Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Potlucks


BlessedMommy

Recommended Posts

BlessedMommy Rising Star

You know, something recently occurred to me. If I got to a celiac potluck, should I even eat the food there? Or should I find out what the celiac's practices are who cooked it? There are many celiacs who will do stuff like discard the bun and eat the burger. I also don't really know if they cleaned their house out and got rid of old pans and utensils after getting dx'ed. What would you/do you do? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

I  think  you  know who  you should trust  & who not to... But  asking  is  okay  but  can cause  hard  feelings  esp if  its an old time  celiac!!!!   But  ask  anyway...  I  run a  support  group & whenever  anyone  brings  in gluten-free  food  I  tell them they have to  bring in the  ingredients to  share   &  I  have a  disclaimer  ... everyone  eats  at  their own  risk, everyone  must police  themselves  & parents  are in charge  of  the kids.... it's  a  chance  some  take  & others  don't...

Now  if  it is  someone  who  is not  celiac , I would question  everything......

I feel  people  you know  who may invite you  for a gluten-free  social , you would  probably know  them personally  so  you  could  easily  judge  whether  you would  eat  the gluten-free  food... ie: a  celiac  who you knows  cheats  or  doesn't  care  about CC... or  who  eats out  &  like  you  said  doesn't  care if  they have to remove  the bun....I  would  never  eat  at  their  house!!!!

 

I know  celiac  people who have been dx'd  over twenty  years  & don't  get  the CC  issue...they eat  spelt  saying it  doesn't  bother them....spelt  is  wheat..... so  I NEVER go there... they actually got angry at me  for  showing them  evidence  that  spelt  was a member of the wheat  family....now  they  want  nothing to do with me... You know  shoot the messenger

Adalaide Mentor

The local GIG group here does a potluck in the park every August. I haven't gone yet. I also backed out of the Christmas cookie thing at the last minute. I know in theory everything should be safe, but who knows what those people are doing? Frankly, if someone lived like I have up until now I wouldn't eat anything they make. I trust me to make safe food in a shared kitchen but I wouldn't trust a single other person to do it without knowing them super well, and I just don't know any of them well enough to trust them. Even if I did, trust is a luxury I simply can't afford. Grilling them would just make them mad, and not eating would be awkward so I just skip it. But... that's just me. I'm not saying that people can't/shouldn't go and enjoy. I'm OCD so that plays a part in my feelings about things.

KCG91 Enthusiast

Hmmm, tricky. My ex (I wasn't diagnosed, he'd been diagnosed as a kid) has coeliac and his kitchen was shared but absolutely everything was separate, textbook. I'd definitely eat there. But the guy drinks regular beer and thinks that's OK... I'd always ask (if it's a coeliac potluck organised by a group, maybe they could have some guidelines that everyone adheres to if they want to contribute?)

Nikki2777 Community Regular

I can't imagine a Celiac tossing the bun off a burger and eating it.  You've seen someone actually diagnosed doing that?   For me, I'd probably trust it if I knew these people were true Celiacs and not just gluten-free for the diet.  But it's always safer to bring your own.  If you are nervous and don't want to say anything, just bring your own dish, serve yourself first and then don't eat anything else (or seconds).

BlessedMommy Rising Star

Believe it or not, some DX'ed celiacs are pretty lax. I went to a food sampling once and someone announced that the gluten free people could go through first so that they could get the condiments before they got contaminated. The other gluten free person (who was a biopsy proven celiac) said, "No I don't have to do that, I'm not THAT sensitive."  :ph34r:

Adalaide Mentor

I can't imagine a Celiac tossing the bun off a burger and eating it.  You've seen someone actually diagnosed doing that?   For me, I'd probably trust it if I knew these people were true Celiacs and not just gluten-free for the diet.  But it's always safer to bring your own.  If you are nervous and don't want to say anything, just bring your own dish, serve yourself first and then don't eat anything else (or seconds).

 

Seen dx celiacs post here about taking burgers off buns, meat/veggies off sandwiches. I've talked to one (in person) who I had to explain to about regular Rice Krispies. The beer thing comes up all the time. What if someone uses regular Rice Krispies and doesn't know? What if someone makes a dish with Omission beer in it, or even regular beer because they think that's fine.? (I wouldn't eat that under any circumstances.) What if someone has a shared kitchen with lax rules, like sharing wooden spoons and not washing cutting boards or surfaces?

 

Asking every person there to explain exactly what is in every dish and how they keep their kitchen safe is absurd at a potluck. There are simply too many people. I'm sure there are many there who will eat, enjoy and be perfectly healthy. I would be sick to death from the stress over it all. I have never taken meds for my OCD, because I control my anxiety by controlling my environment and my actions. That is why I would never risk my health for a potluck with a group of celiacs I don't know super duper well.

 

Now... with a some of you guys at Irish's new house? When was that party scheduled again?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,647
    • Most Online (within 30 mins)
      7,748

    Julie 911
    Newest Member
    Julie 911
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.