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New- Just Got A Diagnosis

ashleyld

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ashleyld Rookie
ashleyld
Posted

Hi, i just got the phone call yesterday from my daughters Ped Gi. all her blood tests point to Celiac disease. next step is an endoscopy. I guess i just need to know we are not alone and changing my entire families life wont be horrible. 

thanks for your help and words of encouragement.

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ashleyld Rookie
ashleyld
Posted
  • Author

also should i be letting her play with playdoh? She doesnt eat it.. but could it hurt her?

kareng Grand Master
kareng
Posted

also should i be letting her play with playdoh? She doesnt eat it.. but could it hurt her?

 

 

She needs to keep eating gluten until all her testing is finished (including the endo).  I wouldn't use Playdoh because it gets under your nails and all over.  Too easy to accidentally get some on my mouth.  There are gluten-free brands.

ashleyld Rookie
ashleyld
Posted
  • Author

She needs to keep eating gluten until all her testing is finished (including the endo).  I wouldn't use Playdoh because it gets under your nails and all over.  Too easy to accidentally get some on my mouth.  There are gluten-free brands.

Thank you! I didnt realize there were gluten free brands! I will keep a look out. Her favorite thing in the world right now is playdoh. I dont know how i could take that away!

mamaw Community Regular
mamaw
Posted

aroma dough is gluten-free;;;;;; soy  yer dough  (modeling clay)  is gluten-free....

There  are  many others....

The adventures  of a gluten free  mom blog  has  a  review of  gluten-free  play doughs.... I tried to  copy & paste  but  it  wouldn't let me....

 

If  she  is  school age  please  make contact  with  the  school in regards  to  celiac....

 

Keep  her  eating  gluten until all testing  is  complete......

nvsmom Community Regular
nvsmom
Posted

Welcome to the board.  :)

 

Don't forget to get the rest of the family tested as celiac disease tends to run in families. If everyone tests negative, and they continue to eat gluten, they should be retested every couple of years or as soon as symptoms appear.

 

Good luck with the endoscopy.  Make sure they take at least 6 biopsy samples.

Cara in Boston Enthusiast
Cara in Boston
Posted

Any change is hard until you get the hang of it.  We have been gluten-free for almost three years now and it is like second nature.  I do recall, in the first few weeks, we were eating tacos about 3 times a week because I didn't think I could come up with any gluten-free meal ideas.  Seems silly now.

 

You, your husband, and your other children need to be tested as well - even if you don't have any symptoms.

 

See if there is a Celiac Support Group in your area.  Ours was wonderful and sent my son a big box of gluten-free treats to "welcome" him.  He felt very special.

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ashleyld Rookie
ashleyld
Posted
  • Author

Thank you guys! Yesterday i had the worst anxiety about all this. But i feel better now. 

I know i need to keep her eating gluten until after the test. I am going to get at least myself and my middle daughter tested, but for the ease of it.. it will be my entire on the diet. its too hard to single out one person.

Thank you for the blog, im going to go google that now, and i am going to see if there is a group around here! Thanks!

frieze Community Regular
frieze
Posted

if you take your entire family gluten free you are lowering the window on testing.  get every one tested now.

ashleyld Rookie
ashleyld
Posted
  • Author

if you take your entire family gluten free you are lowering the window on testing.  get every one tested now.

I have to wait until after she gets the endoscopy before i get remove gluten. I will Def get myself and my middle daughter's blood drawn before the gluten is out. :D

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