Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Opinions

Suffering

Recommended Posts

Suffering Newbie
Suffering
Posted

So I need opinions. I'm a 28 year old female. I have suffered terrible stomach problems for about 6 years. I just recently started see a GI about my symptoms because the became so unbearable. My issue is that my symptoms come and go. They'll start and last 6 weeks or so and then get better (don't go completely away) for about a month but during that 6 weeks they're unbearable. I get such bad stomach pain between my belly button and rib cage. Most of the time I end up throwing up but I know if it's cuz of the pain or just another symptom. I have never really correlated it with particular food as it happen everytime I eat. I get really sweaty, heartburn, dizzy, my stomach bloats terrible and I get extremely fatigued. I have always thought it was an ulcer. But the pain feels like my intestines are eating themselves. I get diarrhea but only a couple times a day.

I've had a CT and an abdominal ultrasound which were negative. Then my friend mentioned celiac. I had never thought of that (I'm a nurse so that's crazy). She pointed out that I'm always complaining of my bones hurting like growing pains which is true I feel like my bones ache like when I have the flu. And I get these blisters on my fingers, I always thought the were cold sores on my fingers. I never related these issues to my stomach problems. Anyways my symptoms are at a good point right now. I get slight stomach aches, nothing like it is when it "flares" up. But I also get these sharp stabbing pains, mild, but they're right under my rib cage.

I also have terrible heartburn most of the time. I am scheduled for a colonoscopy and egd next week.

Are these symptoms related to what anyone else has experienced with celiac?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


moosemalibu Collaborator
moosemalibu
Posted

I had stabbing abdominal pain, bloating, fatigue and diarrhea (just to name a few). Get tested for Celiac. It certainly cannot hurt. 

WinterSong Community Regular
WinterSong
Posted

In short, definitely get tested. Many of your symptoms could be Celiac-related. 

gary'sgirl Explorer
gary'sgirl
Posted

Reading your symptoms first brought to mind "gallbladder attack", in particular the pain that you describe under the rib cage. Is it more to the left or right? I had pain under my mid to right rib cage when I was having gallbladder attacks.

But it might not be gallbladder, if it is though, that doesn't rule out Celiac or gluten sensitivity. My gallbladder problems where because of having celiac disease.

 

Hope you can figure it out soon. Hang in there!

Suffering Newbie
Suffering
Posted
  • Author

Reading your symptoms first brought to mind "gallbladder attack", in particular the pain that you describe under the rib cage. Is it more to the left or right? I had pain under my mid to right rib cage when I was having gallbladder attacks.

But it might not be gallbladder, if it is though, that doesn't rule out Celiac or gluten sensitivity. My gallbladder problems where because of having celiac disease.

 

Hope you can figure it out soon. Hang in there!

Yes that was my first thought to but it's been ruled out.

GFinDC Veteran
GFinDC
Posted

Hi S,

 

Yes, your symptoms do sound like celiac disease.   You should get blood drawn for a full celiac antibodies panel.  Be sure to keep eating gluten (wheat, rye, barley) until your celiac disease testing is complete.  Other tests you should consider are a bone density scan and vitamin and mineral levels.

Suffering Newbie
Suffering
Posted
  • Author

Hi S,

 

Yes, your symptoms do sound like celiac disease.   You should get blood drawn for a full celiac antibodies panel.  Be sure to keep eating gluten (wheat, rye, barley) until your celiac disease testing is complete.  Other tests you should consider are a bone density scan and vitamin and mineral levels.

So I'm have an upper and lower go next Wednesday. Do you think I should still do the blood work or wait for my result from the scopes? I'm kinda torn on it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

OMG yes. Me. My autoimmune stuff cycles. One reason I never correlated it with what I ate.

Yes, full antibody panels NOW. Make sure they do celiac biopsies, not just a look.

NoGlutenCooties Contributor
NoGlutenCooties
Posted

So I'm have an upper and lower go next Wednesday. Do you think I should still do the blood work or wait for my result from the scopes? I'm kinda torn on it.

 

If it were me I would have them run the full Celiac panel of bloodtests NOW.  Regardless of how the biopsy comes back you're going to want the bloodtest.  So why not get them both done now and then go gluten-free to see if you feel better?  Once the bloodtests and the biopsy are out of the way I can't think of any reason why not to go ahead and go gluten-free while you're waiting for the test results.

Suffering Newbie
Suffering
Posted
  • Author

Thanks soo much for all the replies! I called and got the blood test ordered today. So first thing tomorrow I'll get them done. Hopefully they don't take to long. I plan to go gluten free right away after my biopsies are done regardless. I'll update my results as soon as I get them!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.