Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Had Raynauds Syndrome Improve On Gluten Free Diet?


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

I recently found out that I have Raynauds.  Is it related to celiac?  Also does it improve with a gluten free diet?

 

D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KCG91 Enthusiast

I wondered about this as my Mum has Raynauds and although I've never seen a GP about it my circulation was really bad before I went gluten-free. Happy to say it's improved considerably :) hope yours does too!

Gemini Experienced

Yes, Diana, I have Reynaud's and it has improved tremendously on the gluten-free diet.  My fingers used to blanch and turn white when exposed to the cold and now, I can tolerate the cold much, much better.  They do not turn white and numb nearly as much as they used to and it's only the very fingertips that are affected.  I can also reach into the freezer section and grab frozen items without gloves!   :)

 

Reduce the inflammation in your body, over time, and other AI diseases improve.

jebby Enthusiast

Hi Diana. I have had the same experience as Gemini, my Raynaud's has virtually disappeared since going gluten-free in 2010.

1desperateladysaved Proficient

I think there is hope for me, for though I feel really good, I still feel I am in transition at 18 months gluten free.  One of my daughters has raynaud's  too, so the logical question is whether this might be a sign of celiac for my family.  I see everything as symptoms though, and my family sees nothing as symptoms.  Strange deal for a person with 2 copies of celiac genes!

 

D

LauraTX Rising Star

I have mild Raynauds with my lupus.  It seems to be one of the things that improve when I just eat more healthy in general, but I did not notice a difference after going gluten-free.  

frieze Community Regular

hey doc, I was wondering recently, is Raynaud's centrally controlled? ie, breath in cold air, peripheral circ. shuts down?  maybe we should ask Dr H if he sees it in his ataxia patients??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nick-incollege Rookie

yeah, actually! I didn't notice until now, but since going gluten free a year ago, I haven't had my fingers turn white once! which totally never happens, it used to happen like all the time

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,222
    • Most Online (within 30 mins)
      7,748

    Amy E Rubin
    Newest Member
    Amy E Rubin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.