a business perspective.

dilettantesteph Collaborator
dilettantesteph
Posted

Not to go too far off topic here, but having the Ice located right under the beer taps is poor planning. Those things leak constantly. (I know, my shoes stuck to the floor often enough while tending bar) Drainage and spills alone would suggest the ice NOT be placed under there, but also, ice must be open for bartenders to scoop for mixed beverages.  Having worked in bars, I can tell you, the likelihood of them being under the beer taps is very low.  The last thing you want in the ice is spilled anything--and definitely not a broken glass. (we had that happen during happy hour--not great to lose all that ice)

 

Maybe the bar Steph went to had this set up, but the traffic around the ice well is pretty heavy and if someone is standing there pulling a draft,'the other bartenders are going to be jockeying around trying to get at it. Makes no sense from a business perspective.

 

This was a small bar with only one bartender so they didn't have the problem of heavy traffic.  I just wish that I had known that it might be a problem before it made me sick.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless...
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system?
    3. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once...
    4. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note:...
    5. Scott Adams
      0

      Homemade Gluten-Free Egg Drop Soup

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,842
    • Most Online (within 30 mins)
      7,748
    aetherwax
    Newest Member
    aetherwax
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.