Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Did The D And C Get Better For You?

answerseeker

Recommended Posts

answerseeker Enthusiast
answerseeker
Posted

I've been 7 weeks gluten free and really feeling good. Pain is gone and energy is returning.

However I still get some gurgling in the belly and my D and C is still present. I still haven't had a normal bm.

Normal?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flowerqueen Community Regular
flowerqueen
Posted

I've been 7 weeks gluten free and really feeling good. Pain is gone and energy is returning.

However I still get some gurgling in the belly and my D and C is still present. I still haven't had a normal bm.

Normal?

It's still very early days yet.  It can take a lot longer just to start to feel well and you are already much improved, so that is a good sign. 

kareng Grand Master
kareng
Posted

It could take months.  Not meant to be discouraging, just truthful.  Its more than just healing.  You made need to build up the good germs in your system.  You are eating differently, so you may be getting more fiber or less fiber.  As you heal, it can change.  This week you may need extra fiber but 2 months from now you might not or vice a versa. 

 

Its just a balancing act and not always easy to figure out.  Do the best you can and give it another month or 2.

answerseeker Enthusiast
answerseeker
Posted
  • Author

Ok. it alternates between loose stools(sorry that's gross) and constipation. So it makes it difficult to determine what I need! I'm taking my probiotics in the meantime.

I also think its all messed up because in 2012 I was on 4 different rounds of antibiotics in a year. Need to build back up the good bacteria I guess

kareng Grand Master
kareng
Posted

Are you eating dairy?  IF so, you might want to cut it out for a few weeks and see if that helps.  When you get everything running smoothly, you can try it again.

answerseeker Enthusiast
answerseeker
Posted
  • Author

Are you eating dairy?  IF so, you might want to cut it out for a few weeks and see if that helps.  When you get everything running smoothly, you can try it again.

yes, milk in my gluten free chex almost every morning and half n half in my coffee

 

is lactose free milk a good option or a nut milk better?

kareng Grand Master
kareng
Posted

yes, milk in my gluten free chex almost every morning and half n half in my coffee

 

is lactose free milk a good option or a nut milk better?

 

 

I'm just thinking about the lactose.  But that doesn't seem like much milk/lactose for the day.  Maybe that's not a problem.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

I'd dump the dairy for a few months and see if it helps. It took me a while to get my gut straightened out and stop the alternating

D and C I had for my entire life. What worked for me  was probiotics, no dairy, time. You'll get there, too. Hang in there.

kareng Grand Master
kareng
Posted

Open Original Shared Link

 

I love this stuff for my coffee and I can have dairy!

answerseeker Enthusiast
answerseeker
Posted
  • Author

okie dokie ;)

 

I'd dump the dairy for a few months and see if it helps. It took me a while to get my gut straightened out and stop the alternating

D and C I had for my entire life. What worked for me  was probiotics, no dairy, time. You'll get there, too. Hang in there.

IrishHeart Veteran
IrishHeart
Posted

Open Original Shared Link

 

I love this stuff for my coffee and I can have dairy!

 

 

me too--yummy stuff :) I still use it. I still use coconut milk, too.

 

But I do luvs me cheese! It was great to get that back.

answerseeker Enthusiast
answerseeker
Posted
  • Author

I have been eating a bit of ice cream in the evenings too. and we go out for frozen yogurt often. I'm guessing that's the problem.

 

I kind of knew it in the back of my mind because I get "the gurgles" after I eat ice cream, but I love my ice cream :wub:

 

with gluten my reaction is literally within 20min but it seems dairy is a ittle harder to figure out because it is not right away, I get the gurgling but the D comes usually the next day. I had it this morning before I ate anything, back to the food journal.......

kareng Grand Master
kareng
Posted

I have been eating a bit of ice cream in the evenings too. and we go out for frozen yogurt often. I'm guessing that's the problem.

 

I kind of knew it in the back of my mind because I get "the gurgles" after I eat ice cream, but I love my ice cream :wub:

 

with gluten my reaction is literally within 20min but it seems dairy is a ittle harder to figure out because it is not right away, I get the gurgling but the D comes usually the next day. I had it this morning before I ate anything, back to the food journal.......

 

So delicious makes some yummy ice cream, too!  One or two  flavors aren't gluten-free, so check the ingredients.  The cookie dough flavor is gluten-free cookie dough.

HumanDecency Contributor
HumanDecency
Posted

I'm with IrishHeart on the coconut milk. I really don't miss dairy all that much with coconut milk and daiya cheese. I'll go back to it someday but it's nothing I'm missing out on now.

 

Hope you feel better soon! 

bartfull Rising Star
bartfull
Posted

Going out for ice cream could be a problem. They use gluten cones at ice cream places and VERY often (I know 'cause I used to manage an ice cream shop), cone crumbs fall into the tubs. And with the soft serve, those cones very often touch the nozzle. And hands that touch the cones will often touch the inside of the cup they put your ice cream in. Or the spoons! Cone crumbs get everywhere and a lot of times there will be crumbs at the bottom of the container the plastic spoons are sitting in. One place I worked at was so busy in the summertime it looked like a tornado had passed through by the second hour - broken cones and ice cream drips everywhere.  I never worked so hard in my life!

 

So even after you try dairy again, I think it's best to eat your ice cream at home. :)

nvsmom Community Regular
nvsmom
Posted

C slowed for me at 6 months  but then it started to alternate between C and some real urgency. At one year gluten-free I am more normal than not now.

 

I think having my thyroid treated really made the difference for me but it's hard to be sure because I was diagnosed at the same time as my celiac.

 

Good luck.

dilettantesteph Collaborator
dilettantesteph
Posted

At some point you might want to consider the possibility that you might be sensitive to lower levels of gluten than average.  I agree with cutting out dairy first.  If things don't improve with that you might want to try some other things like looking for some gluten in your diet which you have missed, or cutting down on cc possibilities.  I needed to do that for resolution of symptoms.

answerseeker Enthusiast
answerseeker
Posted
  • Author

I think your right. I made pancakes for dinner tonight and made my family regular ones and myself gluten free ones. I may have cc'd. I have the gurgles as I'm typing this.

I aslo had a gluten reaction to gluten free chocolate chip cookies so I may be too sensitive still to eat processed gluten free mixes (the pancake mix was from a boxed mixed) I'm going to have to start tracking my eating again so I can get to the bottom of it.

The main symptoms of pain and fatigued are pretty much gone but this and the gurgling still linger

funkflex Rookie
funkflex
Posted

Constipation started clearing up after 8 months for me. Still dealing with fatigue and exercise intolerance 10 months after diagnosis/start of gluten-free diet.

LisaRae28 Newbie
LisaRae28
Posted

I'm still new to it all n figuring it out so its only been a few months for me but even the milk in my coffee, yogurt at lunch, ESPECIALLY the ice cream at night became apparent to me... I try to eat on a pretty regular schedule now which makes everything else more scheduled n routine and makes my life 10x easier stress wise but I alwaysalways eat a lactaid chewable with my ice cream and one with lunch or meals with a lotta cheese or milk (even my favorite cheese puffs will do it with how many I eat). Anyways If you're curious try some ice cream (that's safe, at home) without it (and really commit to it, tell your family that half gallon is all yours and its for health reasons lol) if it is a prob eat more with some lactaid and see if that helps... Just be aware if you're eating other things with lactose in it because it'll confuse you during your "experiment" they're right about cross contamination tho I had to get a new frying pan because I was pretty sure it mildly happened in the beginning making pancakes (odd, huh?) in the same skillet I had always used for French toast n grilled cheese before... My pot and pan are red now nothing else is and all my utensils are brightly colored and in a separate area... Separate sponge away from the others for hand washing things, etc... It was overwhelming but it's at least getting easier in that area (tho to be fair I think I must have been accidentally glutened somehow fairly recently *but* I'm fairly confident it was when I ate out and it didnt happen at home despite still having normal eating folk in the home)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease...
    2. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
    3. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t...
    4. Scott Adams
      - Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
      1

      About Celiac Remission

      This idea comes up often, but it’s important to separate theory from what’s actually supported by evidence. In celiac disease, the immune system does not “forget” gluten in a permanent or reliable way, even after long periods of avoidance, and the celiac genes do not turn off. While antibody levels (like tTG IgA) can normalize on a strict gluten-free diet an...
    5. Scott Adams
      - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      need help understanding testing result for Naked Nutrition Creatine please

      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748
    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Scott Adams
      need help understanding testing result for Naked Nutrition Creatine please

      By Scott Adams · Posted

      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold; if it’s <0.025 mcg per kilogram, it would be extremely low and well within GF limits. Without the denominator, the result is incomplete. It’s reasonable to follow up with the company and ask them to confirm the result in ppm using a validated method (like ELISA R5)—that’s the standard used to assess gluten safety.
    • Scott Adams
      Medications

      By Scott Adams · Posted

      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fact that it helped bloating suggests it may be affecting gut–nerve signaling, which makes sense in the context of SIBO, but that doesn’t mean the side effects should be ignored. You’re carrying a heavy load right now with ongoing skin, eye, and neurological uncertainty, and living in that kind of limbo is exhausting on its own. It’s understandable to feel overwhelmed and discouraged when systems and providers don’t meet you where you are—your experience is valid, and continuing to advocate for yourself, even when it’s hard, really does matter. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.