Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Did The D And C Get Better For You?

answerseeker

Recommended Posts

answerseeker Enthusiast
answerseeker
Posted

I've been 7 weeks gluten free and really feeling good. Pain is gone and energy is returning.

However I still get some gurgling in the belly and my D and C is still present. I still haven't had a normal bm.

Normal?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flowerqueen Community Regular
flowerqueen
Posted

I've been 7 weeks gluten free and really feeling good. Pain is gone and energy is returning.

However I still get some gurgling in the belly and my D and C is still present. I still haven't had a normal bm.

Normal?

It's still very early days yet.  It can take a lot longer just to start to feel well and you are already much improved, so that is a good sign. 

kareng Grand Master
kareng
Posted

It could take months.  Not meant to be discouraging, just truthful.  Its more than just healing.  You made need to build up the good germs in your system.  You are eating differently, so you may be getting more fiber or less fiber.  As you heal, it can change.  This week you may need extra fiber but 2 months from now you might not or vice a versa. 

 

Its just a balancing act and not always easy to figure out.  Do the best you can and give it another month or 2.

answerseeker Enthusiast
answerseeker
Posted
  • Author

Ok. it alternates between loose stools(sorry that's gross) and constipation. So it makes it difficult to determine what I need! I'm taking my probiotics in the meantime.

I also think its all messed up because in 2012 I was on 4 different rounds of antibiotics in a year. Need to build back up the good bacteria I guess

kareng Grand Master
kareng
Posted

Are you eating dairy?  IF so, you might want to cut it out for a few weeks and see if that helps.  When you get everything running smoothly, you can try it again.

answerseeker Enthusiast
answerseeker
Posted
  • Author

Are you eating dairy?  IF so, you might want to cut it out for a few weeks and see if that helps.  When you get everything running smoothly, you can try it again.

yes, milk in my gluten free chex almost every morning and half n half in my coffee

 

is lactose free milk a good option or a nut milk better?

kareng Grand Master
kareng
Posted

yes, milk in my gluten free chex almost every morning and half n half in my coffee

 

is lactose free milk a good option or a nut milk better?

 

 

I'm just thinking about the lactose.  But that doesn't seem like much milk/lactose for the day.  Maybe that's not a problem.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

I'd dump the dairy for a few months and see if it helps. It took me a while to get my gut straightened out and stop the alternating

D and C I had for my entire life. What worked for me  was probiotics, no dairy, time. You'll get there, too. Hang in there.

kareng Grand Master
kareng
Posted

Open Original Shared Link

 

I love this stuff for my coffee and I can have dairy!

answerseeker Enthusiast
answerseeker
Posted
  • Author

okie dokie ;)

 

I'd dump the dairy for a few months and see if it helps. It took me a while to get my gut straightened out and stop the alternating

D and C I had for my entire life. What worked for me  was probiotics, no dairy, time. You'll get there, too. Hang in there.

IrishHeart Veteran
IrishHeart
Posted

Open Original Shared Link

 

I love this stuff for my coffee and I can have dairy!

 

 

me too--yummy stuff :) I still use it. I still use coconut milk, too.

 

But I do luvs me cheese! It was great to get that back.

answerseeker Enthusiast
answerseeker
Posted
  • Author

I have been eating a bit of ice cream in the evenings too. and we go out for frozen yogurt often. I'm guessing that's the problem.

 

I kind of knew it in the back of my mind because I get "the gurgles" after I eat ice cream, but I love my ice cream :wub:

 

with gluten my reaction is literally within 20min but it seems dairy is a ittle harder to figure out because it is not right away, I get the gurgling but the D comes usually the next day. I had it this morning before I ate anything, back to the food journal.......

kareng Grand Master
kareng
Posted

I have been eating a bit of ice cream in the evenings too. and we go out for frozen yogurt often. I'm guessing that's the problem.

 

I kind of knew it in the back of my mind because I get "the gurgles" after I eat ice cream, but I love my ice cream :wub:

 

with gluten my reaction is literally within 20min but it seems dairy is a ittle harder to figure out because it is not right away, I get the gurgling but the D comes usually the next day. I had it this morning before I ate anything, back to the food journal.......

 

So delicious makes some yummy ice cream, too!  One or two  flavors aren't gluten-free, so check the ingredients.  The cookie dough flavor is gluten-free cookie dough.

HumanDecency Contributor
HumanDecency
Posted

I'm with IrishHeart on the coconut milk. I really don't miss dairy all that much with coconut milk and daiya cheese. I'll go back to it someday but it's nothing I'm missing out on now.

 

Hope you feel better soon! 

bartfull Rising Star
bartfull
Posted

Going out for ice cream could be a problem. They use gluten cones at ice cream places and VERY often (I know 'cause I used to manage an ice cream shop), cone crumbs fall into the tubs. And with the soft serve, those cones very often touch the nozzle. And hands that touch the cones will often touch the inside of the cup they put your ice cream in. Or the spoons! Cone crumbs get everywhere and a lot of times there will be crumbs at the bottom of the container the plastic spoons are sitting in. One place I worked at was so busy in the summertime it looked like a tornado had passed through by the second hour - broken cones and ice cream drips everywhere.  I never worked so hard in my life!

 

So even after you try dairy again, I think it's best to eat your ice cream at home. :)

nvsmom Community Regular
nvsmom
Posted

C slowed for me at 6 months  but then it started to alternate between C and some real urgency. At one year gluten-free I am more normal than not now.

 

I think having my thyroid treated really made the difference for me but it's hard to be sure because I was diagnosed at the same time as my celiac.

 

Good luck.

dilettantesteph Collaborator
dilettantesteph
Posted

At some point you might want to consider the possibility that you might be sensitive to lower levels of gluten than average.  I agree with cutting out dairy first.  If things don't improve with that you might want to try some other things like looking for some gluten in your diet which you have missed, or cutting down on cc possibilities.  I needed to do that for resolution of symptoms.

answerseeker Enthusiast
answerseeker
Posted
  • Author

I think your right. I made pancakes for dinner tonight and made my family regular ones and myself gluten free ones. I may have cc'd. I have the gurgles as I'm typing this.

I aslo had a gluten reaction to gluten free chocolate chip cookies so I may be too sensitive still to eat processed gluten free mixes (the pancake mix was from a boxed mixed) I'm going to have to start tracking my eating again so I can get to the bottom of it.

The main symptoms of pain and fatigued are pretty much gone but this and the gurgling still linger

funkflex Rookie
funkflex
Posted

Constipation started clearing up after 8 months for me. Still dealing with fatigue and exercise intolerance 10 months after diagnosis/start of gluten-free diet.

LisaRae28 Newbie
LisaRae28
Posted

I'm still new to it all n figuring it out so its only been a few months for me but even the milk in my coffee, yogurt at lunch, ESPECIALLY the ice cream at night became apparent to me... I try to eat on a pretty regular schedule now which makes everything else more scheduled n routine and makes my life 10x easier stress wise but I alwaysalways eat a lactaid chewable with my ice cream and one with lunch or meals with a lotta cheese or milk (even my favorite cheese puffs will do it with how many I eat). Anyways If you're curious try some ice cream (that's safe, at home) without it (and really commit to it, tell your family that half gallon is all yours and its for health reasons lol) if it is a prob eat more with some lactaid and see if that helps... Just be aware if you're eating other things with lactose in it because it'll confuse you during your "experiment" they're right about cross contamination tho I had to get a new frying pan because I was pretty sure it mildly happened in the beginning making pancakes (odd, huh?) in the same skillet I had always used for French toast n grilled cheese before... My pot and pan are red now nothing else is and all my utensils are brightly colored and in a separate area... Separate sponge away from the others for hand washing things, etc... It was overwhelming but it's at least getting easier in that area (tho to be fair I think I must have been accidentally glutened somehow fairly recently *but* I'm fairly confident it was when I ate out and it didnt happen at home despite still having normal eating folk in the home)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Son's legs shaking

      @lizzie42, You're being a good mom, seeking answers for your son. Cheers! Subclinical thiamine deficiency commonly occurs with anemia. An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal. Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps...
    2. Scott Adams
      - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
    3. knitty kitty
      - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease. Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease. Though having the genes for Celiac...
    4. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining...
    5. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748
    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Bob red mill gluten free oats

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      High TTG-IgG and Normal TTG-IgA

      By knitty kitty · Posted

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.