Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"are You Still On That Bogus Diet?"

eers03

By eers03
in Coping with Celiac Disease

Recommended Posts

eers03 Explorer
eers03
Posted

Someone asked me that at church the other day.  I'm Celiac.  I was so ticked at the comment that I had to "Bro" the guy up...  My response...  "Bro, I will be on this diet the rest of my life.  What I have, doesn't just go away.  My diet is not a 90 day script from a nurse practitioner at a doc in the box clinic."  

 

Anyway, I know I'm not the first to experience this.  It didn't ruin my day.  I don't feel like a victim.  It just blows my mind that even when you explain this to someone, you may as well speak a foreign language to them and it would be as effective.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

"My disease can't be cured, but there ARE cures for ignorance and rudeness. Why don't you look into them?" That would be my reply to this jerk. :angry:

eers03 Explorer
eers03
Posted
  • Author

"My disease can't be cured, but there ARE cures for ignorance and rudeness. Why don't you look into them?" That would be my reply to this jerk. :angry:

That is legit!!!!

notme Experienced
notme
Posted

Anyway, I know I'm not the first to experience this.  It didn't ruin my day.  I don't feel like a victim.  It just blows my mind that even when you explain this to someone, you may as well speak a foreign language to them and it would be as effective.

i know it - if their aunt sadie never had it, they don't even pay attention.  even if aunt sadie had it, she didn't follow the diet, so they think "aunt sadie was never that careful - once she felt better, she ate cake!"  and they think it's overkill.  right - it doesn't ruin your day.   lolz - 'bro him up' - i will pay attention next time someone 'bro's" ;)  i sing the for ever song:  "i will be on this diet for ever and ever and ever and ever (deep breath) and ever and ever and ever and ever and ever and ever and ever and ever (another deep breath) and ever and ever and ever and ever and ever <continues on.  you get my point.  they usually run away after that.  hey, barty, write me some tabs lolz  :D

bartfull Rising Star
bartfull
Posted

Verse:

 

G

I'll be on this diet forever and ever and

 

D

ever and ever and

 

G

ever and ever. I'll be on this diet forever and ever for

 

C

ever so

 

D

what's it to

 

G

you?

 

Chorus:

 

C

I have a disease that can

 

Em

never be cured but I

 

Am

handle it

 

D

well with my

 

G       G7

diet        it's

 

Am

none of your

 

B7

business so

 

Em

don't say a word

 

A7

I might slap your face if you

 

D       D7

try it

 

Repeat verse

 

 

OK, so it's not tabs, but if you use these chords I'll bet you come up with the same melody I did. :lol:

notme Experienced
notme
Posted

i *love* it :D  and better than tabs b/c i am still a beginner (ben nichols makes it look soooo easy...! )   <_<

bartfull Rising Star
bartfull
Posted

OK, that's TWO reasons you should come to the Black Hills. I'll give you a guitar lesson, and I'll take you to Lintz Brothers for a REALLY good gluten-free pizza. If you need a third reason, it's the scenery. Come on out!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


w8in4dave Community Regular
w8in4dave
Posted

LOL 

notme Experienced
notme
Posted

somewhere in the black mining hills out in dakota there lived a young boy named rocky raccoon - and one day, his woman ran off with another guy, hit young rocky in the eye, rocky didn't like that he said "i'm gonna get that boy"..........

 

lolz - i have a friend who lives in rc; she loves it - one of my 7m3 buddies :)  haven't seen her in ages; probably since the record release weekend in orlando......

 

YES!  i would *love* a really good pizza - loves me some 'za - my friend is a foodie, too, i guess she lives in the right place!

eers03 Explorer
eers03
Posted
  • Author

We have some real talent in this forum!  If its not clever wit, its music composition or sometimes both!  

nvsmom Community Regular
nvsmom
Posted

:D:lol: 

Celtic Queen Explorer
Celtic Queen
Posted

If it makes you feel any better, when I mentioned not eating gluten once, I had a nurse tell me, "Oh, I am so sick of hearing about that fad diet."  I had to respond, "I have Celiac Disease and this is not a fad diet to me."  You would think a nurse would understand a little better than the general public.

notme Experienced
notme
Posted

If it makes you feel any better, when I mentioned not eating gluten once, I had a nurse tell me, "Oh, I am so sick of hearing about that fad diet."  I had to respond, "I have Celiac Disease and this is not a fad diet to me."  You would think a nurse would understand a little better than the general public.

i had a nurse practitioner roll her eyes at me when i said my lip gloss had to be gluten free.  then she said "you don't EAT it, do you?"  i said "sometimes.   when i'm reallllll hungry..."  and stared her straight in the face.  she didn't say anything after that............... <_<

Pegleg84 Collaborator
Pegleg84
Posted

Bro, some people...

 

A few weeks ago I was at a new place that had a nice little menu, mostly gluten-free, though there was soy in stuff. I asked about it, saying I was gluten-free and couldn't eat soy. The server (and possibly owner, I think), did know what I could/couldn't have (and even said they could take out any soy for me), but asked: "Oh, are you on a cleanse?" Me: "ahhh, a life-long cleanse, I guess". she: "I bet you have great skin now". Me: "Um, I suppose it might have gotten better..."

The food was great, no problems with it at all, but MAN! I think that's the worst "this is totally a fad diet and great for your complexion" kind of reaction I've gotten from someone.
They did have good gluten-free beer on the menu, so I'll likely be back

 

for ever and ever and ever and ever and ever and ever amen.

Celtic Queen Explorer
Celtic Queen
Posted

After reading the song earlier in the post I keep getting Taylor Swift's We are Never Ever Getting Back Together running through my head but with new words:

 

We will forever, ever be on this diet... 

eers03 Explorer
eers03
Posted
  • Author

Bro, some people...

 

A few weeks ago I was at a new place that had a nice little menu, mostly gluten-free, though there was soy in stuff. I asked about it, saying I was gluten-free and couldn't eat soy. The server (and possibly owner, I think), did know what I could/couldn't have (and even said they could take out any soy for me), but asked: "Oh, are you on a cleanse?" Me: "ahhh, a life-long cleanse, I guess". she: "I bet you have great skin now". Me: "Um, I suppose it might have gotten better..."

The food was great, no problems with it at all, but MAN! I think that's the worst "this is totally a fad diet and great for your complexion" kind of reaction I've gotten from someone.

They did have good gluten-free beer on the menu, so I'll likely be back

 

for ever and ever and ever and ever and ever and ever amen.

You can't bro me if you don't me....    HA!  Just messing...  Save that one for a rainy day--you're welcome!  I have to say I've never received comments about my complexion because people must be so enamored by my shiny shaved head.  Hey, I'm with you, I can be quite forgiving when there is gluten free beer involved. With a couple gluten-free beverages I might even just make something up about my complexion...  Here goes...

 

"Bro, you should have seen my sunspots and wrinkles...  It all went away on this diet...  If Vitamin E and Aloe were to mate, it couldn't birth anything better for these pours than a gluten-free diet...  Legit, brah."

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop...
    2. tiffanygosci
      - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products...
    3. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache...
    4. trents
      - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women...
    5. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,976
    • Most Online (within 30 mins)
      7,748
    Mel R
    Newest Member
    Mel R
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.