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Post Diagnosis - Not Feeling Great


gilligan

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gilligan Enthusiast

I was diagnosed in August.  I've done everything right - no gluten, read labels, "de-glutened" kitchen, no processed foods, etc.  I'm still having digestive issues.  I've gone from lactose intolerant to complete dairy intolerant.  I think sugar bothers me, so I've given up most of it.  I gave up raw vegees and soy.  I've read enough on here to know that sometimes things get worse before they improve, but how long does it take?  Should I feel better by now?  I'm eating, eating, eating because I can't afford to lose any more weight.  Lately, I've had dehydration issues, so it was discovered that I was low in potassium, so I'm drinking more liquids than ever.  Is there an end to this?  Getting very frustrated!


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AVR1962 Collaborator

It takes awhile. Make sure your diet and kitchen is clean, eat well and in time you will see the difference, have patience.

 

Annette

nvsmom Community Regular

It took me over a year for my body to really settle down, and there were some ups and downs in there where I felt really good and then really really bad. Keep doing it right and give it more time. Perhaps check your nutrient levels (B12, D, A, K, Fe, Ca, zinc, Cu) and even your thyroid  function - that can affect your metabolism a lot; TSH, free T4 and fre T3, and TPO Ab are the labs for that.

 

Hang in there. If it doesn't improve by spring, look into more causes - hopefully you won't need to.

1desperateladysaved Proficient

I have found that coconut water is a good hydrator for me.  It sounds like you are making good progress learning the diet.  I think your body is healing, but you don't feel it yet.  Have you had your nutrient levels tested to be sure they are getting in?  I have used a special Carbohydrate diet in which you eat mean vegetables, and use nut flours.  Digestive enzymes and other supplements have helped me much. 

 

I had 30 years of bloating, foggy brain, and fatigue.  The fog cleared, I am 18 months gluten free, so I believe that you can come out too.  Sometimes, my worse days, were the days just before my highest peaks.  Hang in there.

 

D

cyclinglady Grand Master

August is too soon to expect significant results.  I was diagnosed in March.  Am finally feeling much better.  So, hang in there!

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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