Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bladder Problems And Gluten Sensitivity?


aurora

Recommended Posts

aurora Newbie

I don't have celiac's but a gluten sensitivity but also have major bladder problems! does anyone know if there is a link? I had an endoscopy just to look inside my bladder and the bladder wall was very inflamed - has anyone else experienced this or is it totally unrelated? I have only just found out about the gluten thing so don't know yet if a gluten free diet will help or not.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Felidae Enthusiast

I don't know if I have celiac, but I responded positively to the gluten-free diet. I have taken one cranberry pill a day for about six years now. This is because I used to get frequent bladder infections. I don't know if going gluten-free would have changed the bladder infection rate, so I religiously take my cranberry pill.

cornbread Explorer

Before I went gluten-free I used to need to urinate all the time, and often felt like I had cystitis. Since going gluten-free the problems have vanished. When I get glutened, the frequency returns.

ravenwoodglass Mentor
I don't have celiac's but a gluten sensitivity but also have major bladder problems! does anyone know if there is a link? I had an endoscopy just to look inside my bladder and the bladder wall was very inflamed - has anyone else experienced this or is it totally unrelated? I have only just found out about the gluten thing so don't know yet if a gluten free diet will help or not.

<{POST_SNAPBACK}>

I've gotten a great deal of relief from the gluten-free diet. It still feels like I am peeing glass when I get glutened, and I will also have microscopic bleeding when that happens. But if I am gluten-free I have no problems and have even seen an improvement in incontinence problems I had since childhood. For me there is a definate connection.

Striss Newbie

Over the last 3 years, I've been having a lot of bladder issues...Having to make very frequent bathroom visits all the time. I started the gluten-free diet about a week ago and already it's beginning to clear up a little bit. I'm very happy to find somebody else who's also had the same results.

julie5914 Contributor

Bladder problems are assiciated with candida. I know some doctors don't think candida is a real thing, but I know someone who has it and was diagnosed by a GI doc. They saw the yeast during endoscopy (esophagus).

floridanative Community Regular

For years I've have to urinate three times more than any of my friends/family. It isn't uncommon for me to go when I get to a restaurant, then go again before I leave. I was told by a doctor years ago that I probably have a small bladder but maybe it's related to celiac disease?.. Anyway, my question is does anyone out there ever have bright yellow urine? I'm talking about reg. Gatorade yellow. This has just started this week and I haven't been drinking anything yellow. Just lots of water, coffee and tea as usual. And it is not like that every trip. Anyone ever heard of this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skbird Contributor

Hey Floridanative - are you taking B complex supplements? That will turn your pee Gatorade yellow (very descriptive!).

I have been having bladder issues this past year but I think it has something to do with possible endometriosis. Coincidentally, this has started since I went gluten-free.

Stephanie

WRowland Newbie

I'm 52 and was having increasing problems with both urinary and fecal incontinence before I found my gluten problems. Researching my osteoporosis lead me to celiac.

So I've been eliminating gluten for about three months now, progressively better, but still not perfect. Both problems have improved so much that I no longer think about them.

Dr. Fine says that there is nerve damage, especially to the sphincter muscles that close off bladder, rectum and stomach. So acid reflux and bladder and fecal incontinence are definitely associated with gluten sensitivity and celiac.

floridanative Community Regular
Hey Floridanative - are you taking B complex supplements? That will turn your pee Gatorade yellow (very descriptive!).

I have been having bladder issues this past year but I think it has something to do with possible endometriosis. Coincidentally, this has started since I went gluten-free.

Stephanie

<{POST_SNAPBACK}>

Oh my gosh!! Yes I just started taking a B-complex vitamin per my derm. recomendation until I get biopy/start diet. Thanks so much!!!

Tiffany M.

mookie03 Contributor
I don't have celiac's but a gluten sensitivity but also have major bladder problems! does anyone know if there is a link? I had an endoscopy just to look inside my bladder and the bladder wall was very inflamed - has anyone else experienced this or is it totally unrelated? I have only just found out about the gluten thing so don't know yet if a gluten free diet will help or not.

<{POST_SNAPBACK}>

I was wondering this same thing! I have had 2 seemingly unrelated problems for my whole life- recurring UTI's and terrible problems w/ chronic diarrhea. I have finally solved one of the problems (i have a gluten sensitivity if not celiac disease) but the UTI's are a mystery. I have had several procedures done (when i was 4, 9, 12, and 18) to figure out what is causing them but they couldnt come up w/ an answer (except for the inflammation and an "extra lining" i have. I havent had one since going gluten-free but it has only been 5 months. Think we are onto something here???

Stefi

Rusla Enthusiast
I was wondering this same thing!  I have had 2 seemingly unrelated problems for my whole life- recurring UTI's and terrible problems w/ chronic diarrhea.  I have finally solved one of the problems (i have a gluten sensitivity if not celiac disease) but the UTI's are a mystery. I have had several procedures done (when i was 4, 9, 12, and 18) to figure out what is causing them but they couldnt come up w/ an answer (except for the inflammation and an "extra lining" i have.  I havent had one since going gluten-free but it has only been 5 months.  Think we are onto something here???

Stefi

<{POST_SNAPBACK}>

I have had bladder and kidney problems since I was 2 years old and almost died from it then. I have had 2 bladder and 2 kidney surgeries and I would be interested in finding out if this is something that happens with Celiac. No one else in my family has had this problem

floridanative Community Regular

[

quote=cornbread,Oct 19 2005, 10:39 PM]

Before I went gluten-free I used to need to urinate all the time, and often felt like I had cystitis. Since going gluten-free the problems have vanished. When I get glutened, the frequency returns.

<{POST_SNAPBACK}>

tammy Community Regular

I too have chronic bladder infections according to my lab work but no symptoms. I have been on the gluten-free diet since December 2002!!!!

I had symptoms in my early twenties and it seemed corrected when I started taking a regular dose of probiotics and cranberry juice.

Now, I am considering an ultrasoundbut wonder if I will always have this? :huh::(

mookie03 Contributor
I too have chronic bladder infections according to my lab work but no symptoms. I have been on the gluten-free diet since December 2002!!!!

I had symptoms in my early twenties and it seemed corrected when I started taking a regular dose of probiotics and cranberry juice.

Now, I am considering an ultrasoundbut wonder if I will always have this? :huh:  :(

<{POST_SNAPBACK}>

I have had many ultrasounds and none have been productive. Cranberry works best for me- and intermittent antibiotics (on an as-needed basis). You are lucky you have no symptoms though- mine are terrible!!!

gabby Enthusiast

My bladder problems turned out to be sugar related. I used to get between 4 and 6 UTIs every year for about 10 years. I also had the scopes, x-rays, cat scans, etc. But they couldn't figure it out. Because of an insulin problem, I had to go on a no sugar and low glycemic index diet which I follow to this day (along with a gluten-free diet). The bladder problems vanished.

Until....

I had to have a glucose tolerance test done. So I had to drink a big glass of glucose liquid and test my sugar every 15 minutes. I got the shakes, could barely stand up, and then walked into a wall that I didn't see. The next day I woke up with the mother of all UTIs. So I have adopted the low glycemic index diet for life...and it seems to be keeping the bladder problems at bay. Be careful with cranberry juice...it is pretty much pure sugar.

When you do get bladder discomfort, try drinking a big glass of room temperature water with 1/4 teaspoon baking soda. Avoid all sugar including fruits until it goes away. And drink tons of water.

There is a great book called: You don't have to live with cystitis (can't remember the author).

Hope this helps,

Gabby

danikali Enthusiast
For years I've have to urinate three times more than any of my friends/family. It isn't uncommon for me to go when I get to a restaurant, then go again before I leave. I was told by a doctor years ago that I probably have a small bladder but maybe it's related to celiac disease?.. Anyway, my question is does anyone out there ever have bright yellow urine? I'm talking about reg. Gatorade yellow. This has just started this week and I haven't been drinking anything yellow. Just lots of water, coffee and tea as usual. And it is not like that every trip. Anyone ever heard of this?

<{POST_SNAPBACK}>

It's quite amazing to read all of this because I NEVER thought my bladder problems could have had anything to do with gluten. But YES, I urinate SOOOOO frequently, I also thought I had interstitial cystitis because for a while, I had burning every single day, but NO INFECTION found by doctors! My doctor also told me I have a small bladder, and irritable bladder, and there is nothing I could do about it. I also took cranberry pills, they used to work, but eventually, I was taking them all day long and realized they weren't doing anything anymore. Allllso, my urine is most of the time bright yellow, like you said. Also, I noticed, when I am feeling sick (not done with tests yet to judge my gluten problems), but my urine smells like a chemical, very weird. No doctor knows what I am talking about. Anyone else notice anything like that?

kelliac Rookie
Allllso, my urine is most of the time bright yellow, like you said. Also, I noticed, when I am feeling sick (not done with tests yet to judge my gluten problems), but my urine smells like a chemical, very weird. No doctor knows what I am talking about. Anyone else notice anything like that?

<{POST_SNAPBACK}>

Do you take vitamins? That could cause bright yellow, as does concentrated urine from lack of enough fluids. Other causes but we won't go there yet.

mightymorg Rookie

This is an interesting possible connection. I'm not officially diagnosed with anything yet (go back to the GI a week from today), but no matter what my fluid intake is I always have to go pee! Plus, I had hemmoragic (sp?) cystitis a month and a half ago. It was my first one, but man, I thought I was going to die, it hurt SO bad!! :blink:

danikali Enthusiast

Yeah, I know what you mean about vitamans. Actually, I know it's bad, but I haven't taken a multi for a while......I always forget. But no, it's not that. And I do drink a lot of water and herbal tea, and sometimes it is still yellow.

Puckster Rookie

I've had regular, horrible UTI's as well. I just went gluten-free a month ago and haven't had one yet (fingers crossed). I just wanted to mention that there's a supplement called D-Mannose out there that really helps with UTIs. It's a simple sugar that our body cannot absorb and for some reason bacteria in the urinary tract attach to the sugar when we pee and vioal! All washed out. I'm pretty sure D-mannose is the thing in cranberry juice and cranberry supplements that helps with UTI's. It's much stronger than cranberry supplements, is a little more expensive and tastes great! You can find it at health food stores near the cranberry supplements.

floridanative Community Regular
It's quite amazing to read all of this because I NEVER thought my bladder problems could have had anything to do with gluten. But YES, I urinate SOOOOO frequently, I also thought I had interstitial cystitis because for a while, I had burning every single day, but NO INFECTION found by doctors! My doctor also told me I have a small bladder, and irritable bladder, and there is nothing I could do about it. I also took cranberry pills, they used to work, but eventually, I was taking them all day long and realized they weren't doing anything anymore. Allllso, my urine is most of the time bright yellow, like you said. Also, I noticed, when I am feeling sick (not done with tests yet to judge my gluten problems), but my urine smells like a chemical, very weird. No doctor knows what I am talking about. Anyone else notice anything like that?

<{POST_SNAPBACK}>

I found out from skbird that my b-complex was making my urine yellow. But this brings up another stupid thing the hemotologist said to me yesterday (others may have read about my experience on another thread) but I forgot to mention the following comment. I told the doc (who I'd never met before) that I have the frequent urination problem and wanted to know what that could indicate. I told him I finished lunch and a cup of tea at 12:20 and did not consume one more ounce of liquid after that. I left the house at 1:45 pm for my appt. with him and had used the bathroom FIVE times from 12:30 to 1:45. Okay so here is his response - 'well I bet you're really fun to travel with' and he laughed. I was glad I was in a chair or I may have fallen off his exam table. I could NOT believe he could be that insensitive. He ran the Celiac panel tests I wanted so I have to be happy about that and forget what a jerk he was.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.