Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

7 Months

w8in4dave

By w8in4dave
in Coping with Celiac Disease

Recommended Posts

w8in4dave Community Regular
w8in4dave
Posted

Ok it has been 7 months since I was Dx'd , My report is that it is going pretty good in fact very good Gluten wise , but I also figured out I am Corn intolerant , around Oct, so 3 months Corn free. Well going Corn Free is alot more of a struggle than gluten-free let me tell ya! but it is doable!But if I get Corn in me it hits me worse than Gluten!  I am still struggling with something , not sure what my problem is yet. I am doing so much better. I have great support from friends and family. And they try so hard. But I really say just let me do it. They want to feed me lol .... I went to a restaurant with a friend I havn't seen since before Christmas. I was telling the waitress I have Celiac and I am also Corn intolerant , my friend right away said, she doesn't have to know your problems. I said, well actually she does, because she can help me figure out what I can and cannot have. And she did. I had to have a plain burger (no bun) and a veggie salad , no dressing. The girl checked every dressing they had and all of them contained corn. Thats why you want to tell your server. :) I am feeling better have some energy back but not enuf. Maby if they can figure out what eles is bothering me, I can feel wayyy better. But untill then I am going to give on a scale of 1-10,  10 being the best 1 the worst, I say most of the time I feel like a 6, once in a while I feel like a 7. So thats the way it's been going. And again I want to thank everyone here. I have gotten some great advice! Great advice!! Thanks everyone!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Congratulations Wendy, your doing great !

 

Remember it sometimes takes over a year to see improvement in our issues.  I remember last summer I had an AHA moment.  My brain felt like it finally started back up.  It was an amazing feeling to have that fog lifted after so so many years.  

 

Keep doing what your doing, your IMPROVING!  :D

 

Colleen

bartfull Rising Star
bartfull
Posted

Yeah, corn makes things so hard! The worst part for me is finding medications and supplements that don't have corn. I DID find a vitamin I can take, FINALLY! (Lifetime Iron-free Soft Gels. They don't say gluten-free, but I called the company and it was your basic CYA statement, so I started taking them and have had no problems.) I have to get my Tylenol made at a compounding pharmacy though. Very expensive.

 

Wendy, have you checked out the Mast Cell Activation Syndrome thread? Even though corn isn't one of the bad guys with that, I think it explains why so many other foods bother me. Of course there isn't much we can do about it except take anti-histamines and I haven't found any anti-histamines that don't contain corn, but at least it has cut down on my worries about why I still don't feel good.

NoGlutenCooties Contributor
NoGlutenCooties
Posted

... I think it explains why so many other foods bother me. Of course there isn't much we can do about it except take anti-histamines and I haven't found any anti-histamines that don't contain corn...

 

If you're open to trying natural remedies, this site explains how some foods act as natural anti-histamines:  Open Original Shared Link

NoGlutenCooties Contributor
NoGlutenCooties
Posted

... I have great support from friends and family. And they try so hard. But I really say just let me do it. They want to feed me lol ....

 

Congratulations on doing so well with the diet and figuring out what works for you and what doesn't!  I can definitely relate to the well-meaning, supportive friends and family who want to help.  That's one thing I'm trying to deal with diplomatically without hurting anyone's feelings.  They don't quite understand that cooking food in a gluten kitchen doesn't mean it will be gluten-free just because the food itself doesn't start out having gluten in it.  I try to explain how easy it is to get cross-contamination but they still think I'm going way overboard and just being overly paranoid.  My sister didn't believe that I could be so sensitive to gluten post-diagnosis given that I didn't have any obvious symptoms before my diagnosis.  Until I got accidentally glutened a couple of weeks ago and the reaction was identical to getting food-poisoning.  She's still skeptical, but I think she's starting to come around.  :)

bartfull Rising Star
bartfull
Posted

If you're open to trying natural remedies, this site explains how some foods act as natural anti-histamines:  Open Original Shared Link

Wow! Thanks SO MUCH! This really confirms that I have MCAS. I had been eating sweet potatoes every single day, usually for both lunch and dinner. I was also eating Udi's chocolate muffins, one a day, for the past three weeks.

 

Well, I am SO SICK OF SWEET POTATOES, so I switched to white rice last week, but still ate a muffin each afternoon. And NOW I am having a psoriasis flare. Looks like the sweet potato was offsetting the chocolate. I'm still so sick of sweet potatoes I can't stand to look at them, but broccoli is on sale this week and if it looks decent (it often doesn't here), I'll be eating that this week. Of course I'm out of muffins right now and don't plan on buying any for a while, but it's nice to know I can eat them once in a while if I balance things with the right veggies.

 

Thanks again. I LOVE this place!!!

1desperateladysaved Proficient
1desperateladysaved
Posted

I am looking forward to some of your 9 days which could lie ahead!  I hope.  I saw some of my vast transitional symptoms at 8 months gluten free, so who knows?

 

All of the best.

 

 

D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

w8n4, are you still keeping a food journal?  i always go back to my tried and true food journal when something has got me trying to figure out what i'm eating that is bugging me. 

 

congratulations on your 7 months!!  :)

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Yeah, corn makes things so hard! The worst part for me is finding medications and supplements that don't have corn. I DID find a vitamin I can take, FINALLY! (Lifetime Iron-free Soft Gels. They don't say gluten-free, but I called the company and it was your basic CYA statement, so I started taking them and have had no problems.) I have to get my Tylenol made at a compounding pharmacy though. Very expensive.

 

Wendy, have you checked out the Mast Cell Activation Syndrome thread? Even though corn isn't one of the bad guys with that, I think it explains why so many other foods bother me. Of course there isn't much we can do about it except take anti-histamines and I haven't found any anti-histamines that don't contain corn, but at least it has cut down on my worries about why I still don't feel good.

No I have not but will :) Antihistamines I quit taking them. Probably why my ears feel so full!! Ughhh

w8in4dave Community Regular
w8in4dave
Posted
  • Author

If you're open to trying natural remedies, this site explains how some foods act as natural anti-histamines:  Open Original Shared Link

Thanks! I have added it to my Favorites :) I will read up on it. Cannot hurt thats for sure.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,887
    • Most Online (within 30 mins)
      7,748
    ple63304
    Newest Member
    ple63304
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm). 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      This topic has come up before on this forum and has been researched. No GMO wheat, barley and rye are commercially available in the USA. Any modifications are from hybridization, not laboratory genetic modification. Better toleration of wheat, barley and rye products in other countries is thought to be due to use of heirloom varieties of these cereal grains as opposed to the hybrids used in the USA which contain much larger amounts of gluten.
    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      Welcome to the forum @Ceekay! If you have celiac disease then you can't eat wheat in other countries because it would still contain gliadin, the harmful part of the grain. Have you been diagnosed with celiac disease?
    • Ceekay
      How Come Gluten Didnt Bother Me In Italy

      By Ceekay · Posted

      I can eat wheat products safely and without discomfort when traveling to Mexico, Outer Mongolia, and Japan. I feel that US wheat, barley, and rye are grown from genetically-modified seeds that have had something unhealthy done to them, that causes a bad reaction in many of us. 
    • Ceekay
      Gluten free beer ?

      By Ceekay · Posted

      I think all barley and barley malt  have gluten. I would avoid it. The only gluten-free beer I've tried that tastes good is by Holidaily, a Colorado brewery. Their Fat Randy's IPA is great, except that it's almost impossible to find and grocers won't order it (they're at the mercy of their "food distributors," who seem to hate Holidaily). If you can find any Holidaily, try it--it's great. Never mind Spain -;)
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.