Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Haven't Been Intimate In Months, But Funny...

lorka150

By lorka150
in Coping with Celiac Disease

Recommended Posts

lorka150 Collaborator
lorka150
Posted

Gr......

Okay. I am rail thin from this celiac disease. I am 5'7.5'' and weigh about 104 lbs. Leaner than lean.

But I'm evidently pregnant, you see.

I drink 148932849328 gallons of water/herbal tea/sodium free club soda/sometimes a diet pop/a coffee or two daily.

Because I AM SO THIRSTY. Does anyone else have this? Just got tested for diabetes and it came back fine. In fact, I am right in the 'perfect' blood sugar range. I can't stop this thirst. It's almost to the point where it's taken over my life because of the constant and thirst, and thus, urination, and thus, no sleep because I am waking up every 1/2 hour.

Anyone?

Jeez... I've been gluten free for about 2 months.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted

I drink non stop. I drink 4 litters of water, add diet soda, add fruit juice, add coffee, etc on any given day.

But Im fiarly sure IM not preg :lol::lol:

lorka150 Collaborator
lorka150
Posted
  • Author

do you have celiac?

VydorScope Proficient
VydorScope
Posted
do you have celiac?

<{POST_SNAPBACK}>

Wont know till my test in November.. but I think its liklky. My toddler son DOES and he drinnks tons and tons and tons to. More then most adutls, but I dunno if thats normal for a toddler or not.

Carriefaith Enthusiast
Carriefaith
Posted
I drink 148932849328 gallons of water/herbal tea/sodium free club soda/sometimes a diet pop/a coffee or two daily.

I drink about 5743434 gallons/day ;)

Actually, I don't really drink fluids a whole lot, but when I get thirsty, I can't stop and then I start drinking like crazy!

lorka150 Collaborator
lorka150
Posted
  • Author

I just can't stop. It's literally impeding on my life.

SUCKS!

I'm going through one of those "I feel sorry for myself that I have this stupid disease" phases.

aikiducky Apprentice
aikiducky
Posted

You know, I hadn't really thought about it, but when I get glutened I do drink more, and of course, I look pregnant, too. :rolleyes: Then usually one day a week or two or three later I go to the bathroom a lot and the bloating goes down... I guess it could be some kind of a protective reaction of the body to collect a lot of fluid...

I'm not bloated from my last glutening anymore today - now I just have these loose folds of skin on my tummy, blech. :angry:

Pauliina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aaascr Apprentice
aaascr
Posted

"I'm not bloated from my last glutening anymore today - now I just have these loose folds of skin on my tummy, blech."

Me too! I work out 3-4 days at the gym, and play soccer 3-4 times a week.

the rest of me is toned up and perhaps a bit underweight - never had a stomach before - what gives???

aikiducky Apprentice
aikiducky
Posted

You know when you have a little cut on a finger that gets inflamed and red and a bit swollen? That's what I imagine my intestines to be like. And when the swelling goes does, all the skin that's been stretched out by it is going to hang loose. No amount of working out is going to help with that I'm afraid. :(

Pauliina

at least, that's my explanation... maybe I'm just fat, lol

Mo92109 Apprentice
Mo92109
Posted

OHMYGOSH, I have this too. I am pretty thin everywhere except for my belly, I totally look pregnant. I am not thristy "all" the time, though, at least that I have noticed. I have been gluten-free for over 6 months.... I think, I'm no good at it.

Anyway, my Dr. (who knows nothing about celiac disease) ordered two sonograms (in two weeks) to try and find out why so fat ONLY in my stomach. I used to think it was a beer gut, but it way wose since going gluten-free and giving up beer.

What could cause this?

fisharefriendsnotfood Apprentice
fisharefriendsnotfood
Posted
OHMYGOSH, I have this too. I am pretty thin everywhere except for my belly, I totally look pregnant. I am not thristy "all" the time, though, at least that I have noticed. I have been gluten-free for over 6 months.... I think, I'm no good at it.

Anyway, my Dr. (who knows nothing about celiac disease) ordered two sonograms (in two weeks) to try and find out why so fat ONLY in my stomach. I used to think it was a beer gut, but it way wose since going gluten-free and giving up beer.

What could cause this?

<{POST_SNAPBACK}>

You probably aren't totally gluten-free. Right before I was diagnosed with celiac disease, I was skinny everywhere except my belly too. Make sure you're totally gluten-free.

Jackie

paw Apprentice
paw
Posted

I look pregnant too. :( Last winter I wore my son's old blue jeans size 30 waist and they were loose. In July the "big bloat" kicked in and won't go away. Now my belly measures 37 inches on a big day 35 inches on other days. There is no way to find pants to fit such a swollen gut. I have considered maternity pants, but I have not found any that look normal. My weight is about 5 pounds more, but I had lost a lot and that little gain is ok for me.

About the thirst: I drink a lot of plain tea either hot or iced. I also drink Coke, not the diet kind. If I drink some things they actually make me more thirsty. If you have any artificial sweeteners in your drinks, try cutting that out and see if it helps.

I REALLY want some pants. :blink:

Mo92109 Apprentice
Mo92109
Posted

I hear you about pants!!! I wear a size 4-6... unless I need to zip up and button. Thankfully the "hot" styles are billowy and loose right now. I live for elastic waist, flowy skirts.

I THINK I am gluten-free, but now I'm not sure. :unsure:

anerissara Enthusiast
anerissara
Posted

I feel your pain....my gut is like a balloon, sometimes I look pg and other times I look fine. It's driving me nuts! Some days by the end of the day I just want to take my pants off NOW because the waste is so tight. The next day, the same pants are loose on me! AAaaaaahhhh! It doesn't help that when I get any amount of gluten I end up retaining so much water you can hear me slosh as I walk by.

I have the loose skin problem, too...I was blaming that on the fact that I have 3 kids, it seems like the skin on my belly just gave up the fight after baby #3 but in retrospect baby #3 also coinsided with the celiac problems getting bad, so maybe it was a combination of both.

If anyone finds a magic cure for inflate-o-gut, let me know 'cause I'll be first in line!

paw Apprentice
paw
Posted
I feel your pain....my gut is like a balloon, sometimes I look pg and other times I look fine.  It's driving me nuts!  Some days by the end of the day I just want to take my pants off NOW because the waste is so tight.  The next day, the same pants are loose on me!  AAaaaaahhhh!  . . .    If anyone finds a magic cure for inflate-o-gut, let me know 'cause I'll be first in line!

<{POST_SNAPBACK}>

The balloon thing that went up and down was me before July. Sometime in July it "pouffed" and stayed that way. That was when the family doctor told me she thought it was more than a dairy problem that was making me so big in the belly.

I bought a pair of jeans that are size 16 1/2 for girls plus size. I am 5' 4" so even the length is ok. These have room for my big belly and they fit ok in the butt and legs -- how odd to say "My pants fit today". I hope to fix the belly thing and not buy more "fat pants".

jrom987 Apprentice
jrom987
Posted
The balloon thing that went up and down was me before July.  Sometime in July it "pouffed" and stayed that way.  That was when the family doctor told me she thought it was more than a dairy problem that was making me so big in the belly.

I bought a pair of jeans that are size 16 1/2 for girls plus size.  I am 5' 4" so even the length is ok.  These have room for my big belly and they fit ok in the butt and legs -- how odd to say "My pants fit today".  I hope to fix the belly thing and not buy more "fat pants".

<{POST_SNAPBACK}>

I have been gluten-free for two weeks now. I have the tummy bloating too but I am not skinny. Are most Celiacs thin? It seems that way from what I have read. My biopsy was bad and my blood work too. I am very short and I have the traditional "Italian mamma" body. I can relate to the pants problems and I am very thankful for elastic waists! My waist is several inches larger than my hips and finding comfortable pants is nearly impossible.

paw Apprentice
paw
Posted
Are most Celiacs thin?

<{POST_SNAPBACK}>

I am still new at this whole thing, but I have been reading posts here for weeks. Hopefully I soaked up a little information along the way. Many Celiacs are thin, but some are heavy. I read (I can't remember the source, sorry) that it depends on which part of the small intestine is most damaged what symptoms you will have. If the damage is at the beginning, you will have diarrhea and will not absorb your food nutrition. If the damage is at the other end of the small intestine, you will be absorbing more of your food, calories and less likely to have the loose stool.

This makes sense to me, but please ask your doctor if you have questions. Some doctors don't know all that much about this problem though and other members here who have been dealing with this longer might have more advice.

On pants, if you buy elastic waist, you might even need to remove the elastic that comes with them and replace it with longer elastic or drawstrings that you can adjust as you belly changes. I hate it when in 5 minutes I get 3 sizes larger! I know that is bloat and it will hopefully go away, but I don't like that. :o

paw Apprentice
paw
Posted

jrom987: I forgot to say that you might need more time before your system calms down and your bloating stops. Each person responds at their own rate, depending on how long they were having problems and the amount of damage.

Also many people have problems with diary or other foods and they may need to remove those too. :blink:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,176
    • Most Online (within 30 mins)
      7,748
    Ceekay
    Newest Member
    Ceekay
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jane878
      My mo,ther married a bread making when I was 4

      By Jane878 · Posted

      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Blood results

      By trents · Posted

      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
    • Sheila mellors
      Is Toblerone Gluten-Free?

      By Sheila mellors · Posted

      I asked about the new fruit and nut one and the Dietician said yes I could eat it safely. Hooe this helps
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
×
×
  • Create New...