Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Facial Swelling After Glutened


annajazz

Recommended Posts

annajazz Rookie

Just seeing if I'm alone in this.

 

After an accidental gluten ingestion, my face, mainly my cheeks, really bloat. It is to the point that I look like a different person/have gained 20lbs.

I'm just wondering if this is true for anyone else out there? If so, any good remedies besides waiting?

Also when I get glutened, I have rosacea like outbreaks. All of this bloading/rosacea out breaks will last for almost a week after. 

 

I have been doing very well after finding out I am  Celiac, but accidents happen to use relative newbies (about 1 year since diagnosis) .

 

Thanks!

 

-anna

 

Exp.

 

Day 2 after glutened:

Open Original Shared Link

 

 

 

About a week or so after

http://i589.photobucket.com/albums/ss336/starjazz2009/1396291045628.webp

 

 

 

 

 

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BlessedMommy Rising Star

I don't get that symptom if I'm accidentally cross contaminated, but with large amounts of gluten, yes. When I did my gluten challenge, someone commented that it looked like I got punched in the face.

annajazz Rookie

I don't get that symptom if I'm accidentally cross contaminated, but with large amounts of gluten, yes. When I did my gluten challenge, someone commented that it looked like I got punched in the face.

 

Oh my, I would have to say that that is a pretty good description of what I can look like at times.

But for me, it is even cross contamination it seems. 

GF Lover Rising Star

The only time my face has swelled (the whole face) was when I was having an allergic reaction to a new medication.  Have you bought any completely new that your using.  When you were eating gluten did you face swell like that?  It seems more of a reaction to something then a gluten thing.

 

Colleen

annajazz Rookie

The only time my face has swelled (the whole face) was when I was having an allergic reaction to a new medication.  Have you bought any completely new that your using.  When you were eating gluten did you face swell like that?  It seems more of a reaction to something then a gluten thing.

 

Colleen

 

Nothing new that I can think of. (I'll probably start keeping a journal again to make sure)

I have been thinking it is gluten, because it(the swelling), feeling very lethargic, and a sharp headache are what I have contributed to how I feel if I get glutened. (Outside of that, I'm told I'm a pretty silent celiac). 

 

My face used to basically always look swollen until after I stopped gluten, but it makes me wonder if I may be allergic to something as sometimes it will happen outside of gluten ( I think).

 

I've had an allergy panel done, and that came out negative recently to about 40ish known allergens. So idk.  

 

You think it may be something else? 

1desperateladysaved Proficient

I notice puffiness under my eyes.  My health practitioner has pointed out that it is system wide reaction.  She saw swelling all of the way up my legs to my neck.  Sometimes, I am told by friends that my face looks puffy.  The shoe sales person told me that my feet swell up and down.  I have been told mine has to do with my lymph system, so you may want to look into the lymph system.  I am working on trampoline to move my lymph and avoiding foods I don't tolerate while still making my diet as varied as possible.

 

Dee

Jmg Mentor

Yes I get a swollen look on my face. I can see the difference between me now and photos from when I was eating gluten, so can friends and family. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Nothing new that I can think of. (I'll probably start keeping a journal again to make sure)

I have been thinking it is gluten, because it(the swelling), feeling very lethargic, and a sharp headache are what I have contributed to how I feel if I get glutened. (Outside of that, I'm told I'm a pretty silent celiac). 

 

My face used to basically always look swollen until after I stopped gluten, but it makes me wonder if I may be allergic to something as sometimes it will happen outside of gluten ( I think).

 

I've had an allergy panel done, and that came out negative recently to about 40ish known allergens. So idk.  

 

You think it may be something else? 

 

Are you eating anything with un-certified oats?  Any new products your put on your face?  Do you think you might be getting some gluten or cross contamination?  Are you eating out?  Do you have a shared kitchen?

 

Since it stopped after eating gluten, my guess is your still getting some.  Have you checked medication and suppliments?

 

Colleen

cyclinglady Grand Master

Rosacea and swelling go hand in hand for me. My face is completely clear unless I eat the foods that trigger it. In my case, red wine is big trigger. Within minutes I get itchy and then a red bump will appear and it will turn into a tiny pustule, but it is not a pimple. My skin under the itchy rash area will actually raise and swell. Mostly affects my chin and between my eyes. Takes about a week to clear.

Gluten never affected my skin, but that is just me. But since you are still relatively new to being gluten free, I would check as the others have suggested for exposure.

dilettantesteph Collaborator

My son gets lip swelling sometimes that seems to coincide with accidental gluten consumption.  They kept us overnight in the ER for it one time.  He didn't respond to their treatment, but it didn't get any worse so they finally let us go.  It went down slowly after that.  He was tested for hereditary angioedema, Open Original Shared Link, since my father gets this too, but he tested negative.  More information on that can be found at haea dot org.  The volunteer there was really helpful.  This says that it can happen with autoimmune disorders: Open Original Shared Link so it may just be part of the gluten reaction.  It can be quite scary as it gets larger and larger.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    4. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    5. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.