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Buzzfeed List-19 Things Only People With celiac disease/ncgi Will Understand

powerofpositivethinking

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powerofpositivethinking Community Regular
powerofpositivethinking
Posted

so I love a good BuzzFeed list every now and then, and I just had to share this one.  I especially agree with #19  :)

 

 

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IrishHeart Veteran
IrishHeart
Posted

Love that and I love this

 

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and this girl's blog too

 

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cahill Collaborator
cahill
Posted

That is so cute  :lol: :lol:

nvsmom Community Regular
nvsmom
Posted

LOL   :lol:  :lol:

powerofpositivethinking Community Regular
powerofpositivethinking
Posted
  • Author

that blog is great!  especially the picture the that says "When someone apologizes for eating gluten in my presence" with the "I don't care" in the below picture.  I know family and friends think they're being helpful when they make that apology, but really I want to unleash and tell them I really don't care that I'm not able to eat that because then I would have to deal with constipation, bloating, anxiety, depression, etc.  I imagine their faces if I were to actually say that and then have a good laugh  :)

BlessedMommy Rising Star
BlessedMommy
Posted

Yeah, people don't really get the fact that I don't care if they eat gluten in front of me. I don't care to be "normal," I'll eat the food that gives me the best chance of living to see my kids grow up. LOL!
 

IrishHeart Veteran
IrishHeart
Posted

meh......we are the "new normal" anyway. :D

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sarahdea Rookie
sarahdea
Posted

Wait. Nutella is gluten-free? Excuse me while I go to the grocery store then sit in the corner and eat it all like the crack that is is. :)

  • 1 month later...
powerofpositivethinking Community Regular
powerofpositivethinking
Posted
  • Author

here's another good one  :)

 

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NoGlutenCooties Contributor
NoGlutenCooties
Posted

Too funny...  I did the out loud, "oh my god!" the first time I spied the gluten-free pretzels... and again when I discovered that after 5 months of eating absolutely no bread or pasta, the Schar Ciabatta rolls are actually pretty awesome.  Yes, they are $5 for 4 rolls... but they're still awesome... :)

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  • Posts

    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
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