Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ocd


Adalaide

Recommended Posts

Adalaide Mentor

I know that television likes to make everyone think that OCD is hilarious. Everyone with it is some sort of neat freak who needs to lock and unlock their deadbolt 5429847528945 times (or some ridiculous number) before they go to bed. Since a lot of mental health issues are linked to celiac I thought I would share an article that is actually pretty spot on for what it is truly like to live with OCD. For fair warning, this article does have strong language.

 

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

Everyone should read this.  Thanks for posting.

GF Lover Rising Star

Great Article.  Society is "in love" with being different.  People think that if they have this (any condition) then society will treat them special and give them more attention.  It takes away from the seriousness of the condition and the difficulty people who actually have the condition face in real life. 

 

This is my experience with real life OCD and may help people understand how the obsessive part fits in the psychiatric part.

 

I am one of the so called "clean freaks".  My home always looks like a showroom, laundry is always done, paperwork is filed as soon as it enters the door. You get the picture.  Now the Psychiatric part.  I spend enormous amounts of energy doing this because I expect tragedy to walk through my front door at any moment.  I must be prepared to deal with the crisis at hand.  Every time the phone rings I expect it to be "the call" about someone in an accident, someone has died, etc.   Keeping my home spotless and in order gives me a sense of control with my out of control thought process.  There is a name for what I do, it is catasrophizing.  When I drive down the road I imagine every possible accident that could potentially happen to me.  Every sound I hear seems to be someone breaking in my home.  Every smell is a potential gas leak or fire.  I intellectually know why I do the OCD stuff.  I also cannot stop doing it, just like I can't stop the thoughts in my head.  My Hubs and Son don't question why I must move the furniture around at 3:00 in the morning, they just help me if I ask.  They don't worry that I'm in the closets making sure that the clothes are sorted by color, by sleeve length, and that the hangers all match. They understand my struggle.  Someone who doesn't know me would probably call me crazy but in reality I am just coping the best way I know how.  Having OCD is not funny, not fashionable and certainly should not be made light of. 

 

Colleen

Adalaide Mentor

I'm actually a sort of messy person. I like to call it organized chaos. :D For me the two most difficult things have always been the thoughts and food. Even at a young age I would sooner go hungry than skip particular rituals relating to my meal and snacks. To this day I will not eat Reese's Pieces without a flat surface to sort them by color and number. I am incapable of eating a sandwich cut straight up the middle. People think that's crazy, that it's a personal choice and I'm being picky. I'm not picky, I literally can. Not. Do. It. I'm the same way with every phone call and driving. Every time I walk down the stairs will be the time I fall and end up with a compound fracture, or impale myself on something I'm carrying, or actually just kill myself by breaking my neck. Every time I make dinner will be the time I cut a finger to the bone, finally end up with a burn serious enough to end up in the ER, burn the house down or some other horrific thing. I also need things to be just so. While I'm capable of being spontaneous if I don't have plans, if I do actually have plans I mentally go to hell in a handbasket if those plans suddenly don't work out. This is amplified about a million times if blame can be pointed at an actual person.

 

Frankly though, the worst possible part of all of it is knowing that all of that is completely freaking crazy. There's that old saying that as long as you are still sane enough to wonder whether or not you're crazy, you're not. Except for us we know damn well we're doing and thinking things that are positively nuts. We actually get to be completely aware of how crazy we are, which is terribly frightening (at least for me).

 

I'll admit, I've been known to crack the old joke "I'm CDO, it's like OCD but the letters are in alphabetical order like they should be." I still think it's funny, maybe especially because I think things should have orders, classes and such like a scientific system. :lol: But the way society makes like of OCD is enough to drive me (and probably most of us) batty.

SkyBlue4 Apprentice

My son is struggling with OCD. They believe it was brought on by a strep infection that he had when he was just 7 yrs old. It calmed down and he was able to function well until this summer when it returned with a vengeance. We're not sure what caused it to resurface again so severely. He's constantly tortured by intrusive thoughts and not able to attend school. We've had to begin medication therapy in conjunction with cognitive behavioral therapy. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,743
    • Most Online (within 30 mins)
      7,748

    MistyMoon
    Newest Member
    MistyMoon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.