Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waiting For Reaction.


Googles

Recommended Posts

Googles Community Regular

I'm waiting to get sick. I accidentily ate something with gluten tonight. I forgot to check. The full size candy was gluten free, but not the minis. So Ii guess I will be able to check my exact reaction time. I hate gluten!!!!!!!!!!! I was so exhausted when this happened and it is just going to get  worse before it gets better. Anything I should do between now and then to make this better?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

You know..... Unless the minis said they contain gluten.....I wouldn't spend my time worrying and making myself sick. Just because a company won't say something is gluten-free, doesn't mean it has gluten. It just means they ran it by a lawyer.

Googles Community Regular

Yes I wish it was just me worrying over nothing. When it tasted weird I checked the label. It said it had wheat. I forgot the first rule always check the label. I was half asleep and still had 2 more hours of work. I didn't realize these went the regular size until I started eating them. Please don't yell at me. I am kicking myself enough already.

kareng Grand Master

Drink some water and go to bed. If you have a reaction...then you will. just sitting around waiting for it and worrying , makes it worse. If it wakes you up in a few hours, well.... At least you got a couple of hours of sleep.

ravenwoodglass Mentor

Sorry this happened to you. I hope it isn't too painful of a lesson. I don't know what your reactions are so it is hard to say what might help. If you get stomach pain maybe keep some Pepto liquid on hand. If your symptoms include muscle or joint pain try an anti-inflammatory like Aleve or asprin or whatever you usually take. Bengay or Tiger Balm might help with that too. Keep some Immodium on you in case D hits at an inconvient time. I say this even though if at all possible you don't want to take something that is going to stop the D unless you really have to be out and about. Unfortunately there isn't much you can do to stop the antibody attack. The most you can do is try to relieve the symptoms.

Your reaction could take up to a week to appear, although most that react see the reaction sooner. You may luck out and not have much of a reaction at all. I'll keep my fingers crossed for that outcome.

1desperateladysaved Proficient

I hope you can take some down time if and when it hits.  I felt this same dread a couple of days ago and thankfully it didn't hit!  Keep on reading labels!  You will be on the mend again soon.

 

D

kareng Grand Master

What candy was this?  Just want to avoid it myself.  I haven't found a difference in the ingredients between most full size and smaller sized candy bars.  But I have noticed the little tiny ones, that aren't really bars, - more of a round thingy, seem to have different ingredients.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Drink some water and go to bed. If you have a reaction...then you will. just sitting around waiting for it and worrying , makes it worse. If it wakes you up in a few hours, well.... At least you got a couple of hours of sleep.

I hope you followed this advice because it's really all you can do. Hope you are okay this morning.

 

Worrying always makes things worse in my experience (about anything in life) and the anticipation of 'what may occur" is often a useless waste of energy.

 

So what candy are we talking about...so we can all know, just in case?

Googles Community Regular

It was mini rollos. I was half asleep and didn't realize they were mini until after I started eating them. Thanks for all your help.

kareng Grand Master

It was mini rollos. I was half asleep and didn't realize they were mini until after I started eating them. Thanks for all your help.

The good news is, there is a good chance there was no gluten in them. If there is, it will be very very very small amount.

Ingredients

Ingredients: Sugar, Glucose-Fructose (from wheat and/or corn), Milk ingredients, Cocoa Butter, Unsweetened Chocolate, Modified Palm and Palm Kernel Oil, Lactose, Soya Lecithin, Polyglycerol Polyricinoleate, Salt, Artificial Flavor, Sodium Carbonate.

CONTAINS: MILK INGREDIENTS

Made on equipment that also processes Wheat.

I wouldn't eat them but, glucose fructose is so highly processed that it is unlikely to have any gluten in it. Machines are cleaned. The possible gluten hit is very low and may not even happen.

Googles Community Regular

I am outside my regular reaction  time. So I'm going to assume that the processing got rid of the gluten. The bag that I had only said that the syrup was made from wheat (didn't give corn as an option.) But I feel like I got safe by  the skin of my teeth. A good reminder to always check labels.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.