Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Man I Was Bumbed!

w8in4dave

By w8in4dave
in Coping with Celiac Disease

Recommended Posts

IrishHeart Veteran
IrishHeart
Posted

I guess if I were only interested in celiac (wheat, rye and barley), I would have read the first post in this thread and, seeing it was about corn, not read any farther. But that's just me.

 

Anyway, I'm glad for you that you have no further intolerances. :)

 

and....what I would give to "only" have celiac without "additional intolerances" or other AI diseases and complications.

(which seems to be more the norm than the minority around here)

 

.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


w8in4dave Community Regular
w8in4dave
Posted
  • Author

I know! My sentiments exactly! 

w8in4dave Community Regular
w8in4dave
Posted
  • Author

I completely agree with you about me making any statements concerning what a corn intolerant person may eat. That's not my area of expertise, as it were. And I apologize. I wouldn't have even read that post if it had been in a forum thread devoted to "other insensitivities/intolerances" etc. Corn intolerance is not Celiac Disease. Many believe they are soy, casien/dairy, corn, cheese intolerant. And I'm probably leaving some others out here. It's very unfortunate, and I'm not unsympathetic of them. I just don't have the time and energy to follow everything. I'd rather just focus on Celiac Disease. You know, wheat, barely, and rye.

 

I'm guessing, and I'll defer to you on this, that as with Celiacs, there's a wide range in degree of corn intolerance. Some Celiacs, I'd say most, can eat foods that don't contain any listed gluten ingredients. And others are so sensitive that they must take exteme measures to avoid any possible exposure, no matter how infinitesimally small and unlikely that may be.  

 

Because of my ignorance of corn intolerance, I took one look at Velveeta's ingredients and didn't see any obvious corn.  And then when I looked up the three were discussing, I still didn't see any actual corn in the finished products. Just because a culture is grown on a medium, doesn't necessarily mean there's any of that medium left in the finished product. For instance, from those same sources, it states that even when Maltodextrin is derived from wheat, no wheat protein is left in the finished product. 

 

But I digress from the business at hand. And that's me getting out of the corn business. 

 

Again, please accept my sincere apologies. I promise to butt out of any corn business from now on.

 

best regards, larry mac 

Certainly did not mean to cause a ruckus, I think this is all a learning experience to us all. I do have Celiac, I do have corn intolerance , I did not say hubbs used Velveeta he used some off the wall brand. I am so sorry If I offended anyone by posting this. Will try and stay on topic of Celiac. 

IrishHeart Veteran
IrishHeart
Posted

Certainly did not mean to cause a ruckus, I think this is all a learning experience to us all. I do have Celiac, I do have corn intolerance , I did not say hubbs used Velveeta he used some off the wall brand. I am so sorry If I offended anyone by posting this. Will try and stay on topic of Celiac. 

But hon, you ARE on topic. You did not offend anyone.

Do not let one person's comment cause you to feel as if you did something wrong.

If the moderators of the board did not move it out of the coping section, then we feel it's a coping issue.

You're still new at this and you were telling us how you coped with yet another new hurdle.

Am I right?

 

Please, do not give it another thought!

You got supportive replies and that's the whole point.

 

All's well that ends well. ;)

w8in4dave Community Regular
w8in4dave
Posted
  • Author

OK :) To stay on topic. I will now say being corn intolerant and Celiac and Lactose intolerant. I am considering the Paleo diet. I call them Doits :)Not Diets.  I am so tired of looking at labels and trying to figure out what is Corn and what is not.I am no scientist.  I think it will be easier for me to just not eat processed. I think all I have to give up besides processed is Rice & Potatoes , Ohhh and Beans ...I had a beginners Paleo book need to look it up. Beans and Rice <- my fav! Soooo hmmm .... Maby Monday will be my day? Eat the rest of the rice I cooked yesterday, maby have Beans and Rice for the last time :) but I have got to do something. Maby this is the way to go? This processed cheeses and Processed Cream of soups and proccessed chips and processed processed processed.... Sick of reading labels and having reactions. I know we read it here all the time. Sick and tired of being sick and tired! I have got to do something. This will be my next thing. 

 

TY IrishHeart I will try and keep that in mind. Cannot imagine being miss DX'd for 25 years! 

GF Lover Rising Star
GF Lover
Posted

Wendy,

 

Why not consider just dropping all processed foods for now.  You don't know that rice and beans are a problem for you.  Many of us can't eat a lot of processed foods. I get some cookies once in a blue moon but I try to keep it all one ingredient food choices.  This is much easier to do than cutting out items that you don't know if you have a problem with or not.  It is also much healthier. Do this for a good 2 months and see how you do.  You can address a possible additional intolerance at that point if your still having problems.  I know others may say to limit everything now and add back in but the corn in processed food seems to be your problem.  

 

Colleen

w8in4dave Community Regular
w8in4dave
Posted
  • Author

TY Colleen, 

 That may be easier than going on Paleo, And for 2 months sure is doable! I do know corn is a problem for me , there is no question about that. I was cooking last night and was reading ingredients and looked up and sure enuf something was corn derived so I ended out just having Chicken. Thats when it hit me about the processed stuff. For some reason it just struck me as Paleo. But I guess you have a good point. I LOve Beans and Rice :) I wouldn't have to give them up :) 2 months thats a deal! See what happens. If I am still suffering from "Something" then I will take rice away. Only because I eat more rice than beans and potatoes. for 2 months. If still problems I will cut out Potatoes. But I have a feeling just cutting out Processed will do ALOT! Thanks! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

I agree with Colleen. Before you go all caveman, ditch anything from a package. Use my 5 ingredient rule: If the label has more than 5 ingredients (and I cannot pronounce half of them and even my chemist hub shakes his head and makes that face like "er, that's not food, that's just chemicals")  LOL

then, I don't eat them 

 

And for what it's worth, I have been on a primal diet for 7 weeks,....it's not horrid, but let's just say....... I still drink vodka.  :lol: 

 

Keep your rice and beans if you can!  ;) 

GottaSki Mentor
GottaSki
Posted

I agree with Colleen and Irish....ditch everything processed before removing other foods.

w8in4dave Community Regular
w8in4dave
Posted
  • Author

TY I think thats exactly what I am going to do :) I like to take the advise of the ones who have been there done that. As of today I am no processed foods :) for 2 months and see where that gets me :) I appreciate all the help in this :) 

GF Lover Rising Star
GF Lover
Posted

Wendy,

 

Glad to hear you are giving it a shot.  You have learned so much already and the corn intolerance is very difficult to deal with (just ask Barty) and so many processed foods have corn deriviitives.  I'm not eating anything processed right now either (different reason) so we can do this together  :)

 

Colleen

bartfull Rising Star
bartfull
Posted

Yeah, I'm still eating some processed foods. I went without them for a long time and when I finally found gluten-free/corn-free ice cream and gluten-free/corn-free potato chips, I jumped on them.

 

As a matter of fact, I found a new (to me) brand of potato chips the other day. The health food store was out of Kettle Brand but they had Boulder Canyon Olive Oil chips. Now, I love Kettle Brand but they are incredibly greasy. I mean if you tip the empty bag the greas will actually drip out! These Boulder Canyon chips are not as greasy and even if they were, we all know olive oil is good for us. So yeah, I'm still getting the salt and the calories, but I don't feel quite so guilty. And they are yummy. :)

w8in4dave Community Regular
w8in4dave
Posted
  • Author

It's a deal Colleen :) 

 

Bartful I do have some chips I like , They are "Better Made" made with cotton seed oil/ Palm oil and sea salt. I will miss them for a while but Ohhh well! I will get over it for two months. At least it's not in the middle of summer where there are partys all the time. This is a good time to do this. 

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Ohh no I just read where Cotton Seed oil is not good for Celiacs Pfftt!

KCG91 Enthusiast
KCG91
Posted

I agree with Colleen. Before you go all caveman, ditch anything from a package. Use my 5 ingredient rule: If the label has more than 5 ingredients (and I cannot pronounce half of them and even my chemist hub shakes his head and makes that face like "er, that's not food, that's just chemicals")  LOL

then, I don't eat them 

 

And for what it's worth, I have been on a primal diet for 7 weeks,....it's not horrid, but let's just say....... I still drink vodka.  :lol: 

 

Keep your rice and beans if you can!  ;) 

Yesss the five ingredient rule looks like something I can do! I had a week of rehearsals, performances and late nights which meant living mostly on the only packet of crisps in the vending machine I knew were gluten-free. And now I have flu for the first time in five months. I think my body would appreciate the five ingredient rule... 

w8in4dave Community Regular
w8in4dave
Posted
  • Author

Yesss the five ingredient rule looks like something I can do! I had a week of rehearsals, performances and late nights which meant living mostly on the only packet of crisps in the vending machine I knew were gluten-free. And now I have flu for the first time in five months. I think my body would appreciate the five ingredient rule... 

Do it KC :) 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    3. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    5. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,337
    • Most Online (within 30 mins)
      7,748
    Susan1001
    Newest Member
    Susan1001
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.