Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Have Celiac Disease?


Timguy86

Recommended Posts

Timguy86 Newbie

Hi everyone, the more I read about Celiac disease the more I think I might have it.

 

 

My symptoms:

 

-Dairy intolerant, even lactose free milk gives me problems.

 

-For the last couple of years if I wake up early in the morning I have very bad nausea.

 

-I haven't had a solid bowel movement for probably 12 months.

 

-Stomach cramps, gas, and the runs for a couple years, some days worse than others, but pretty persistent.

 

-Even when completely off of dairy for over a week I've still got diarrhoea, less nausea though.

 

-This has been getting worse lately which is why I finally cut dairy out completely.

 

-I've recently been getting migraines for the first time ever, only 2 so far though.

 

 

And I think this is the real clincher for me, yesterday I had a huge bowl of cereal absolutely full of wheat for the first time in probably over 6 months, and about 5 hours later I was absolutely flawed with stomach pains, gas, and diarrhoea. This reaction lasted all night and this morning and I'm only just starting to feel a little bit better now (about 24hrs after eating the wheat). I was really dazed all morning as well, vision a little blurry, hard to articulate things, and just generally dull. This was the worst I've felt in months. I also felt nauseous the other morning after eating lots of cookies the night before as well.

 

What do you all think?

 

And what's my next step? Should I just cut out gluten completely and see how I go, or should I go to a doctor and get a proper diagnosis?

 

Also I'm 27year old, male, and have probably been having digestive issues for 4 or 5 years...

 

Thanks

Tim


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

Greetings Tim,

 

First, you need to determine if you are consuming enough gluten to be tested.  You may be getting gluten even if you are not eating bread, but you would need to discuss that or read up on that.  I think you should get blood tests for antibodies to gluten (celiac) just as soon as possible.  keep eating gluten until all testing is done.  After the blood tests you may also have an endoscopy for further clarification.  After that you could take the final test.  Avoid all gluten and see what happens.

 

I hope you will soon have definitive answers.  Your symptoms sound uncomfortable, and please get better.

***

D

Timguy86 Newbie

Thanks for the reply.

 

I also forgot to mention that I've lost 11kg of muscle over the past year as well and am pretty skinny now. I find it very hard to put on weight and maintain it.

 

I'm booked in to see the doctor on Friday. Lets see how it goes... :)

1desperateladysaved Proficient

Please someone post the list of tests for Tim.

Timguy86 Newbie

Please someone post the list of tests for Tim.

 I read this: "IGA gliadin and IGA endomysial tests are the most accurate"

 

So at this stage I'm pretty much just going to go in and ask for those tests and ask what the doctor thinks about it all.

 

I also just read that geographic tongue is common with celiac disease, and that actually started for me at about the same times as my other symptoms. So I've got a heck of a lot of symptoms of celiac disease... will be interesting to see what the test results are.

powerofpositivethinking Community Regular

be sure to check out the link at the bottom for a lot of great info.  here are the blood tests you should ask for, and a GP or GI can order them:

 

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other testing

check out page 12 in this report for testing information:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,032
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.