Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grain Free Diet?


w8in4dave

Recommended Posts

w8in4dave Community Regular

I was reading this site and it was saying how Grain causes inflammation , Grain and sugar I guess , and some Celiacs go on a Gluten free, Grain free diet. Anyone here grain free? I am actually thinking of going Grain Free. It's kinda towards the bottom half of the article. 

 

Here is the link:

 

https://www.celiac.com/articles/22275/1/Contamination-of-Naturally-Gluten-Free-Grains/Page1.html

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BelleVie Enthusiast

I'm considering it too! But I love the full feeling that I get from eating grains. I feel like eating veggies never makes me feel as satisfied as a bowl of veggies AND rice. 

1desperateladysaved Proficient

I am grain free.  Lately I am using nut flours which help give me a full feeling.  I make muffins, pancakes, or wraps with them.  I make wild rice in place of rice.  I guess it isn't a grain.

 

I had withdrawal symptoms when I stopped eating rice, and buckwheat (which isn't a grain, but is used like one).  Recently I tried to take a supplement which contained rice powder, I noticed some swelling.  After I quit taking it, I had yeast withdrawal symptoms.  Yeast may be part of my struggle.  My doctors are hoping that in time my body may settle down a little bit and not be so irritable.

 

One more idea for the full feeling.  Have some butter, oil, or coconut oil with each meal.  Just shy of a tablespoon should help your tummy feel full, up your energy, and keep you fuller longer.  If you worried about that making you fat, I am not and I have been doing it for years.  I don't know how it will go as I am absorbing more.

 

I don't eat sugar either.  I have small quantities of honey.  I have had to up the carbs since avoiding grain.  I am eating a  more fruit and adding a tbsp. of honey to my smoothies.

 

I am feeling more and more satisfied.  Of coarse I can't tell for sure what all has helped as there are so many factors involved.

 

D

w8in4dave Community Regular

Yes !! Alot of factors ... I just bought a 25 lb bag of Rice!! Pfftttt Maby I can give it to friends. I am not 100% sure I am going to do this. I may quit eating potatoes 1st. I have that sore in my mouth , and it was almost gone. I ate some fried potatoes at lunch and low and behold it started getting sore again. So maby it is the legumes ???? I have more research to do. before I decide... What to do what to do...

I am never to worried about a full feeling, meat seems to give me a full feeling so I really wonder if I can get away with meat veggies and fruits ... 

  • 2 weeks later...
nvsmom Community Regular

I consider myself "grain-lite", I have a small amount of grains once or twice a week (ex. 1/4 rice, coconut muffin). I do feel better eating that way, but I seem to have issues with starches so that could be it for me.

 

BTW, I get sores in my mouth too. They seem to appear when my immune system is acting up, I'm over tired or stressed, or (occasionally) when I'm fighting off a virus. Funnily enough, those are the times when I crave starches/comfort foods... could it be coincidence for you?

w8in4dave Community Regular

Coconut isn't considered a grain. Is it aggravating ? Or you talking a rice coconut Muffin? My mouth sores have since cleared. It is Lichen Planus. I can feel the lil lines they talk about. But they are even almost gone. I am assuming it is because of lack of vitamins of some sort. I don't know. My gut must be healing if my sore is going away!! No to get this yeast stuff taken care of. toes nails falling off , now my finger nails are getting weird ridges in them ... Ughhh sucks to have all this but at least it can be taken care of! 

1desperateladysaved Proficient

Coconut isn't considered a grain. Is it aggravating ? Or you talking a rice coconut Muffin? My mouth sores have since cleared. It is Lichen Planus. I can feel the lil lines they talk about. But they are even almost gone. I am assuming it is because of lack of vitamins of some sort. I don't know. My gut must be healing if my sore is going away!! No to get this yeast stuff taken care of. toes nails falling off , now my finger nails are getting weird ridges in them ... Ughhh sucks to have all this but at least it can be taken care of! 

Anyone know what the finger ridges show a deficiency of?  I don't.

 

My nutrient levels went down somewhat before they went up.  Hang in there!  Progress is great!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Vertical nail ridges are fairly common and typically of no concern.  Horizontal nail ridges can indicate an underlying disease.  Horizontal white lines can indicate a nutrient deficiency or problems with the liver. 

 

Colleen

Salax Contributor

I am grain free on and off and I have to say that the inflammation I get in my intestines goes away being grain free. I love cooking with coconut, almond and tapioca flours. I use it for "breading" as well like on chicken which I cook in evoo. I highly recommend it if you have chronic inflammation. When I am not grain free I usually eat rice products. And some of those processed gluten-free foods just irritate the heck out of my insides.

 

If you get hungry because your not eating grains, or lack that full feeling, you can eat more protein OR try some protein shakes with fruit. Fruits are considered a carb in the diet world and yes they have sugar, but sugar occurring in nature I think is fine for us.

  • 2 weeks later...
cap6 Enthusiast

We are turning towards the grain free life, just learnings more about it.  All i can say is that a month into it and we both feel better.  Been using coconut oil and mostly all organic meats & veggies.  I found a great book full of paleo recipes and it's been fun.  This morning we had pumpkin pancakes with eggs.  Good stuff and no grains!

w8in4dave Community Regular

Thanks for all the responses :) it sure feels good to have people just like me to talk to!! Now since I have posted this I have also figured out I am having a problem with corn. I posted a thread about corn. Anyhoo so I am going to try and go Corn free and see what happens. I eat fresh meats and veggies so it shouldn't be too much of a problem for me. Someone posted a link on my corn thread I have got to read up on. But I am thinking one thing at a time! 1st thing was Gluten, 2nd thing corn. We will see. 

The sores in my mouth seem to come and go. When the come they are not as bad, they are gone more than anything. I am not sure if stress is causing anything or if it is corn or grains or anything eles. I consider myself to be sooo new to this all and still learning so much every time I turn around there is more I am learning! So this corn intolerance is the next thing on my list of things to avoid .. 

 

I would like to ask is anyone knows , Is it an intolerance? Or is it hurting me like Gluten? Gluten damages my body! What about corn? I get pain bloating and gas!! Is it also causing damage? 

BelleVie Enthusiast

Thanks for all the responses :) it sure feels good to have people just like me to talk to!! Now since I have posted this I have also figured out I am having a problem with corn. I posted a thread about corn. Anyhoo so I am going to try and go Corn free and see what happens. I eat fresh meats and veggies so it shouldn't be too much of a problem for me. Someone posted a link on my corn thread I have got to read up on. But I am thinking one thing at a time! 1st thing was Gluten, 2nd thing corn. We will see. 

The sores in my mouth seem to come and go. When the come they are not as bad, they are gone more than anything. I am not sure if stress is causing anything or if it is corn or grains or anything eles. I consider myself to be sooo new to this all and still learning so much every time I turn around there is more I am learning! So this corn intolerance is the next thing on my list of things to avoid .. 

 

I would like to ask is anyone knows , Is it an intolerance? Or is it hurting me like Gluten? Gluten damages my body! What about corn? I get pain bloating and gas!! Is it also causing damage? 

 

Agreed. :) 

 

Lately, I have found myself drawn more and more to the paleo diet, and it really does seem to be helping. It naturally eliminates a lot of the foods that people have intolerances/allergies to, and I have found that it just makes my life so much more simple. So you could try paleo! That will cut the gluten (of course!), corn, etc. Are you dairy free as well? 

 

As I am typing this, I am remembering that this entire thread was originally about grain free diets. Geeze! It's early. I am only on my first cup of coffee.  :rolleyes:

 

Anyway, let us know how it goes, w8in4dave. I'm off to caffeinate myself so that I can speak coherently today.  :D

  • 3 weeks later...
w8in4dave Community Regular

Vertical nail ridges are fairly common and typically of no concern.  Horizontal nail ridges can indicate an underlying disease.  Horizontal white lines can indicate a nutrient deficiency or problems with the liver. 

 

Colleen

Actually my liver enzymes are up so this makes alot of sense to me ...... I have gotten results back from my toe nail. I had to have it sent in for results. (Sorry Know it is gross) it is not a fungus or yeast. I have to go see a dermatologist to find out what the problem is.

w8in4dave Community Regular

Agreed. :)

 

Lately, I have found myself drawn more and more to the paleo diet, and it really does seem to be helping. It naturally eliminates a lot of the foods that people have intolerances/allergies to, and I have found that it just makes my life so much more simple. So you could try paleo! That will cut the gluten (of course!), corn, etc. Are you dairy free as well? 

 

As I am typing this, I am remembering that this entire thread was originally about grain free diets. Geeze! It's early. I am only on my first cup of coffee.  :rolleyes:

 

Anyway, let us know how it goes, w8in4dave. I'm off to caffeinate myself so that I can speak coherently today.  :D

I have not gone grain free altho I have thought about Paleo and grain free I have not done either. I have stopped eating corn or corn by products. Thats kinda hard!! But doable, speaking of being caffeinated I guess I should go and get some myself.

GF Lover Rising Star

Actually my liver enzymes are up so this makes alot of sense to me ...... I have gotten results back from my toe nail. I had to have it sent in for results. (Sorry Know it is gross) it is not a fungus or yeast. I have to go to see a dermatologist to find out what the problem is.

 

Well, one more piece of the puzzle, at least you know it's not fungus or yeast.  Keep on top of the Derm guy, they can be dismissive or too general. 

 

Good Luck,

 

Colleen

ItchyAbby Enthusiast

I went grain free/Paleo when I had to go low-iodine - it just kind of made sense. It was rough for the first bit. I was craving carbs like crazy (apparently this is normal - our body gets used to burning carbs for fuel and it takes a while for it to switch to burning fat instead). I am now grain-lite - I will eat a little rice or masa harina once or twice a week. If I bake, I use coconut flour, almond/other nut flours, tapioca, arrowroot and potato starch.

 

I feel pretty good without grains. I don't get bloaty after meals, even big meals. My sugar cravings are greatly diminished (though I have also cut out refined sugars so that makes sense). My digestion is great on account of all the vegetables I eat. (I eat MOUNTAINS of veggies daily).

 

Beware when starting Paleo: a lot of people start out just eating tons of meat and nuts. I did this in the beginning and felt just ugh. It is not Atkins, where you eat only meat and fat! You need to include lots of veggies.

 

Sample menu (this is what I ate yesterday):

Breakfast:

red cabbage braised with apples

homemade sausage patties

almond flour biscuit (my adaptation of the bun in the bowl - still a work in progress)

tea with hemp milk

Lunch:

squash soup

shredded chicken

celery sticks with almond butter

Snack:

1/2 avocado with lime juice

Dinner:

homemade beef stew

roasted carrots and parsnips

sauteed kale

big salad

 

So everyone will be a little different - it depends on what your goals are. Those trying to lose weight will want to limit the starches. Those trying to add weight will want to up the healthy fats. I am fairly active and my weight is fine so this amount of food works well for me. I also have found that my weight is much more steady grain free. The more grains I include the quicker my weight tends to creep up. Without grains I rarely step on the scale. If anything I tend to drop weight really quickly when I eat totally Paleo.

 

When I no longer need to eat LI, I will be having dairy again. I miss cheese!

w8in4dave Community Regular

Patients is a virtue :) Dr apt is Jan 6th. Argggggggggggg!! 

w8in4dave Community Regular

I went grain free/Paleo when I had to go low-iodine - it just kind of made sense. It was rough for the first bit. I was craving carbs like crazy (apparently this is normal - our body gets used to burning carbs for fuel and it takes a while for it to switch to burning fat instead). I am now grain-lite - I will eat a little rice or masa harina once or twice a week. If I bake, I use coconut flour, almond/other nut flours, tapioca, arrowroot and potato starch.

 

I feel pretty good without grains. I don't get bloaty after meals, even big meals. My sugar cravings are greatly diminished (though I have also cut out refined sugars so that makes sense). My digestion is great on account of all the vegetables I eat. (I eat MOUNTAINS of veggies daily).

 

Beware when starting Paleo: a lot of people start out just eating tons of meat and nuts. I did this in the beginning and felt just ugh. It is not Atkins, where you eat only meat and fat! You need to include lots of veggies.

 

Sample menu (this is what I ate yesterday):

Breakfast:

red cabbage braised with apples

homemade sausage patties

almond flour biscuit (my adaptation of the bun in the bowl - still a work in progress)

tea with hemp milk

Lunch:

squash soup

shredded chicken

celery sticks with almond butter

Snack:

1/2 avocado with lime juice

Dinner:

homemade beef stew

roasted carrots and parsnips

sauteed kale

big salad

 

So everyone will be a little different - it depends on what your goals are. Those trying to lose weight will want to limit the starches. Those trying to add weight will want to up the healthy fats. I am fairly active and my weight is fine so this amount of food works well for me. I also have found that my weight is much more steady grain free. The more grains I include the quicker my weight tends to creep up. Without grains I rarely step on the scale. If anything I tend to drop weight really quickly when I eat totally Paleo.

 

When I no longer need to eat LI, I will be having dairy again. I miss cheese!

Ty for yor post!! Paleo is looking better and better .....

1desperateladysaved Proficient

I have a problem with corn and get similar bloating, but no way of really knowing what is happening in the small intestine.  Would be nice to be able to check some gage to find out.  This gage could say, "Corn is causing me a pain." or "Everything is fine in here!"  My gage would need to tell me a gluten reaction or other reaction also.

cap6 Enthusiast

Check out some of the paleo cookbook.  I bought two different ones and have been having sooo much fun making different things (and I have never been into cooking...at all!).   The books I have rely heavily on spices for kick and I have my partner in total awe at some of my creations!   

w8in4dave Community Regular

I bought my Daughter the Paleo Cook book last year.. I should borrow it ... I know she does pretty good on Paleo But she says it is a pricy diet ... I had a starter paleo book but I don't have a clue where it is...

mamafish Newbie

My story with grain-free/paleo... I think it *really* depends on the person.  We have tried several different approaches all trying to figure out the best diet for my son.  I went through a lot of them with him because I nursed him for 3 years.  We've also tried some different things since then. 

 

End result, he does very well grain free, so long as he gets lots of squash and sweet potatoes.  Adding in things like rice isn't a problem, but he could happily be largely carnivorous.

 

I feel like *hell* eating that much protein, meat protein in particular.  And if I eat too many nuts (and too many for me is more than about 1/8c a day), I get roaring estrogen dominance problems (already an issue, but nuts have a ton of plant estrogens, and 1/4 c of nuts a day for a month changed my very regular cycle from 30 days to 19.  19!!, and raving emotional/mood swings.  Went back to normal immediately when I went off the nuts, and recurred when I tried again because I'm a scientist and an idiot).  So for me, nut flours aren't a good replacement for grains.  Fats are good, but too much, and I think my fat digestion gets overloaded.  And if I use veggies to fill up all that food space, I still need to be careful about estrogen load.  Bottom line, for me it's a lot easier to have at least some grains, and I feel better eating them.

I am all for people experimenting with diet, because I think the right one can have a really profound effect on quality of life.  But after my own experience, I really resist the idea that any diet is a fit for everyone.

Renaye Contributor

I wonder if going grain free would help with constipation?  I am already off of eggs, gluten, peanuts and dairy. 

 

Renaye

w8in4dave Community Regular

Hmmmm I know I kinda have a problem with constipation once in a while so I use Nuts. But if your already eating alot of them... I don't know! 

 

Mamafish,

I thought Rice was a grain. But then I have no clue... Really I don't lol 

mamafish Newbie

 

I thought Rice was a grain. But then I have no clue... Really I don't lol 

 

 

It totally is :).  One that makes me feel much better to eat, and seemed optional for my kiddo.  I think it really varies person to person.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    3. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Related issues

    5. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      23

      Headaches / Migraines and Hypoglycaemia


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,149
    • Most Online (within 30 mins)
      7,748

    dvyoung
    Newest Member
    dvyoung
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      I am so sorry you are going through this; it sounds incredibly overwhelming and disheartening to be dismissed by the very medical professionals you're turning to for help. It is completely understandable that you feel lost and exhausted, not just from the relentless physical symptoms like the leg pain, stomach issues, and profound fatigue, but from the psychological toll of being told it's "just IBS" or that you need a therapist when you know your body is signaling that something is wrong. While it's true that a normal tTG test can indicate that celiac disease itself is being managed from a dietary perspective, it is a major oversight for your doctors to ignore your other diagnoses like SIBO, a hernia, and Barrett's esophagus, all of which can contribute significantly to the symptoms you describe. You are absolutely right to be seeking a new Primary Care Physician who will listen to your full history, take your Barrett's diagnosis seriously, and help you coordinate a care plan that looks at the whole picture, because your experience is not just in your head—it's in your entire body, and you deserve a medical team that acknowledges that. I had hernia surgery (laparoscopic), and it's not a big deal, so hopefully you can have your new doctor give you some guidance on that.
    • knitty kitty
      Some people have difficulty processing tyrosine.  Cut out the nuts and cheese and see if there's any difference.  Everyone is different. This study shows that tyrosine can affect our brain with detrimental effects as we age. Neuro-Cognitive Effects of Acute Tyrosine Administration on Reactive and Proactive Response Inhibition in Healthy Older Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC6084775/ "In conclusion, we show age-related effects of tyrosine administration especially on proactive, not reactive, response inhibition, accompanied by signal changes in dopamine-rich fronto-striatal brain regions. Specifically, we observed that tyrosine’s effect on brain and cognition became detrimental with increasing age, questioning the cognitive enhancing potential of tyrosine in healthy aging."
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.