Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Whole Church Turned Around


eers03

Recommended Posts

eers03 Explorer

and looked at me!  I attend a really great small church.  About 200 people so its pretty small.  We are like a big family, really.  Most of us are there on Sunday morning and evening as well as Wednesdays.  

 

Anyhow, before service people stand up and voice their desire for prayer for various people or things in their life.  Well, someone requested prayer for their brother who has recently been diagnosed with Celiac Disease.  "Something to do with gluten or something."

 

The whole church turned around and looked/smiled at me!  It was actually really sweet.  Everyone in my rural church in the sticks are gluten savvy.  I don't know, for all the times that we run into people that make things awkward, this was a moment where things were made completely awkward in the best way possible :-)

 

My friends were joking with me afterwards, "Hey, did you like how the whole church immediately turned around and looked at you?"  

 

It was pretty funny.  I love them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGlutenCooties Contributor

:)  Thanks for sharing!  That is really sweet!

IrishHeart Veteran

I think it's incredibly sweet of your church members to offer up prayers on your behalf. You are blessed to be supported in that way!

 

And for the record, I am always touched  and deeply grateful for those people in my life who have offered prayers in my name.

I know my devout Mormon friend was praying for me night and day when I was very ill before diagnosis. For 3 years, she got on her knees for me, I know..... and I know she had all her people on it too.

And I am pretty sure my mom,sister and my best friends wore out several strings of rosary beads on me 

My aunt and cousins, too.They were all pretty worried about me.

I am blessed that so many were asking for help in my name.

 

Do I think prayers work? Does God answer our prayers? It's hard to say, IMHO

I say this: "yes, but sometimes  the answer is no. "

 

But they seem to think prayer is powerful and that is all that matters, isn't it?.

Faith can move mountains sometimes.

 

oh, gee.,...I did not mean to get too religious and philosophical on you, :D I am just talking with you about how generous in spirit I think most people are...of all denominations and faiths. 

 

Thanks for sharing your story. It's a day-brightener, for sure!

IH

cyclinglady Grand Master

How nice to have such loving support!

love2travel Mentor

Awesome to have your church's support. I do as well at mine. Made me giggle when you said a small church of 200. Our church is the same and it is huge compared to all other churches I have attended. The last one before we moved here was about 40 - very rural indeed. We do not have mega churches like the U.S. but our population is far smaller.

Cool story!

notme Experienced

my church is like that, too :)  i absolutely love them - they are like family.  all the kids are all of our kids, so funny to watch them grow into adults and then have kids of their own.  my grandkids go to choir practice, just like mine did.  i still make meals for the youth and kids groups even though none of them are mine.  yesterday i sewed a robe for a shepherd for the Christmas program.  our family is lighting the advent candle on sunday.

 

funny story - when i first moved to tennessee from nj, i was basically 'unchurched' - hadn't been for years and it didn't really bother me to sleep in on sundays.  but, when my kids started going to the kids choir there, we started going back again.  so, they asked us to do the reading and light the advent candle.  my part was from the book of malachi and i was so nervous, i pronounced it the charlie bronson way, ma la chee.  o my gosh, 17 years later, they STILL rib me for that!  in my bible study group, i told that story, and they decided that the next study should be the book of malachi.  (it was a good study!)  lololz i know when i get up there on sunday, there will be a bunch of people smiling at me and remembering my huge fail so many years ago ;)   God speaks to all of us in the language we can understand - mine is laughter, i guess...  :)

 

yes, eers, you are blessed with a *small* church of 200 lolz - our pastor would love 200 people in the sanctuary! - we probably have that many members on the books, but only about 65 regular attendees. 

1desperateladysaved Proficient

The Lord doesn't forsake, for sure, is kind  when others are carrying one in prayer too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

   God speaks to all of us in the language we can understand - mine is laughter, i guess...  :)

 

 

 

amen.  me too, Arlene. me too. And I think God must have the biggest sense of humor of all.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    2. - JoJo0611 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Just diagnosed today

    3. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - Samanthaeileen1 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,800
    • Most Online (within 30 mins)
      7,748

    CPeck
    Newest Member
    CPeck
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
    • RMJ
      The normal ranges can vary for the tissue transglutaminase and gliadin antibody celiac tests because the units aren’t absolute.  Could you please tell us what the normal ranges are for the laboratory used? If her tissue transglutaminase results are 10-fold above the normal range some would diagnose her on that alone.  Endomysial antibody ranges are more standardized, and a titer of 1:5 would usually be normal.  Might that be the normal range and not her result?  Her total immunoglobulin A is normal for her age. (This is tested because if low, then the other IgA tests might not be valid).
    • Samanthaeileen1
      Hello there! New to celiac community, although I have lots of family in it.  My two year old was just diagnosed with celiac disease based on symptoms and bloodwork.  symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal. She just got tested again at 2 1/2  because her symptoms were getting worse and these were her results :   Tissue Transglutaminase Ab, IgA 58.8 Unit/mL (High) Endomysial Antibody IgA Titer 1:5 titer (Abnormal)   Gliadin Antibody IgA < 1.0 Unit/mL Gliadin Antibody IgG 8.5 Unit/mL Immunoglobulin A 66 mg/dL Her regular pediatrician diagnosed her with celiac and told us to put her on the strict gluten free diet and that we wouldn’t do an endoscopy since it was so positive and she is so little (26lbs and two years old). I’m honestly happy with this decision, but my family is saying I should push and get an endoscopy for her. It just seems unnecessary and an endoscopy has its own risks that make me nervous. I’m certain she has celiac especially with it running in mine and my husbands family. We are now thinking of testing ourselves and our 5 year old as well.  anyways what would y’all recommend though? Should we ask for an endoscopy and a GI referral? (We are moving soon in 5 months so I think that’s part of why she didn’t refer us to GI)    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.