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Gluten And Neurological Effects


Bnay14

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Bnay14 Newbie

I went to the hospital last week after collapsing, the whole room was spinning, my legs weak and could barely move them, and had a panic attack out of fear of what was going on. The dr without examining me explained that it was sinus pressure and vertigo as I always feel pressure in my head between my eyes whenever I have these spells. There are times that my muscles involuntarily twitch and I can hardly see straight. I have the worst brain fog that I almost feel outside of my body. This has always given me anxiety attacks because it frightens me. I went to a neurologist a year ago just said they were migraines. I thought I was having seizures so I got an EEG and an MRI. Came back ok. I have been under a lot of stress going through a divorce with a 2 yr old and 1 yr old doing everything on my own for over a yr. The next day after going to the hospital I had instant oatmeal the same thing I had before I went to the hospital. I experienced the exact same thing. I tried it again the following morning and had the same exact symptoms. I have always known that what I feel correlates with what I ate but I never really payed attention or ever even thought it could be some type of allergy or sensitivity to gluten. After researching gluten intolerance I feel a lot of the neurological symptoms and not as bad as the intestinal problems. This seems to be getting worse for me and I am curious to see if anyone has these same reactions to gluten. I am getting tested in a week so hopefully I can get some answers because I don't know how much longer I can take this.


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emilykay405 Rookie

Having those kinds of attacks are HORRIBLE. I have had something similar. For a few weeks after I would eat lunch (normally a bread filled meal) I would start to get brain fog and have this tingly/warm feeling in my arms and legs. Not long after my vision would change; everything would get really far away and blurry. The same far off feeling would happen with my hearing, too. The spell itself takes about 10 minutes or so and I never actually lose consciousness but I definitely feel a major energy drain for 2-3 hours afterward and still am not back to normal until the next day.

 

The first thing my doctor did was get me to a Cardiologist to check on my heart. Everything is fine except that he is changing around my meds. Apparently my internist (that I don't see anymore) put me on some heavy diuretic for my Edema and that's part of what's causing my rapid heart rate.

 

In the middle of the cardiologist visits and testing I finally got fed up with my stomach issues and my doc sent me to a GI doc. My endoscopy and colonoscopy are scheduled in about 2 weeks. In the mean time I've done a ton of research. I haven't found anything yet that connects fainting (or near fainting..) with Celiac BUT after thinking about it I can see how it could be connected. Here's why. Think about what happens to a diabetic when they have too much sugar...they can actually go into a coma if it's bad enough. I know for me I get a euphoric feeling and then plummet to the depths of what feels like Hell when I eat too much sugar. Wouldn't it stand to reason that if you're body can't cope with gluten and you give it a mega dose that it could cause some kind of fainting like spell? That makes total sense to me. Of course, I'm no doc...but there has to be a connection.

Jake'sMom87 Newbie

I have the same as what you both describe. I'm not diagnosed but am having the celiac tests on Wednesday. These attacks are horrible! It starts by me not being able to feel my legs or arms, blurry vision and I almost feel like I'm not breathing. It's different than a panic attack for sure. Mine happen when I'm active so I went to cardiologist and after testing they found no abnormalities. After I eat I have minimal discomfort in my stomach, but I get tingling and burning sensations in my legs and sometimes my face. I get super foggy brained after I eat and extremely tired. But I haven't been able to pinpoint a certain food. Lactose intolerance runs on my dad's side of the family and I have that to some extent. I also can't do eggs. The neurological symptoms are the worst I have been dealing with them for years. Update when you get your tests results please...it would be nice if we could connect these issues to something.

christianmom247 Explorer

Before I was diagnosed with celiac and went gluten free, I would get attacks, usually after eating, where I things would start spinning and I'd get really dizzy and start sweating.  The last time I actually passed out and my blood pressure went so low they couldn't even get a reading on it.  The doctors couldn't find any cause for it, but it hasn't happened a single time in the more than a year that I've been gluten free. 

Jake'sMom87 Newbie

Before I was diagnosed with celiac and went gluten free, I would get attacks, usually after eating, where I things would start spinning and I'd get really dizzy and start sweating.  The last time I actually passed out and my blood pressure went so low they couldn't even get a reading on it.  The doctors couldn't find any cause for it, but it hasn't happened a single time in the more than a year that I've been gluten free.

That's great to hear! I forgot about the sweating, that happens to me too. Glad you're feeling better!

Bnay14 Newbie

Thank you everyone for your replies. When I was pregnant it was severe I felt "high" nearly all the time. I would get sweaty and I would have to eat more and more sugar so I could stop the crazy feeling of about passing out. But then after I would eat I would feel "high" because of such bad brain fog. I know it has something with what I eat but the doctors thought it was my hormones creating bipolar episodes. It's been very frustrating. Another dr told me anxiety can create these feelings...rather it being psychological I know it is physiological bc this isn't normal for anyone to feel and it's so easy to be mislead by drs and it has made me feel really insecure bc of what some drs have said. I will update you all when I get tested. I have the understanding that you shouldn't cut gluten out until you get tested and there is a possibility for the test to be negative and if that's the case and you cut gluten out that's when you can see if it has an impact if you are just gluten intolerant right? One other thing is if you experience the same thing but whenever I eat food that is gluten free I crave sugar so bad. Every time I eat something I feel like I have to have a cookie or cake or whatever. I like to eat healthy and exercise I would say I am healthy for the most part that's why all of this is beyond aggravating. Thank you all for your input!!

Lock Newbie

Giving up sugar at the same time you give up gluten will probably do wonders for you. You are right to see a connection between the two. What got me thinking I might have a wheat problem was going "low carb" and cutting out most breads and sugars of any kind. I had been in that Hell emilykay describes. I was on a huge sugar/gluten roller coaster. It got real bad, to the point I would pick out one food, like sugar cookies, and eat nothing but that, six times a day, months at a time. I was drowning in a brain fog and deep depression and anxiety. I was dimly aware that I had an eating problem, but I was thinking it was a psychological "eating disorder".

 

I finally sunk to the lowest of lows, terrified I would get diabetes, thinking it was all a sugar issue, in desperation I bought a book on paleo eating and decided one Friday to delete all carbs from my diet. I consumed only meat and fats. On Sunday afternoon, about 3 o'clock, it was like a switch flipped. I will never forget that moment, I was lying in bed and it happened literally like a finger snap. I went from nearly suicidally depressed to HAPPY. I got up and walked around expecting it to go away but it never did. It was a peace and happiness like I don't remember ever feeling in my life. It was like, THIS is what normal people feel all the time?! Good Lord, I have lived my whole life fighting and struggling just to get through each day with a brain screaming at me that things are all wrong, and thinking that was normal, because it was all I had ever known. But THIS is what I am supposed to feel like? Life actually can feel good??  I was finally motivated to start researching my situation - I was on to something! - and eventually got tested for the Celiac gene, and when it came back that I have the strongest set of Celiac DNA possible, I really knew I was on to something and at this point I am sure it was giving up most gluten as well as sugar that turned me around.

 

But to answer your original post, yes, I have had neurological symptoms for decades. Tingling in hands and feet, neuropathies, RSD, migraines, severe brain fog with most tests coming back "normal" and doctors telling me nothing is wrong with me. I've had spinal taps, MRI's you name it. Hearing loss, ringing in the ears, in recent years yes, dizziness that I think is connected to inner ear neuro damage. Thank God that I have some good doctors who have believed in me all these years, who know I am not faking it, even though they could not pin a diagnosis on me. I don't blame them for not thinking of Celiac, their medical education is what is at fault, in the U.S. we didn't know Celiac was this common until 2003, long after I had been doing the rounds of doctors. I finally ended up with "fibromyalgia" as well as some "real" autoimmune disorders such as atopic dermatitis.

 

I have hearing loss and eye problems. These are actually "neurological" although they fall under the ENT and ophthalmology definitions of medicine. I am convinced that 57 years of eating gluten caused neurological damage in many of my body's systems. I had my first migraine around 16 years of age. My entire primary school experience was Hell. Brain fog and social anxiety, looking back  if I were a child today I probably would be diagnosed with Aspberger's or something. I was eating cereal for breakfast and sandwiches for lunch, and feeling like I was dying all day long. But I managed to succeed in school and graduate college despite everything. I got married and raised a family, dealing with sicknesses the whole of my adulthood. But never anything they could pin down. The most heartbreaking thing of all is that my poor kids were raised by a sick, lethargic, grumpy mom. And I know I have passed a Celiac gene to each of them. But at least now I have the information to give them, and they have a chance to avoid some of the permanent damage that I have because they are still young.

 

I only one week ago went completely 100% gluten free and we will have to wait to see if my rashes and neurological symptoms improve, but my brain fog, anxiety and depression is already 95% better. I can't say for sure if gluten if the cause of your problems, and I cannot even say for sure that it was the cause of mine. At this point I cannot go back and "experiment" to sort out whether it was the gluten, the sugar, or whatever else I cut out that saved me, because I cannot face going back to that dark horrible place. It is like the sun has risen on a life of 57 years of gloom and I cannot go back.

 

But yes I think it was a deadly combination of sugar and gluten. For me, both those substances are addictive. I have no doubt I was careening toward death, and still might be, if my immune system has malfunctioned enough to give me a cancer that isn't yet detected. But I am optimistic about my health for the first time in my life. Discovering Celiac is turning out to be the best thing that has ever happened to me!


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emilykay405 Rookie

Thank you everyone for your replies. When I was pregnant it was severe I felt "high" nearly all the time. I would get sweaty and I would have to eat more and more sugar so I could stop the crazy feeling of about passing out. But then after I would eat I would feel "high" because of such bad brain fog. I know it has something with what I eat but the doctors thought it was my hormones creating bipolar episodes. It's been very frustrating. Another dr told me anxiety can create these feelings...rather it being psychological I know it is physiological bc this isn't normal for anyone to feel and it's so easy to be mislead by drs and it has made me feel really insecure bc of what some drs have said. I will update you all when I get tested. I have the understanding that you shouldn't cut gluten out until you get tested and there is a possibility for the test to be negative and if that's the case and you cut gluten out that's when you can see if it has an impact if you are just gluten intolerant right? One other thing is if you experience the same thing but whenever I eat food that is gluten free I crave sugar so bad. Every time I eat something I feel like I have to have a cookie or cake or whatever. I like to eat healthy and exercise I would say I am healthy for the most part that's why all of this is beyond aggravating. Thank you all for your input!!

 

Yes, you do need to stay on gluten until you get tested. I crave sugar all the time, too. I eat candy like a 6 year old set free in a candy store would. You may want to have your A1C checked for blood sugar issues. It's entirely possible you are hypoglycemic (essentially your body overreacts to sugar and produces too much insulin). I was that way for years but I could never stop the sugar cycle. The only time I did was in 9th-10th grade and I noticed a HUGE difference especially sweating. I can remember in middle school thinking, "If I ever stop eating this stuff I'll have the opposite of diabetes." Turns out, I was right. Fast forward 15 years and I'm pre-diabetic. I have a feeling that once I get off gluten and sugar things will even out.  

Lock Newbie

Yes, you do need to stay on gluten until you get tested. I crave sugar all the time, too. I eat candy like a 6 year old set free in a candy store would. You may want to have your A1C checked for blood sugar issues. It's entirely possible you are hypoglycemic (essentially your body overreacts to sugar and produces too much insulin). I was that way for years but I could never stop the sugar cycle. The only time I did was in 9th-10th grade and I noticed a HUGE difference especially sweating. I can remember in middle school thinking, "If I ever stop eating this stuff I'll have the opposite of diabetes." Turns out, I was right. Fast forward 15 years and I'm pre-diabetic. I have a feeling that once I get off gluten and sugar things will even out.  

I was so all about the birthday cake my whole life. You could have not given me any presents at all, as long as I had that cake, it was what I looked forward to all year. I'd eat all the disgusting icing flowers. I'd go to people's weddings JUST to have a piece of the cake. You are right on about the pre-diabetes, I've got it also, the A1C was creeping up. Part of what scared me into finally doing something. My dad had his leg cut off partly due to diabetes, partly to smoking cigarettes. Yes, getting off that sugar roller coaster is probably the 2nd most important thing you can do for your health, if not smoking is first. Quitting gluten might be third. Or first, if you look at it another way. What about all those 90 and 100 year olds who smoked their whole lives and never got cancer? Could it be they don't have Celiac and hence have a healthy cancer-fighting immune system? Not saying it's ok to smoke if you don't have celiac, just sayin....

IrishHeart Veteran

The link between celiac, gluten and neurological symptoms is well established (and stress can certainly exacerbate and even trigger celiac in pre-disposed individuals.  

 

I had a dozen or so nuero symptoms (in my list of about 65 symptoms) because of long, unDxed celiac and I can attest to all of the sensations, pain, parasthesia, and the ataxia,  crippling vertigo, muscle weakness, etc. etc.  as well as the uncharacteristic anxiety, panic and depressive thinking

that also can result from malabsorption.

 

And frankly, they can check your heart and your brain until the cows the come home, then declare you "fine" (or worse, say "it's all in your head" and send you to a psychiatrist) but the truth is, if your symptoms are the result of celiac, you are "not fine" and you are not making things up and you are certainly not going to get well by them symptom-treating you with drugs.

 

This is often the case--we are told it is psychological when it is physiological and organic in nature.

Vitamin deficiencies,  for example, can create a whole host of symptoms.. Low blood sugar, thyroiditis,

heart palpitations, neurological symptoms, muscular atrophy and even type II diabetes can resolve in time  off gluten (mine did) 

 

The symptoms you all describe are very real.

 

There are over 300 symptoms associated with gluten intolerance/celiac.

 

Here:

 

Open Original Shared Link

and for Pub Med articles on Neurological symptoms, look here:

 

Open Original Shared Link

 

 

If any of you are waiting for a celiac panel, DO NOT STOP eating gluten until your testing is complete, otherwise your test results may be invalid.

Best wishes to you all--and do not give up your search to find answers and get well. I've been in your shoes.

LisaRae28 Newbie

I've also had quite a few inexplicable neurological issues for quite some time now. Almost 20 years ago I had a team of docs including some great neurologists looking for reasons behind my migraines and other various symptoms as a kid. Since diagnosed and going gluten free most of these things have vastly improved but I still struggle with a lot of those things which I'm starting to sort out with the docs now. I also have an iron deficiency issue which seems to be very much related to those issues when my iron count is low. If your body is able to absorb it and your stomach can handle it i would at the very least suggest attempting iron supplements to see if it helps any... It may at least make it more bearable until you can get the testing done because the gluten most definitely does all sorts of those things also... Good luck n keep us updated :)

  • 3 months later...
Jonvon Newbie

Giving up sugar at the same time you give up gluten will probably do wonders for you. You are right to see a connection between the two. What got me thinking I might have a wheat problem was going "low carb" and cutting out most breads and sugars of any kind. I had been in that Hell emilykay describes. I was on a huge sugar/gluten roller coaster. It got real bad, to the point I would pick out one food, like sugar cookies, and eat nothing but that, six times a day, months at a time. I was drowning in a brain fog and deep depression and anxiety. I was dimly aware that I had an eating problem, but I was thinking it was a psychological "eating disorder".

 

I finally sunk to the lowest of lows, terrified I would get diabetes, thinking it was all a sugar issue, in desperation I bought a book on paleo eating and decided one Friday to delete all carbs from my diet. I consumed only meat and fats. On Sunday afternoon, about 3 o'clock, it was like a switch flipped. I will never forget that moment, I was lying in bed and it happened literally like a finger snap. I went from nearly suicidally depressed to HAPPY. I got up and walked around expecting it to go away but it never did. It was a peace and happiness like I don't remember ever feeling in my life. It was like, THIS is what normal people feel all the time?! Good Lord, I have lived my whole life fighting and struggling just to get through each day with a brain screaming at me that things are all wrong, and thinking that was normal, because it was all I had ever known. But THIS is what I am supposed to feel like? Life actually can feel good??  I was finally motivated to start researching my situation - I was on to something! - and eventually got tested for the Celiac gene, and when it came back that I have the strongest set of Celiac DNA possible, I really knew I was on to something and at this point I am sure it was giving up most gluten as well as sugar that turned me around.

 

But to answer your original post, yes, I have had neurological symptoms for decades. Tingling in hands and feet, neuropathies, RSD, migraines, severe brain fog with most tests coming back "normal" and doctors telling me nothing is wrong with me. I've had spinal taps, MRI's you name it. Hearing loss, ringing in the ears, in recent years yes, dizziness that I think is connected to inner ear neuro damage. Thank God that I have some good doctors who have believed in me all these years, who know I am not faking it, even though they could not pin a diagnosis on me. I don't blame them for not thinking of Celiac, their medical education is what is at fault, in the U.S. we didn't know Celiac was this common until 2003, long after I had been doing the rounds of doctors. I finally ended up with "fibromyalgia" as well as some "real" autoimmune disorders such as atopic dermatitis.

 

I have hearing loss and eye problems. These are actually "neurological" although they fall under the ENT and ophthalmology definitions of medicine. I am convinced that 57 years of eating gluten caused neurological damage in many of my body's systems. I had my first migraine around 16 years of age. My entire primary school experience was Hell. Brain fog and social anxiety, looking back  if I were a child today I probably would be diagnosed with Aspberger's or something. I was eating cereal for breakfast and sandwiches for lunch, and feeling like I was dying all day long. But I managed to succeed in school and graduate college despite everything. I got married and raised a family, dealing with sicknesses the whole of my adulthood. But never anything they could pin down. The most heartbreaking thing of all is that my poor kids were raised by a sick, lethargic, grumpy mom. And I know I have passed a Celiac gene to each of them. But at least now I have the information to give them, and they have a chance to avoid some of the permanent damage that I have because they are still young.

 

I only one week ago went completely 100% gluten free and we will have to wait to see if my rashes and neurological symptoms improve, but my brain fog, anxiety and depression is already 95% better. I can't say for sure if gluten if the cause of your problems, and I cannot even say for sure that it was the cause of mine. At this point I cannot go back and "experiment" to sort out whether it was the gluten, the sugar, or whatever else I cut out that saved me, because I cannot face going back to that dark horrible place. It is like the sun has risen on a life of 57 years of gloom and I cannot go back.

 

But yes I think it was a deadly combination of sugar and gluten. For me, both those substances are addictive. I have no doubt I was careening toward death, and still might be, if my immune system has malfunctioned enough to give me a cancer that isn't yet detected. But I am optimistic about my health for the first time in my life. Discovering Celiac is turning out to be the best thing that has ever happened to me!

Has the dizziness gotten better after more time. I'm constantly dizzy and only Cf for about 2 weeks. I really hope cutting out gluten gets ride of my dizziness.

  • 2 weeks later...
Rissa019 Newbie

Having those kinds of attacks are HORRIBLE. I have had something similar. For a few weeks after I would eat lunch (normally a bread filled meal) I would start to get brain fog and have this tingly/warm feeling in my arms and legs. Not long after my vision would change; everything would get really far away and blurry. The same far off feeling would happen with my hearing, too. The spell itself takes about 10 minutes or so and I never actually lose consciousness but I definitely feel a major energy drain for 2-3 hours afterward and still am not back to normal until the next day.

 

The first thing my doctor did was get me to a Cardiologist to check on my heart. Everything is fine except that he is changing around my meds. Apparently my internist (that I don't see anymore) put me on some heavy diuretic for my Edema and that's part of what's causing my rapid heart rate.

 

In the middle of the cardiologist visits and testing I finally got fed up with my stomach issues and my doc sent me to a GI doc. My endoscopy and colonoscopy are scheduled in about 2 weeks. In the mean time I've done a ton of research. I haven't found anything yet that connects fainting (or near fainting..) with Celiac BUT after thinking about it I can see how it could be connected. Here's why. Think about what happens to a diabetic when they have too much sugar...they can actually go into a coma if it's bad enough. I know for me I get a euphoric feeling and then plummet to the depths of what feels like Hell when I eat too much sugar. Wouldn't it stand to reason that if you're body can't cope with gluten and you give it a mega dose that it could cause some kind of fainting like spell? That makes total sense to me. Of course, I'm no doc...but there has to be a connection.

I am so relieved to hear that someone has these same kinds of attacks. I thought I was the only one! Oh, they are horrible. An accidental slip of gluten one evening could cause me to wake up to an attack, feel so energy-deprived that I can barely get up off the couch, barely dress myself, and lead to two or more additional attacks throughout the day. I will not lose consciousness either, but get very light headed, and have for a couple of seconds blacked out before. I have had three attacks today because of a "Gluten free" burger I ate yesterday.. The bacon on it was not gluten free, however. Grrrr <_<

1desperateladysaved Proficient

I had trouble with dizziness after going gluten free.  It started 4 days after I went gluten free and the room seemed to spin.  I now feel that cross contamination trouble began at that time for me.  It did get better, but it was a complicated puzzle for me. The scent of  Peppermint essential oil seemed to help the symptoms of my dizziness.  One would want to get at the root of it.

 

Other major symptoms I had included extreme fatigue, foggy brain, and bloating.  I had at least 30 years of bloating symptoms when I got mistaken for pregnant several times.  I am now 20 months gluten free and am having energy to do things with.  :)  Hang in there, and be at work searching for roots and answers.

 

D

  • 1 month later...
hunter.joseph Newbie

I went to the hospital last week after collapsing, the whole room was spinning, my legs weak and could barely move them, and had a panic attack out of fear of what was going on. The dr without examining me explained that it was sinus pressure and vertigo as I always feel pressure in my head between my eyes whenever I have these spells. There are times that my muscles involuntarily twitch and I can hardly see straight. I have the worst brain fog that I almost feel outside of my body. This has always given me anxiety attacks because it frightens me. I went to a neurologist a year ago just said they were migraines. I thought I was having seizures so I got an EEG and an MRI. Came back ok. I have been under a lot of stress going through a divorce with a 2 yr old and 1 yr old doing everything on my own for over a yr. The next day after going to the hospital I had instant oatmeal the same thing I had before I went to the hospital. I experienced the exact same thing. I tried it again the following morning and had the same exact symptoms. I have always known that what I feel correlates with what I ate but I never really payed attention or ever even thought it could be some type of allergy or sensitivity to gluten. After researching gluten intolerance I feel a lot of the neurological symptoms and not as bad as the intestinal problems. This seems to be getting worse for me and I am curious to see if anyone has these same reactions to gluten. I am getting tested in a week so hopefully I can get some answers because I don't know how much longer I can take this.

I have had the exact same thing.  For the past 2 years I have been having vertigo, headaches, and I had 2 seizures and was put on anticonvulsants.  I had an eeg and an MRI both came back normal.  About a month ago I was tested for gluten intolerance because of my stomach aches, and it came back positive for gluten sensitivity.  I have been on a gluten free diet for about a month now and I have been feeling so much better.  I wish good luck for you and hopefully your gluten test will shed some light on what these symptoms your having are.

sharissa Newbie

Having those kinds of attacks are HORRIBLE. I have had something similar. For a few weeks after I would eat lunch (normally a bread filled meal) I would start to get brain fog and have this tingly/warm feeling in my arms and legs. Not long after my vision would change; everything would get really far away and blurry. The same far off feeling would happen with my hearing, too. The spell itself takes about 10 minutes or so and I never actually lose consciousness but I definitely feel a major energy drain for 2-3 hours afterward and still am not back to normal until the next day.

 

The first thing my doctor did was get me to a Cardiologist to check on my heart. Everything is fine except that he is changing around my meds. Apparently my internist (that I don't see anymore) put me on some heavy diuretic for my Edema and that's part of what's causing my rapid heart rate.

 

In the middle of the cardiologist visits and testing I finally got fed up with my stomach issues and my doc sent me to a GI doc. My endoscopy and colonoscopy are scheduled in about 2 weeks. In the mean time I've done a ton of research. I haven't found anything yet that connects fainting (or near fainting..) with Celiac BUT after thinking about it I can see how it could be connected. Here's why. Think about what happens to a diabetic when they have too much sugar...they can actually go into a coma if it's bad enough. I know for me I get a euphoric feeling and then plummet to the depths of what feels like Hell when I eat too much sugar. Wouldn't it stand to reason that if you're body can't cope with gluten and you give it a mega dose that it could cause some kind of fainting like spell? That makes total sense to me. Of course, I'm no doc...but there has to be a connection.

After doing a lot of research and trying a LOT of medicines,  I have found what you are explaining to be very closely related to having Celiac disease. I experienced a lot of what you are saying times a million (not to say that my case was worse) I was diagnosed with multiple sclerosis from one doctor, having epilepsy from a couple neurologists and having a heart defect... BUT never any proof. One well known specialist went as far as to tell me that it would be decades before there would be technology to prove my disease. Long story short, I had all kinds of neurological symptoms such as seizures, migraines, speech problems and neuropathy. It went as far as causing psychosis, depression, anxiety and etc. After one dr mentioning celiac I did the research and found that it could cause these things. When eating gluten you do not absorb any nutrients, hence your brain is not nourished with nutrients it needs to focus. After going on the gluten-free/ CELIAC diet, I felt completely different within a week. I even gained energy I didn't know existed. NO MIGRAINES, no seizures, and best of all NO MEDICINES anymore! It is crazy to think that digestion could cause all these things but the good thing is that there is so much available to make it easier to cope with...

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    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
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