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Getting Tested Again?

WinterSong

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WinterSong Community Regular
WinterSong
Posted

Hi, 

 

I was diagnosed with Celiac in March 2011. By November of 2012 I finally had gotten my tTg level back down to normal. I've been doing really well since and haven't gotten sick at all. Feeling great.

 

I'm going to lose my current health insurance at the end of September and need to decide if I want to go in for a check up blood test to make sure that gluten isn't sneaking in without me knowing.

 

How often do you get your levels checked if at all? My doctor didn't say anything other than congratulations during our last conversation. 

 

Thanks!

 

Jessica

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nvsmom Community Regular
nvsmom
Posted

My GP won't do any sort of blood check test. Period. I have started seeing another ( nutrition based) doctor and he seems to want to test every two months. I would say that the ideal is every year until you are sure you are healed (negative tests and no symptoms) and then only when you suspect a problem after that.

Congrats inherently negative levels! :D

Lisa Mentor
Lisa
Posted

Jessica, I would go for the follow up while you have insurance. ;)

psawyer Proficient
psawyer
Posted

Jessica, I would go for the follow up while you have insurance. ;)

Good advice.

love2travel Mentor
love2travel
Posted

I get mine done every six months. Probably will cut back to annual now that I was diagnosed over two years ago. I agree - definitely go while you still have insurance.

GottaSki Mentor
GottaSki
Posted

I was every six months for the first two years until both my celiac panel and nutrients were all good.  Now I get them all annually.

 

I agree with Lisa and Peter -- get them done while you have insurance -- along with any other tests you can think of. 

 

We remain insured but this past few years our coverage has increased at a ridiculous rate which has required our family to change to a catastrophic policy until I am back to work full time.

WinterSong Community Regular
WinterSong
Posted
  • Author

Thanks for the advice! Even though my last test was negative, I'm going to schedule another appointment while I can to make sure that I'm still on track even though I haven't gotten sick :)

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nvsmom Community Regular
nvsmom
Posted

Good luck.  :)

Mom-of-Two Contributor
Mom-of-Two
Posted

First check 6 months after, since those were normal, both myself and my 8 year old only have to go yearly. Forever, according to my GI!

She also checks my iron still, as I'm having trouble getting that up. My 8 year old had normal vitamin levels after diet change, so her pediatrician doesn't need to monitor her nutrients regularly.

  • 4 weeks later...
WinterSong Community Regular
WinterSong
Posted
  • Author

Thanks to everyone who replied. Just got my test results back and my ttg is still normal. Whoop!

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