Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

But It's Not Gluten-Free!


bartfull

Recommended Posts

bartfull Rising Star

I just went to a farmer's market type thing right down the street from my shop. There were several vendors with baked goods for sale, quite a few of which were marked gluten-free. I questioned the people and sure enough, they were all baked in the same pans in the same kitchen with gluten foods. Some were made with regular oats. Most were even baked at the same time as the gluten foods, on the same oven rack.

 

A tourist stopped in and said she had just been there and bought a gluten-free muffin. I told her I had questioned the people (she should have too - she was diagnosed 7 years ago and should know better) but she said she was glad I told her so she could give the muffin away.

 

I wonder how many people are going to get sick today because of this. :angry:

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

I just went to a farmer's market type thing right down the street from my shop. There were several vendors with baked goods for sale, quite a few of which were marked gluten-free. I questioned the people and sure enough, they were all baked in the same pans in the same kitchen with gluten foods. Some were made with regular oats. Most were even baked at the same time as the gluten foods, on the same oven rack.

 

A tourist stopped in and said she had just been there and bought a gluten-free muffin. I told her I had questioned the people (she should have too - she was diagnosed 7 years ago and should know better) but she said she was glad I told her so she could give the muffin away.

 

I wonder how many people are going to get sick today because of this. :angry:

The baker probably had good intentions and probably didn't know.

notme Experienced

 

 

I wonder how many people are going to get sick today because of this. :angry:

one less, because of you :)  

 

i blame the gluten-free fad diet.  everybody wants to jump on that wagon.  hopefully, the people who need to ask the questions will ask them.  i wish people understood this better :(  if you gluten me i lose 14 days.  four.  teen.  days.

Brandiwine Contributor

I hope they learned from your questions that its more serious than they are treating it! I am glad they are making the effort though I would love to be able to buy gluten-free baked goods at my local farmers market!

IrishHeart Veteran

one less, because of you :)

 

i blame the gluten-free fad diet.  everybody wants to jump on that wagon.  hopefully, the people who need to ask the questions will ask them.  i wish people understood this better :(  if you gluten me i lose 14 days.  four.  teen.  days.

 

 

yes, what she said!!!

 

Barty, my sweet friend...you GET IT, :)  but sadly, many who should be more aware of what they need to to do stay safe, do not.

 

Education is the key. 

bartfull Rising Star

The tourist, a confirmed and experienced celiac, was from Denver. I guess in Denver people are a lot more celiac-aware and if something is marked gluten-free, you can count on it BEING gluten-free. But one of these bakers at the market is the same lady I called a few months ago when a friend picked up a "gluten-free" muffin for me. I wasn't about to eat it until I knew how it was made. I explained CC to this baker in detail and told her (nicely) that if a celiac ate her wares, they would get sick. She's STILL hawking this stuff! Ticks me off to no end. KIDS might buy this stuff!

 

I think there should be a law. If someone made something they declared peanut-free when it really wasn't, they'd get sued at the very least, and probably arrested for endangerment or something. Why do people think celiac isn't to be taken seriously?!

IrishHeart Veteran

 Why do people think celiac isn't to be taken seriously?!

 

 

That..my friend, is the  $64, 000 question!! beats me. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CommonTater Contributor

That reminds me of our last trip to Albertson's. They carry a brand of sandwich meat and cheese that is gluten free in the deli. The girl that generally waits on us wasn't there last Wed. She is as good as gold because her Mother has celiac. A different guy was behind the counter so I made sure to tell him I had to be careful. He had just waited on another lady who bought another brand, not gluten free. I turned for a moment to look at something and when I looked back he was using the same slicer, there was another slicer that had been cleaned beside him. So I did say, excuse me, did you clean that slicer and did you change gloves? The look he gave me made me feel bad so I said, I'm sorry but if I eat that it'll make me terribly sick. He got an attitide and slung the meat in the trash. At this point I said, I'm sorry I've changed my mind, I better just pass and we decided to just leave.

Another lady walked up to me on the way out and said, he had emptied trash before the previous customer and didn't change gloves before cutting her meat. I wanted to know how she knew all this and she said she'd been waiting to get some ham and cheese but changed her mind. No, I didn't tell the manager. I should have but I just couldn't stand knowing I might have caused him to lose his job, now I feel guilty that he might make someone sick.

I get so tired of people making me feel guilty and yes embarrassing me. Some people just don't get it.

The last time I got sick from cross contamination it took me 3 weeks to start to recover!

Brandiwine Contributor

That reminds me of our last trip to Albertson's. They carry a brand of sandwich meat and cheese that is gluten free in the deli. The girl that generally waits on us wasn't there last Wed. She is as good as gold because her Mother has celiac. A different guy was behind the counter so I made sure to tell him I had to be careful. He had just waited on another lady who bought another brand, not gluten free. I turned for a moment to look at something and when I looked back he was using the same slicer, there was another slicer that had been cleaned beside him. So I did say, excuse me, did you clean that slicer and did you change gloves? The look he gave me made me feel bad so I said, I'm sorry but if I eat that it'll make me terribly sick. He got an attitide and slung the meat in the trash. At this point I said, I'm sorry I've changed my mind, I better just pass and we decided to just leave.

Another lady walked up to me on the way out and said, he had emptied trash before the previous customer and didn't change gloves before cutting her meat. I wanted to know how she knew all this and she said she'd been waiting to get some ham and cheese but changed her mind. No, I didn't tell the manager. I should have but I just couldn't stand knowing I might have caused him to lose his job, now I feel guilty that he might make someone sick.

I get so tired of people making me feel guilty and yes embarrassing me. Some people just don't get it.

The last time I got sick from cross contamination it took me 3 weeks to start to recover!

I would have felt the same way, but it doesn't sound like you were rude and you did explain yourself saying it would make you sick. It's hard knowing you may cause some one else grief by complaining, but he didn't seem to mind causing you to be ill either. It is part of his job to serve you politely. He won't learn otherwise and you shouldn't have to pass on your food, for us safe places are like gold! It would be a shame for you to have to pass every time you see him working the slicers :-/

shadowicewolf Proficient

The tourist, a confirmed and experienced celiac, was from Denver. I guess in Denver people are a lot more celiac-aware and if something is marked gluten-free, you can count on it BEING gluten-free. But one of these bakers at the market is the same lady I called a few months ago when a friend picked up a "gluten-free" muffin for me. I wasn't about to eat it until I knew how it was made. I explained CC to this baker in detail and told her (nicely) that if a celiac ate her wares, they would get sick. She's STILL hawking this stuff! Ticks me off to no end. KIDS might buy this stuff!

 

I think there should be a law. If someone made something they declared peanut-free when it really wasn't, they'd get sued at the very least, and probably arrested for endangerment or something. Why do people think celiac isn't to be taken seriously?!

Where at in Denver? I've yet to see it.

 

At any rate, the target population is probably those on the fad or those who aren't celiac but just sensitive.

RaeDawnMarie721 Newbie

This is all terrifying, in my opinion. Like someone said regarding the baked goods, a child could buy one of those muffins and end up incredibly sick! And...well, this might seem nasty but I've been working with the public for years now. The customer is always right whether the customer is right or not (which, trust me, you were right). The manager should have been informed. It's not okay to get snippy with or around the customers, and it's not okay to make people sick...and it's REALLY not okay to not change your gloves after changing garbage. YUCK.

powerofpositivethinking Community Regular

i'm one of those people who has always washed my hands...all. the. time.  pre-gluten free, and even more gluten free.  YUCK is right  :P

it's not okay to make people sick...and it's REALLY not okay to not change your gloves after changing garbage. YUCK.

frieze Community Regular

...and it's REALLY not okay to not change your gloves after changing garbage. YUCK.

 

 

lacking education, many persons in food service treat gloves as self protection only.  when I worked food service, it was well before glove wearing came into common practice....and we were taught as good or better hand hygiene than when I went to nursing school.

liko73 Newbie

good to know this, thanks.

  • 1 month later...
Renegade Contributor
The last time I got sick from cross contamination it took me 3 weeks to start to recover!

 

This is scary, how the hell can Cross contamination be so bad, you are ingesting a insanely tiny amount of gluten, eating it would be in such a bigger proportion. I don't get how cross contamination can be so bad, specially after healing has been done.

bartfull Rising Star

Renegade, it is because our immune system reads gluten as a foreign invader and attacks, but instead of attacking the gluten, it attacks US. Think about how our bodies respond to one microscopic germ or virus - all of the symptoms of a cold are caused by our immune system trying to get rid of it. In the same way, one microscopic bit of gluten makes our immune system go into full fighting mode.

mbrookes Community Regular

Renegade, as I understand it:

Ingesting gluten is not like taking poison. The more you take the stronger the reaction. Even a tiny bit of gluten sets up a physical reaction that is dependent on the fact that you ate ANY gluten, not on how much you ate. Hope that helps.

megsybeth Enthusiast

I think you could suggest to them that they label them "wheat free". For me, this is clearer that they are going for health-conscious people. Peet's Coffee carries a wheat free muffin and when you ask them about it, same thing, shared facility, bumping all around with gluten products. But there is a market that just wants to avoid wheat, so I get that it's not for me. I think the label "gluten free", should be reserved for products made by people who know what it is and why it's important.

MissyBB Explorer

 

 

i blame the gluten-free fad diet.  everybody wants to jump on that wagon. 

 

I wonder how many people were "saved" by the gluten-free fad though? Here is what I mean........at the pushing of my hubby, we started a Paleo diet in April. It was then, when I was not eating wheat, that I realized how damned GREAT I felt and how many symptoms that had plaguing me went away. And, sure enough, when I re-introduced wheat they allllll came back, but worse! Now that I have been gluten-free for nearly four months I realize how awful I had felt for years and years. I am actually convinced that, at the very least, I have NCGS and I am going to go get the antibody test. 

 

Point is, I wonder how many people this "fad" helped to open their eyes?

 

But, yes, I also understand what you mean......I hate it when fads like this come and go. It demeans the seriousness of diseases like celiac for those who really do suffer. 

 

I have run an organic co-op through the ONFC for years now and I can tell you that the number of people who have come through as a "fad" to eat organic, and then gluten-free have been many......people think it's "cool" to be into the latest and greatest eating fad.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.