Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dating Thoughts And Profile Help

powerofpositivethinking

Recommended Posts

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

I've read through a lot of the dating threads on the board and here it goes...ok so i've felt better than I have in a long time and finally decided to start dating again.  A lot of my friends have signed up for Match.com and have had success, so I also signed up for it recently.  I went on a date with a guy this past weekend to a garden, and had a really nice time, had a lot in common with him, but I don't think it's going to go anywhere.  Pre-gluten-free I would have been so upset, but now I'm a lot more realistic.  If it doesn't work, it doesn't work and it's not worth forcing something that isn't there.  It's feels amazing to not have my emotions all over the place :)

 

That being said I almost felt as if I was hiding something on the date.  I'm not defined by celiac, but if you've read a lot of my posts on this board, I have been researching it non-stop this past year.  I almost wish I would have told him I have it, but we didn't have a food related date, so I didn't bring it up.  However it was in my head the whole time, so I might have not always focused on what he was saying and I think I came across as not interested...whoops  :mellow:   I'm still legit terrified to eat in a restaurant since I've been following the gluten-free diet to the absolute best of my ability but my antibody levels are still hovering in the weak positive range, but yet eating out seems to be a common first date.  I don't want the mental feeling of hopelessness to reappear from being glutened.  I do have a PF Changs near me, but I've never eaten there. 

 

Ok those are my thoughts right now, but onto my actual question...currently I put a line in my profile about "I rarely eat out at restaurants due to allergies, and I know it can be a pain, but if you want me to feel good, I'd rather cook at home instead of eating out."  Should I take that out and put something more along the lines of "A good first date is meeting for drinks or coffee, maybe taking a walk and having the chance to talk?" 

 

I've always tended to go for the smart types, so the odds that they've heard of gluten intolerance/celiac should be high, and I want to be honest but not scare guys off.  I'm also a liberal and have some pretty strong opinions :D

 

I've always exceled in things, but this dating stuff always get me :P

 

suggestions/advice is welcomed!!

 

PS-I signed up for glutenfreesingles.com but there aren't very many guys in my area.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

 "I rarely eat out at restaurants due to allergies, and I know it can be a pain

 

I would not start by painting yourself negatively with this line, hon. You make it sound like you are a recluse and a pain in the ass.

LOL

 

....which. I know from reading your posts--you are not!  You're adorable and positive and sweet!

 

Why not say something like what you like to DO...museums, aquariums, walks in the park, movies, skydiving, whatever your thing is?

and if you are a good cook, play that up!  One of the ways I  dazzled my hubs was through my culinary skills and well, my brilliant conversation and ..because I am hot....(I am totally kidding about some of that...)  lol and he is telling me to say "it's all true!"  :lol: 

 

Play up your strengths, kiddo! the celiac convo can come later. A guy who sees you for the catch you are will adapt and who knows? maybe he's G F too. 

 

Skylark (who used be a regular poster on here) once said the best line: "celiac comes with a built-in jerkometer". lol  You'll know right away who sees you for the wonderful person you are ( not the celiac label)

 

Good luck, sweets!! Invite me to the wedding.

SkyBlue4 Apprentice
SkyBlue4
Posted

  I know it can be a pain, but

I agree with IrishHeart. Don't begin with a negative statement like that. I don't think you want to lead with a  "here are my issues" type of introduction.  Just save that for a time when the topic can come up more naturally. As you said, there's always meeting up for coffee.

 

Btw, I used to like dates (when I dated a century ago, lol) where you could do an activity on the date to take the pressure off of keeping the conversation going and yet still engage one another. Things like playing pool, bowling, going to a sporting event, etc. I'm shy so the whole introduce yourself at a table thing always stressed me out anyway. :ph34r:  

eers03 Explorer
eers03
Posted

I would not mention anything about your diet on your profile.  I agree with Irish, play up what you like to do.  If you find yourself going to dinner, go to PF Chang, ask for the gluten free menu and just be casual about it.  If on your date, you act like its a big deal, your date will think its a big deal.  If you act casual, they are more likely to be open minded.  The truth is, there IS plenty you can eat and plenty of places you can eat.  You just don't do McDonalds...

 

Ok, I know I'm completely downplaying this...  We all know its not this simple...  Don't mention it on the profile but if you go to dinner just be casual and matter of fact.  Don't hide from it but don't camp out on the topic either...

 

Thats my take...

cyclinglady Grand Master
cyclinglady
Posted

I hooked the most guys with picnic dates. We would pick a park to hike, go to a museum and then picnic or hang at the beach. Everyone begged for repeat picnics. A cute basket with real plates and glasses, nice blanket, bottle of wine, brownies, chicken salad and whatever takes your imagination!

My husband still requests picnic dates!

Good luck and have fun!

LauraTX Rising Star
LauraTX
Posted

I hooked the most guys with picnic dates. We would pick a park to hike, go to a museum and then picnic or hang at the beach. Everyone begged for repeat picnics. A cute basket with real plates and glasses, nice blanket, bottle of wine, brownies, chicken salad and whatever takes your imagination!

Can you please send an ESP mind message to my husband and tell him to do this? LOL

 

I agree with everyone above and their great ideas..  Putting in how you like to cook for people and taking charge of the food part on first dates until you deem the guy worthy of knowing your secrets is a good plan.  That way you don't waste your time if he turns out to be a bad match.  Also, no better way to try out P.F Changs than with a cute guy (maybe) footing the bill! :)  Call ahead and familiarize yourself with what you want to order before you go so you only have to ask ten questions instead of twenty.

anti-soprano Apprentice
anti-soprano
Posted

Maybe you should try a gluten-free restaurant with a good friend before going out on a date?  For me, the pressure of eating out for the first time combined with a first date would push me over the edge. You get better at asking the right questions as you go (I guess that applies to both restaurants and dates). Best of luck!  Sounds like that Positive Attitude is doing you good in a lot of ways!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

My husband still requests picnic dates!

 

 

Yes, yes, yes to the picnic date! :D

I used to throw some cheeses, crackers or a baguette, some champagne,chicken salad and cookies  in the basket and off we went. 

The lake nearby, a ride in the country taking pictures, etc...that sort of thing!....and fortunately, picnics still work when you're G F!

eers03 Explorer
eers03
Posted

Maybe you should try a gluten-free restaurant with a good friend before going out on a date?  For me, the pressure of eating out for the first time combined with a first date would push me over the edge. You get better at asking the right questions as you go (I guess that applies to both restaurants and dates). Best of luck!  Sounds like that Positive Attitude is doing you good in a lot of ways!!

This is a really good idea.  I wish I could claim it.

IrishHeart Veteran
IrishHeart
Posted

This is a really good idea.  I wish I could claim it.

 

 

:D  me too. Awesome idea doing a "Trial run" first, Anti-soprano!! 

powerofpositivethinking Community Regular
powerofpositivethinking
Posted
  • Author

So I updated my profile to this:  "In my opinion, the best first dates are places where we are able to talk. Meeting for coffee or a drink, going to a museum or taking a walk are my favorites."

 

I didn't see my previous comment of, "I rarely eat out at restaurants due to allergies, and I know it can be a pain," as a negative statement, but it definitely is! I wiped that out, and now it fits with the upbeat vibe in the rest of my About Me section.

 

Today I have a random snow day from work...did not see that one coming. I live about 1/2 hour from where I work, and we hardly got any snow here, so I'm going to take the plunge and try PF Changs today.

 

Anti-soprano, I'm taking your suggestion and going with a friend who also eats gluten-free, so I can ask a bunch of questions and not feel awkward. I'm nervous but excited at the same time. Considering I've only eaten in two restaurants since going gluten free this is a big deal for me.

 

cyclinglady, the picnics are a great idea!! I will definitely keep that in mind for the warmer weather :) 

 

Irish, consider yourself invited, but it may be a few years down the line :)  In my reading through threads I saw that line Skylark used about the celiac built in jerk-o-meter, and had a good laugh!

 

Thank you everyone :wub: 

IrishHeart Veteran
IrishHeart
Posted

 

 

Irish, consider yourself invited, but it may be a few years down the line :)

 

 

okee dokee...I'll be here! :) 

 

Seriously, kiddo....I think you are very wise to give eating out a try. It can be done successfully and once you get a few under your belt, you'll

have more confidence. Don't let this thing confine you or define you. (if somehow, somewhere down the road you get hit by CC, it may be yucky, but it is not the end of the world, I promise you) 

 

Best wishes--and please, update this thread regularly! We want the DEETS!

anti-soprano Apprentice
anti-soprano
Posted

Good Luck today!!  Just FYI- I've been forced to eat out a lot due to business trips and travel.  I have NEVER (knock on wood) been glutened by a restaurant. I like the change you made to your profile too.  It's more fitting of your personality.

 

Also, Congrats on your snow day- favorite day of all teachers!!  I'm on snow day #2 here.  My husband walked to get a paper.....and there was no paper to get!  I don't think anything is open here- so we're hunkered down.     :ph34r: <- This will be me if I go outside today!

KCG91 Enthusiast
KCG91
Posted

Before I was diagnosed with Coeliac myself (or even knew what gluten was!) I started dating a guy with Coeliac. I think our first date was a few drinks and a wander in the park or something - no gluten involved. His celiac disease came up when he explained why he wasn't drinking beer. No biggie. After a few of these dates and maybe the cinema we went for a meal - now, I am veggie, he was gluten-free so it was just fortunate that the only vegetarian restaurant in town offered gluten free food 'before it was cool'. And we never looked back - after those first few dates we found out the stuff we had in common (kayaking, climbing, parties) didn't really involve food in a complicated way. It really wasn't a big deal and it's a cliche but I was much too interested in him and our shared interests to care what I was eating. 

Sadly, after a few months and the full 'head over heels' he turned out to be a total git but that is not Coeliac's fault! :D 

Your dating profile sounds great and remember, celiac disease is a much bigger issue in your mind/to you than it is to any potential dates. Good luck!

IrishHeart Veteran
IrishHeart
Posted

Sadly, after a few months and the full 'head over heels' he turned out to be a total git but that is not Coeliac's fault! :D 

 

 

You're right....I have not been able to find "being a total git" listed anywhere as a celiac symptom. :lol:

 

How ironic that you turned out to have celiac as well, though.  Life is crazy sometimes.

powerofpositivethinking Community Regular
powerofpositivethinking
Posted
  • Author

drum roll please...I didn't get glutened from PF Changs!!!  I ended up getting the Ginger Chicken with Broccoli which was good.  I feel like I did yesterday before going to the restaurant, so I'm taking that as a great sign.  No brain fog, no digestive back up and no joint cracking.  I still don't plan on going out to eat often because it's expensive, and I do actually prefer making my own food.  However, I'm so happy that I can claim that as a safe restaurant, and now if the dinner question comes up, PF Changs it is! 

 

Thank you all for encouraging me to give it a try...more steps in the right direction :)

IrishHeart Veteran
IrishHeart
Posted

drum roll please...I didn't get glutened from PF Changs!!!  

 

happy-dancing.gif  whoohoo!! this news  is awesome .......with awesome sauce!!!!  

KCG91 Enthusiast
KCG91
Posted

You're right....I have not been able to find "being a total git" listed anywhere as a celiac symptom. :lol:

 

How ironic that you turned out to have celiac as well, though.  Life is crazy sometimes.

I know! I'm probably the only person who laughed when they were diagnosed. 

IrishHeart Veteran
IrishHeart
Posted

I know! I'm probably the only person who laughed when they were diagnosed. 

 

I did not actually laugh, exactly, but the irony of it was not lost on me as I had been telling THEM (the docs) I had it for years.

 

Good thing we have good senses of humor, yes??. (or someone was getting strangled.....)  :D

  • 1 month later...
powerofpositivethinking Community Regular
powerofpositivethinking
Posted
  • Author

this has been a looooonnnnnggggg week, but a good one!  Went out with a guy the other night and it was going really well.  After dinner, second time at PF Changs!!, he tried to kiss me but I had to kill the moment and say sorry I can't kiss you because of what you ate, and oh btw I have celiac disease.  Awkward...

 

However he seems to have passed the celiac jerk-o-meter test because I heard from him today, and he told me he called a few restaurants around the area about their gluten-free menus but also said if I wanted to do something else that works for him too.  That made my day  :)

IrishHeart Veteran
IrishHeart
Posted

Well, this is great news, hon! yaay!! :) 

WinterSong Community Regular
WinterSong
Posted

Lots of good advice on here, so I'm just going to add my experience:

 

I met my current (and wonderful and supportive) boyfriend online. I didn't say anything in my profile about my diet because I don't want to be defined by Celiac or stereotyped by the name of a fad diet. I did mention that I love cooking and baking from scratch. I'd meet people for coffee - that's my general rule. That way 1) I wouldn't have to worry about picking a restaurant and 2) if it wasn't going well I could cut the date somewhat short and not feel obligated to stick around for hours on a bad date, lol.

 

I would casually bring up my diet when it came up naturally in conversation. Most guys were actually really accepting of it and wanted to know more about it. I always spoke about my diet in the most positive way. You'd be surprised how many understanding guys there are out there, even ones who know what Celiac is or have a family member/friend who has it.

 

My boyfriend had an old roommate with Celiac so he knew a lot about CC. He realized the issue with kissing on his own and said "Oh! I'll just brush my teeth!"  :)

 

Have confidence in yourself and don't feel like you are hiding anything. Everyone has foods they prefer not to eat and there are SOOO many people out there with other allergies or food intolerance. If a given guy turns out to be rude or unaccepting about it, then you wouldn't want to be with him anyway!  ;)

moosemalibu Collaborator
moosemalibu
Posted

this has been a looooonnnnnggggg week, but a good one!  Went out with a guy the other night and it was going really well.  After dinner, second time at PF Changs!!, he tried to kiss me but I had to kill the moment and say sorry I can't kiss you because of what you ate, and oh btw I have celiac disease.  Awkward...

 

However he seems to have passed the celiac jerk-o-meter test because I heard from him today, and he told me he called a few restaurants around the area about their gluten-free menus but also said if I wanted to do something else that works for him too.  That made my day  :)

 

 

I am so excited for you!! YAY!!

cahill Collaborator
cahill
Posted

You give me hope :)

A friend of mine tried to get me to go onto one of those  online dating  web sites . :blink: not sure how that is going to workout :lol: :lol:

It is hard enough meeting /dating men at my age but add super sensitive celiac :wacko:   I have to say  dating intimidates the begeebees out of me  :ph34r:

IrishHeart Veteran
IrishHeart
Posted

this has been a looooonnnnnggggg week, but a good one!  Went out with a guy the other night and it was going really well.  After dinner, second time at PF Changs!!, he tried to kiss me but I had to kill the moment and say sorry I can't kiss you because of what you ate, and oh btw I have celiac disease.  Awkward...

 

However he seems to have passed the celiac jerk-o-meter test because I heard from him today, and he told me he called a few restaurants around the area about their gluten-free menus but also said if I wanted to do something else that works for him too.  That made my day  :)

 

 

well, come on ,girlfriend...dish!....have you gone out again?? Auntie Irish wants to know....lol

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later. The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied...
    2. knitty kitty
      - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too. I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy). Niacin has been used since the 1950's to improve dermatitis herpetiformis. I try to balance my iodine intake (which will cause flairs...
    3. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt. I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748
    Hidden Peacock
    Newest Member
    Hidden Peacock
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By knitty kitty · Posted

      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.