Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

White Froth And Oil Floating On Water After Yellowish "d". Is This A Sign Of Celiac?

Mcfmommy

Recommended Posts

Mcfmommy Newbie
Mcfmommy
Posted

Doc wanted to go with IBS which I think of as more of a symptom than a diagnosis. Anyone know anything about this symptom?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


answerseeker Enthusiast
answerseeker
Posted

I get the white froth after eating a meal with fats (healthy fats too) if I eat avocado I get it too. For me it is related to my celiac, as I am not absorbing fats. So I get floating frothy oily stools (sorry tmi) It could very well be a symptom of fat malabsorbtion do you have other symptoms?

 

I think IBS could cause that but we all know IBS is just a cop out diagnosis

Mcfmommy Newbie
Mcfmommy
Posted
  • Author

I have lots of problems. I have alternated between constipation and painful diarreah for a year now. Constant chronic headaches, occasional migraines. Tingling and numbness with muscle weakness in right arm, left eye twitches, I burp a lot. Wake up in the middle of the night due to diarreah. INSOMNIA. Anxiety, weight gain, recently diagnosed with hypothyroidism, high blood pressure and glaucoma. Chronic fatigue. The GI issues will come on super quick and I HAVE to stop what I'm doing to RUN to the bathroom. I take high quality probiotics everyday. I was perfectly healthy until about 3 years ago when all this started. Recently I have had difficulty breathing, like I can't get enough air, or I almost forget to breathe, then my heart races and I take a big breath. I have started having trouble swallowing like I mildly choke on my own saliva even. I am clumsy and drop things ALL THE TIME. I was attributing it to weight gain and laziness but something is wrong. I just know. I eat pretty healthy (unless of course I'm gluten sensitive in which case I'm poisoning myself). Otherwise lots of veggies, etc. the weight gain is frustrating as I've gained a lot and with no good reason!

Mcfmommy Newbie
Mcfmommy
Posted
  • Author

Oh, I also have asthma that comes and goes. If that makes sense. I have an inhaler which I rarely have to use but then I'll get pneumonia or bronchitis and I was in the ER last year with pneumonia.

answerseeker Enthusiast
answerseeker
Posted

and you haven't been tested? thyroid issues are very common in celiac and you already have all the GI symptoms. sounds like you have some GERD going on as well. I suffered from that and had the difficulty swallowing with it, that could probably be the reason for you getting short of breath. I was diagnosed with asthma, moderate persistent, and it doesn't come and go so that sounds like maybe the reflux is causing you to be short of breath. I would make an appointment with a GI doctor

Mcfmommy Newbie
Mcfmommy
Posted
  • Author

and you haven't been tested? thyroid issues are very common in celiac and you already have all the GI symptoms. sounds like you have some GERD going on as well. I suffered from that and had the difficulty swallowing with it, that could probably be the reason for you getting short of breath. I was diagnosed with asthma, moderate persistent, and it doesn't come and go so that sounds like maybe the reflux is causing you to be short of breath. I would make an appointment with a GI doctor

Oh yea, I forgot to mention I sometimes get reflux. It will wake me up in the middle of the night and I can't breathe because my throat is closed up. I gasp for air and it takes a while to calm it all back down. I don't sleep we'll at all. No more than 45 minutes at a time so I am always tired. I'm getting tested tomorrow for celiac. The thyroid problem was just discovered 6 weeks ago. Is it mandatory to get the endoscopy? I'm scared of that.

answerseeker Enthusiast
answerseeker
Posted

your still eating gluten right? you need to be eating gluten for the test to be accurate.

 

don't be scared of the biopsy, we have all done it and you don't even know it's happening. you are given a sedative and I don't remember anything! the only thing I had was a little sore throat after. I had to have an endometrial biopsy and that was far worse.

 

you will most likely have to have the biopsy if you have positive or unconclusive blood tests.

 

insomnia is also a symtpom. I have been gluten free since July and still can't sleep right!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


emilykay405 Rookie
emilykay405
Posted

I just got back from my GI doc with some of your symptoms. His diagnosis was a malfunctioning gallbladder. So now I get to have an ultrasound and HIDAscan. 

 

When you get the yellow D, does it burn? That's also an indication of gallbladder issues. I also have a full feeling right under my rib cage about an hour or so after I eat. 

 

My issues with swallowing come from GERD and a hiatal hernia. He mentioned today that he could stretch my esophagus whenever I felt I needed it. 

Mcfmommy Newbie
Mcfmommy
Posted
  • Author

I just got back from my GI doc with some of your symptoms. His diagnosis was a malfunctioning gallbladder. So now I get to have an ultrasound and HIDAscan. 

 

When you get the yellow D, does it burn? That's also an indication of gallbladder issues. I also have a full feeling right under my rib cage about an hour or so after I eat. 

 

My issues with swallowing come from GERD and a hiatal hernia. He mentioned today that he could stretch my esophagus whenever I felt I needed it.

Yes after the third yellow d it burns because it is basically just bile and un or semi digested food. I just had a CT scan and blood work 2 weeks ago and gall bladder looks good. So I don't think it's that. What does stretching your esophagus do? I really feel that once I'm allowed to go gluten free the acid reflux and D will go away. My yellow D will happen like 3 days and nights in a row about 6 times each 24 hours and then go away for a couple days. Acid reflux doesn't happen as frequently. 4 or 5 times a month. My celiac test is tomorrow so I had toast for breakfast this morning and got reflux and gas 10 minutes after I was done eating.

I have such a wide array of symptoms that my doc has been treating individually and I'm just hoping the celiac brings it all together. Because it seems the way things have been going: treating everything as separate, as soon as the doc treats one thing another crops up.

Synopsis of symptoms:

Weight gain

Diarrhea alternating with constipation

Muscle twitching

Nerve problems (tingling and numbness in right arm and left leg) nerve conduction and emg and MRI found herniated disc in neck

Headaches (everyday) migraines a few times a year

Hypothyroid

High blood pressure ( last few months)

Burp all the time

Major insomnia

Wake up during night with either acid reflux or diarrhea several times a week

Major anxiety particularly the last few weeks, with rapid heart and trouble breathing

Found out last week I have glaucoma (could be steroid induced)

Dry skin

Squamous cell carcinoma (age 22, getting another biopsy next week)

Cataract (since age 22)

Chronic fatigue

Severe vitamin D deficiency

Sun allergy

I'm also getting a sleep study Saturday because ophthalmologist suspects apnea due to the damage done to my optic nerves ( not enough oxygen)

ravenwoodglass Mentor
ravenwoodglass
Posted

Make sure you let your doctor know that D is waking you up at night. Stress that as some doctors only listen to half of what we say. IBS does not wake people up from sleep so that symptom will rule out IBS. From your symptom list I would think you are one of us and as soon as you can get yourself gluten free you should see relief although it can take a bit of time.

emilykay405 Rookie
emilykay405
Posted

Basically when you have lots of reflux/acid it causes the esophagus to narrow. My Grandfather has to get his stretched every few years, too. When they did my endoscope my esophagus was swollen, so I opted to wait a while and see what happens.  

 

When I looked up gallbladder symptoms after my appointment I did read about people who don't get stones but get sludge or sandy bile that causes problems which would not show on an ultrasound. 

 

I had a sleep study done about a year ago. It showed that I have sleep apnea. I tried a CPAP for a couple of months but actually slept worse. I'm hoping that fixing deviate septum in my nose will help with it. If not I'm getting a mouth guard. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    2. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    3. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    4. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
    5. cristiana
      - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott. Have manufacturers ever said why that should be the case?
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,438
    • Most Online (within 30 mins)
      7,748
    rednecksurfer
    Newest Member
    rednecksurfer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.