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1 Month :)


w8in4dave

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w8in4dave Community Regular

    One month yesterday!! (I just looked it up!) And I feel so much better!! Not 100% but so much better!! I still wake up with leg cramps, but I am NOT running to the restroom all the time and I have more energy, altho I do feel really tired during the middle of the day, like I want to take a nap. In fact I did the other day!! I have NEVER been a napper before.I feel better after the nap. Other than that and a lil constipation I am doing great!! I want to get on some Probiotics , still am going to see the Gastro guy on the 6th. Not sure why at this point but will talk to him. Thank you all for the great support!! I love this place!! :) I am amazed at myself!! I also will go back to the Dr, Because I still have a rash on my back, losing hair and my toe nails and also the white tongue thing. But feeling better is wonderful!! :) 


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GottaSki Mentor

Party?

 

Hell Yes!

 

One Month with all that improvement....NICE :)

 

I am so pleased you are improving quickly....you are awesome...hang tough!

shadowicewolf Proficient

Yay!

dani nero Community Regular

Congratulations. Keep up with the high spirit, and don't get discouraged if some days feel harder again. Healing is through a curve just like learning.

w8in4dave Community Regular

Thanks !! Yes I am amazed I feel so much better!!! It is such a load off me knowing what my problem is. Now I can go out and eat and not have horrible pains and stuff , I am amazed!! Now I will get to my other issues when I see the Dr. Next week. At least I feel better! I may not be 100% healthy but I feel soooooo much better!! Even my friends can tell the difference! I cannot w8 to talk to my Dr. I have not seen him since I was Dx'd ... His office called and told me, so I have not talked to him about it as of yet .... 

Celiac Mindwarp Community Regular

This is fantastic news:)

Great to hear you are getting improvement so quickly.

Your positive attitude on the board in the last few weeks has been lovely, I am sure you will continue to improve

Mw x

BZBee Apprentice

Woo Hoo!


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w8in4dave Community Regular

Thanks everyone! I am so very happy to be here!! I have learned so very much!! Thanks!!

cyclinglady Grand Master

Congrats!  It is great to be feeling better!

GottaSki Mentor

skidding in late.............been a zombie for a bit there.............congratulations on your one month!  Also add you have been a wonderful fun additional to the board and I am glad you are here and beyond happy to know you are improving quickly!

 

Hip Hip Hooray for You :)

MissyBB Explorer

I am so glad you are feeling better. Isn't it wonderful to feel GREAT?!  :D

notme Experienced

great news!  congratulations!  :D

w8in4dave Community Regular

Well Thanks e1 :) But sadly now I think I am having a set back! I have had some big "D" problems the last few days!! Like horrible! I am trying to figure out what the problem is!! I am thinking it may be Dairy ??? I just don't know... I have an appt with the GI Dr. The 6th. Hoping to get to a nutritionist , or dietitian or someone to help me.... I have lost 25 lbs in the last month ... But I am still feeling better, I am hoping I get more answers from Dr's ... But until then I will be very careful of what I eat. To tell you the truth, I am afraid to eat anything when I am out. I go to restaurants with my friends and don't order anything. Came home from a Vaca 9 1/2 hr drive and didn't eat anything . This is the same thing I was doing before I was DX'd ... when I am out I won't eat anything. I am supposed to go to  Mackinac Island with a couple of friends for 3 days. I am going to be afraid to eat anything... Not really sure If I should go or not. It is payed for. Maybe talking to the Doc will help. Here I was doing so well!! Just don't know!! I did buy some probiotics today from The Whole Food Store .... :) Trying everything I can :) Thanks for all the support!! :) 

  • 4 weeks later...
w8in4dave Community Regular

Well It has been 2 months :) Yay for me!! My set back was from a restaurant I ate from  :( , But I went to Mackinac Island and there was a Pizza place that had Gluten Free pizza!! It was my first time with Gluten free Pizza!! I loved it!! They said they were very careful about how they cooked it and utensils they used. I had no problem!! :) We went back the next night I had a burger with no bun and a salad. I was going to see if the cook could microwave me a tater but all their potatoes came in frozen. I wasn't going to risk that contamination so I got a side salad. So 2 months in I am doing pretty good!! 

I am still suffering from exhaustion tho, I feel like I have worked for a week straight! Hard labor and I am exhausted! Altho I don't work! I hope that gets better soon. Seems I have my good days and bad days. Just try and plug along!! Maby it is from my trip?

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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