Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosed Again


amitaitos

Recommended Posts

amitaitos Rookie

Hi.

I'm gluten-free for almost 4 months now, and I was diagnosed again.

My first diagnose showed this:

CELIAC SCREEN (Includes TTG and DGP): 236.0 U/ml

TRANSGLUTAMINASE_IgA: 55.90 AU/ml

 

Now I got these results:

CELIAC SCREEN: 10.1 U/ml

TRANSGLUTAMINASE_IgA: 5.85 AU/ml

ENDOMYSIAL Ab: Pos. 1:10

 

I understand the first two are good now.

My question is about the third one, what does it mean?

 

Thanks.

 

Edit: Perhaps this should be in the Post diagnosis forum...

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Hi.

I'm gluten-free for almost 4 months now, and I was diagnosed again.

My first diagnose showed this:

CELIAC SCREEN (Includes TTG and DGP): 236.0 U/ml

TRANSGLUTAMINASE_IgA: 55.90 AU/ml

 

Now I got these results:

CELIAC SCREEN: 10.1 U/ml

TRANSGLUTAMINASE_IgA: 5.85 AU/ml

ENDOMYSIAL Ab: Pos. 1:10

 

I understand the first two are good now.

My question is about the third one, what does it mean?

 

Thanks.

 

Edit: Perhaps this should be in the Post diagnosis forum...

 

You were not diagnosed again...once you have Celiac Disease you have it for life -- that your tTG has dropped significantly in four months means you are on the right track.  It can take time for the tTG, EMA and DGP to all get back to normal.

 

Were there more results from the first panel?  EMA or DGP  

 

The second panel with positive EMA doesn't mean much without comparing previous results.  1:10 is a very low positive result...my guess is it was much higher four months ago and will completely normalize within your first year gluten-free.

amitaitos Rookie

You were not diagnosed again...once you have Celiac Disease you have it for life -- that your tTG has dropped significantly in four months means you are on the right track.  It can take time for the tTG, EMA and DGP to all get back to normal.

 

Were there more results from the first panel?  EMA or DGP  

 

The second panel with positive EMA doesn't mean much without comparing previous results.  1:10 is a very low positive result...my guess is it was much higher four months ago and will completely normalize within your first year gluten-free.

 

Thanks. I know that, I didn't mean I was checking if I still had Celiac, just to make sure I have normal results.

There weren't any other results on the first panel.

 

The problem is that, although the results are good, I don't feel so well; I have lower-stomach pains, acne, and bladder problems.

Any ideas?

Thanks

1desperateladysaved Proficient

Hang in there, and keep up the good work!

GottaSki Mentor

Hang in there, and keep up the good work!

 

Ditto :)

 

Don't mean to dismiss...sometimes it simply takes time...four months seems like a very long time, but in the realm of healing from the damage caused from Celiac Disease it really has been a short time.

 

Because your numbers are improving...it certainly looks like you are on the right track.

amitaitos Rookie

Thanks for the encouragement!

Hope it'll be ok...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    2. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,207
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.