Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ear Problems? Dizziness?


PicturePerfect

Recommended Posts

PicturePerfect Explorer

Has anyone had any ear problems or dizziness? Or ear problems that caused dizziness???? Mid-June last year, I had a horrible "dizzy attack." It went on for about 5 days or so and was constant. It calmed down the next few days, but kicked up again after I went on a plane.

The dizziness is STILL there, after more than a year, and gets worse when I swim, go in high altitudes, or fly in an airplane. I almost think I always have it, but my body is just so used to it, it has adapted.

I went to many doctors, and one doctor thought that I had less water in one ear, or something like that. The only problem is, is that he didn't do anything about it. When my regular doctor found out that I had Celiac, he said that dizziness may be a symptom. But, it isn't that much better.

Ooh, and another symptom is that I also have head rushes. Like when I stand up, even if its really slow, I black out for a second or two.

Anyone else had problems??

Thanks,

Lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice
Has anyone had any ear problems or dizziness? Or ear problems that caused dizziness???? Mid-June last year, I had a horrible "dizzy attack." It went on for about 5 days or so and was constant. It calmed down the next few days, but kicked up again after I went on a plane.

The dizziness is STILL there, after more than a year, and gets worse when I swim, go in high altitudes, or fly in an airplane. I almost think I always have it, but my body is just so used to it, it has adapted.

I went to many doctors, and one doctor thought that I had less water in one ear, or something like that. The only problem is, is that he didn't do anything about it. When my regular doctor found out that I had Celiac, he said that dizziness may be a symptom. But, it isn't that much better.

Ooh, and another symptom is that I also have head rushes. Like when I stand up, even if its really slow, I black out for a second or two.

Anyone else had problems??

Thanks,

Lisa

<{POST_SNAPBACK}>

well, yes and no. I think you may have more than one problem. My head was congested all summer-could even feel the water sloshing around in my eustatian tubes and I don't swim! Took otc decongestants and that helped some. But it wasn't until I realized that I had been giving myself a very low level of gluten every day that my ears cleared up. I had been eating a cereal sweetened with malt (I feel so stupid for that) but cut it out two weeks ago and the congestion in my ears cleared up. And the head rushes are a medical condition related to blood pressure. I don't remember the name of it, but it can be treated. Please see your gp and mention the head rushes to him/her. It isn't uncommon.

jenvan Collaborator

perhaps you are having some vertigo issues. i had those for a while after having a middle ear infection. my mom has off and on chronic vertigo issues. the drs told her there isn't much they can do for it. she takes antrovert when she has an attack...

  • 4 weeks later...
valniles Newbie

There are a lot of things that can cause vertigo. The best thing to do is go to an ear, nose and throat specialist to be tested. Vertigo is a horrible condition to have. I have suffered from it off and on for over 25 years. You can get on line and just type in vertigo and learn a lot about it and the different things that can cause it. There are some options that include medication and sometimes a soft cervical collar. Again, go to a specialist, not your regular MD. I am NEVER without medication that helps because my vertigo attacks can happen at any time. Flying and swimming can make it happen and swimming can be dangerous because your body doesn't know what direction is up if you are in full verigo. Good luck.

Felidae Enthusiast

Last year there was a virus going around where I live that caused dizzy symptoms.

bluelotus Contributor

Vertigo and dizziness may also be a silent migrane. Whatever the cause, if you have celiac disease, dizziness is a symptom as you well know. I have suffered from it too on occasion, mostly when sitting (at computer, watching tv, eating dinner, etc), though it happened once while driving, which was very scary. Although gluten free, I have been glutened unintentionally and repeatedly for months, so that may explain why this dizziness isn't gone for me yet. Don't know if it ever goes away after being gluten-free......

  • 2 weeks later...
PicturePerfect Explorer
Vertigo and dizziness may also be a silent migrane. Whatever the cause, if you have celiac disease, dizziness is a symptom as you well know. I have suffered from it too on occasion, mostly when sitting (at computer, watching tv, eating dinner, etc), though it happened once while driving, which was very scary. Although gluten free, I have been glutened unintentionally and repeatedly for months, so that may explain why this dizziness isn't gone for me yet. Don't know if it ever goes away after being gluten-free......

That is exactly how it is for me.

I recently had an EEG done, but that turned out negative. My mom was diagnosed with MS just a few days ago because of dizziness. She says that I would be too young to have it though, so I don't know what to think is causing it.

Lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stef-the-kicking-cuty Enthusiast

I also had severe dizziness the last years before being diagnosed with celiac. After going glutenfree it took about 6 month. I'm completely free of any dizziness whatsoever today. So I think, if it's caused by celiac, that it can get better and even disappear with time.

Hugs, Stef

Claire Collaborator

Are you gluten free? In addition to ENT specialist you might see a neurologist. Some dizziness can be traced to the ears - some to the brain. Cover all the bases.

By all means get the gluten out. Try Bonine for the dizziness. A whole pill may not be necessary - less is better because it may make you sleepy.

I don't know how old you are but MS usually strikes late twenties and onward to about forty. Obviously there is leeway either side of those ages but that is the general rule.

Cover all the bases. Claire

tarnalberry Community Regular
Vertigo and dizziness may also be a silent migrane. Whatever the cause, if you have celiac disease, dizziness is a symptom as you well know. I have suffered from it too on occasion, mostly when sitting (at computer, watching tv, eating dinner, etc), though it happened once while driving, which was very scary. Although gluten free, I have been glutened unintentionally and repeatedly for months, so that may explain why this dizziness isn't gone for me yet. Don't know if it ever goes away after being gluten-free......

The dizziness associated with my migraines is the main thing that makes it so disruptive in my life. Driving is simply not an option when you're that disoriented!

I hope an ENT can help you find out what the problem is, lisa.

darlindeb25 Collaborator

All gave you very good advice--I do know that low blood pressure can cause dizziness. Have you checked everything you use--you may be getting a minimal amount of gluten--vitamins, shampoos, lotions, soaps, a daily med you may be taking??????????????? I get dizzy when standing too close to someone and I look up to them--my sweetie always keeps and arm around me to support me cause I always tip--but that is usually the only time I am like that. Deb

kimjoy24 Apprentice
Has anyone had any ear problems or dizziness? Or ear problems that caused dizziness???? Mid-June last year, I had a horrible "dizzy attack." It went on for about 5 days or so and was constant. It calmed down the next few days, but kicked up again after I went on a plane.

The dizziness is STILL there, after more than a year, and gets worse when I swim, go in high altitudes, or fly in an airplane. I almost think I always have it, but my body is just so used to it, it has adapted.

I went to many doctors, and one doctor thought that I had less water in one ear, or something like that. The only problem is, is that he didn't do anything about it. When my regular doctor found out that I had Celiac, he said that dizziness may be a symptom. But, it isn't that much better.

Ooh, and another symptom is that I also have head rushes. Like when I stand up, even if its really slow, I black out for a second or two.

Anyone else had problems??

Thanks,

Lisa

I started suffering from vertigo over a year ago. My issues are primarily when looking up, though I have had the head rushes, a "giddy" feeling, especially when walking in stores with lots of aisles. I don't know if mine is gluten-related or not, as the symptoms have cropped back up again in the past couple of months, even after being on a strict gluten-free diet. My symptoms are mainly at my desk at work, where I sit in front of a computer all day. It is a horrible feeling. I went to the doc (a neurologist) and they said there's not a whole lot they can do about it. My MRI came back fine. My primary care physician thought my ears had too much earwax, so they flushed them, then that I had low blood pressure, so I was put on a high-salt diet which made me very ill. I went to a physical therapist who gave me special exercises to do. Things slowly got better, but now it's back. I hate it when people write things off as totally stress related, but I don't doubt that some of my symptoms may have been aggravated by a lot of stress.

fritzicurls Rookie

I too have recurrent vertigo. I think mine is related to and inner ear infection related to yeast infection. I am hoping to get them both cleared up. In the meantime I went to an ENT guy who showed me two exercises - one to take care of the veritgo episode immediately (it works!) and one for long term help. Vertigo is caused by little calcium balls in the inner ear that get in the wrong place and roll around and disturb the fine little hairs in the inner ear that help maintain balance. You can find these exercises on the internet (I did) - the one to take care of the immediate episode is called the Epply-Applington Movement and the one for the long term has the word Brandt in it - sorry I can't remember the name better than that. I found them cruising the vertigo sites. Actually the doctor did the Epply Applington movement on me in his office and charged me $175 for it. I found it on the internet for free - hahahaha. It only takes about three minutes and it works. Sometimes you have to do it twice. Ativan also takes the symptoms away but you have to be careful with it because it is so addictive. The second exercise helps keep episodes at bay. Good luck.

fritzicurls

PicturePerfect Explorer

Thank you so much for all of your help, everyone!!

Lets see. I have gone to a neurologist- she was the one who prescribed the EEG. I have an appointment this Thursday with her, so we will see what happens.

I will check all the labels on everything again, just to be sure. Plus, it is hard (as it is for most of you) to be gluten-free in a gluten household. My mom might go gluten-free too, though, because Celiac may be what is causing her MS.

I don't know what else it would be other than Celiac. None of my symptoms are described in any illnesses that I know of. I don't have vertigo - all the doctors ruled that out. I am pretty sure that it is my head that is the problem, if it isn't Celiac. Hmmm... :unsure:

Again, thanks for all of your help!

Lisa

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,357
    • Most Online (within 30 mins)
      7,748

    Tomo
    Newest Member
    Tomo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.