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How Long Does It Taken To Recover From An Accidental Glutening


UnhappyCoeliac

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UnhappyCoeliac Enthusiast

Had something that had no ingredients of gluten BUT ALSO didn't claim to be gluten free, in the past I have found it OK

but this time it made sick, very strange but I can tell by my bowl movements whether I have been glutended or not

 

IF YOU have been fairly gluten free how long does it take the body to recover?


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GFinDC Veteran

Had something that had no ingredients of gluten BUT ALSO didn't claim to be gluten free, in the past I have found it OK

but this time it made sick, very strange but I can tell by my bowl movements whether I have been glutended or not

 

IF YOU have been fairly gluten free how long does it take the body to recover?

Hi UC,

 

One study showed there were still abnormalities in some celiac patients guts after 18 months gluten-free.

Lima Bean Newbie

Had something that had no ingredients of gluten BUT ALSO didn't claim to be gluten free, in the past I have found it OK

but this time it made sick, very strange but I can tell by my bowl movements whether I have been glutended or not

 

IF YOU have been fairly gluten free how long does it take the body to recover?

I have noticed that you ask a question and never come back to it. Why?

And I am wondering....if you " hate everyone", why are you asking us questions? Are we not part of " everyone"?

Not sure why I am asking you to answer as you don't respond. Silly me!

Brandiwine Contributor

Lima Bean I think you scared them off, that profile isn't active anymore as of today....

kareng Grand Master

Lima Bean I think you scared them off, that profile isn't active anymore as of today....

Nah! She didn't. There seems to be a glitch in the system it appears. Need computer miracle workers to fix it.

It is true that this guy seems to post questions and never come back to the thread to comment, answer questions or thank people.

surviormom Rookie

Well that is a good questions how long does it take?  Does it get worse each time, etc.

 

I do appreciate your answers, I am an eager pupil, it seems the only way to get through this is to ask questions and learn and maybe I will end up healthier than ever in my life.

 

No Gluten

No Dairy

No Alcohol

No Caffeine

No vices left  I have to be healthier before long.

UnhappyCoeliac Enthusiast

Hi UC,

 

One study showed there were still abnormalities in some celiac patients guts after 18 months gluten-free.

 

Thanks for the post will take that with a grain of salt personally I have achieved normal blood levels from 3 months gluten free.

 

I have noticed that you ask a question and never come back to it. Why?

And I am wondering....if you " hate everyone", why are you asking us questions? Are we not part of " everyone"?

Not sure why I am asking you to answer as you don't respond. Silly me!

 

I'm back

 


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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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