Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extreme Vomitting For Over 24-Hours


crick3t

Recommended Posts

crick3t Newbie

I have not yet been officially diagnosed with Celiac, but am currently researching due to several doctors' recommendations.  About a month ago I started feeling extremely nauseas and sometimes vomiting directly after a meal.  I visited my primary care physician, and she suggested I try an exclusionary diet.  Silly me, two days ago I went out for McDonald's and had a beer.  About an hour after the beer I started feeling sick.  I vomited between seven and ten times that night, then woke up and immediately began vomiting again, nonstop, for hours.  I had to go to the ER.  Several people are now very convinced this indicates Celiac and that I need to switch to Gluen-free.  I am completely fine with this if it stops me from ever having to live though yesterday again!

 

I don't know anyone with Celiac, but do know one person with a gluten intolerance who said he feels lethargic and just "wrong" after ingesting gluten products.  That sounds much to mild to be what I experienced over the last 24+ hours.

 

Here is my question.  Has anyone else experienced severe symptoms like this before?  Or heard of someone who did?  I am at a loss here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Brandiwine Contributor

I had what was like the stomach bug on steroids before I went gluten free, it was horrible! Have you had any tests done? How where you feeling before all the vomiting? What other symptoms do you have?

kareng Grand Master

Sounds like it could be food poisoning. Extreme vomiting isn't a common symptom of Celiac. I assume, since you went to the ER, they did a pregnancy test?

shadowicewolf Proficient

Yes, one of my symptoms was vomiting before i was diagnosed, but mine wasn't as bad as yours is. It was regardless of what i ate and it would happen at least once a day, not long after i ate.

crick3t Newbie

It started as vomiting after meals, for over a month, and then suddenly this happened.  I was feeling just fine before I started getting sick, just like all the other times.  It shouldn't be food poisoning, or else it's the most extreme case ever, since I've been having these symptoms for a month.  I'm not pregnant because I've had three pregnancy tests done since the symptoms started.  A stomach bug on steroids certainly sounds right.  I know it's not a common symptom, but is it a symptom at all?  

 

As I said before, I too was getting nauseated after ever meal (unless the meal was gluten-free, like veggies and hummus).  The vomiting was after eating things like pasta, tacos, drinking beer, or eating fast food.

 

This bout of vomiting was also accompanied by severe stomach pain, to the point where the ER had to give me an anti-nausea and then a painkiller.  What kind of symptoms did you all get?  Really, has anyone at all ever experienced symptoms like this?  Usually it was just a few hours of nausea and vomiting and then I was fine.

psawyer Proficient

Nausea and vomiting were among my symptoms prior to dx, but never like what you describe. I am thinking along the same line as Karen--this sounds more like food poisoning than a gluten reaction.

Brandiwine Contributor

Everybody does react differently and if you don't get sick while eating gluten-free sound like a the best reason to stay on a GFD. No two Celiacs are the same, we all have different reactions and different diets and food sensitivities and allergies. I had chronic D before, I kept myself from vomiting as much as possible, your case sounds extreme but I don't feel like you could mark it off the list of possible symptom at all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ollie's Mom Apprentice

I used to have what I called my days from hell where I'd have a terrible migraine, and I'd vomit almost continually all day long. It was not food poisoning, but it was always coupled with a migraine and a weird kind if diarrhea. The first few times I had that reaction, it was after I had had a beer or two the night before. Then it started happening more frequently, and seemingly rabdomly (although I now know the culprit was gluten).

I've also had food poisoning in my time, and the town are totally different feeling, although on the surface the symptoms sound similar (headache, vomiting, diarrhea). With food poisoning, I just prayed for it to be over quickly. With the gluten induced days from hell, I remember thinking to myself a few times that dying probably wouldn't be so bad, I actually felt that bad.

Brandiwine Contributor

I too can remember getting so sick that I felt like dying might not be so bad compared, that's just how bad it gets plus the mental and emotional effects gluten has. Thank God we know better know!!! There is a light at the end of the tunnel just hang in there!

  • 5 months later...
crick3t Newbie

I know this is an old post now, but I wanted to share this in case someone else comes to this forum for help with similar symptoms.  It turns out that you folks were both right, and wrong.  My case was too severe to be Celiac, because it wasn't.  It also wasn't food poisoning.  I had a benign tumor called Focal Nodular Hyperplasia.  It's a tumor on the liver, and usually causes no symptoms.  However, since mine was large (6-7 cm) and in the exact right spot, it pressed on my stomach and caused "false satiety," meaning that I'd eat once slice of pizza and feel so full it was disgusting and painful.  That would be followed by nausea and eventually vomiting.  Shortly after I posted this question, I was admitted to the hospital for a week because I literally could not stop vomiting.  They figured out what was wrong, thank God, and I have since had surgery to remove the tumor.  I am fully recovered and feeling better than ever.  Thank you everyone for your help, and thank you for continuing to insist that my symptoms were too severe to be Celiac, because you were right!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    2. - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

    4. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    5. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,925
    • Most Online (within 30 mins)
      7,748

    Linda Stark
    Newest Member
    Linda Stark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.