Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Little Bit Confused...

Georgia-guy

Recommended Posts

Georgia-guy Enthusiast
Georgia-guy
Posted
  • Author

Oh yeah, the A1C came back normal. :-/

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Oh yeah, the A1C came back normal. :-/

A test for diabetes? Would be happy that came back normal. Not sure why this person with a 1 year degree is telling you you need to have diabetes before you should be tested for Celiac? Or is it some other test?

nvsmom Community Regular
nvsmom
Posted

Oh yeah, the A1C came back normal. :-/

I'm glad your A1C came back normal. When it's elevated, it indicates a blood sugar problem - diabetes. You really don't want that. 

 

I hope you are able to get the celiac disease tests done. Good luck!

Georgia-guy Enthusiast
Georgia-guy
Posted
  • Author

Karen, my health insurance is deciding that because there is no family history of celiac, it's impossible for me to have celiac, so that are not going to pay for the blood work or the scope. The A1C came back right in the middle of the normal range (which I am happy about) but if it had come back on either end of normal, the insurance had said (to me and the doc office) that they would pay for the celiac testing (what the correlation is idk). But if I can't get the insurance to approve the tests, it's gonna cost me about $1,000 to get the blood work and scope done. The insurance for some reason thinks they can play games because I come off the policy in September (my birthday).

cyclinglady Grand Master
cyclinglady
Posted

What is normal? A normal a1c is between 4 and 5.6%. Remember the Ha1c is just an average of over 3 months and does not track spikes. Spikes cause diabetic complications. The Ha1c is just one of the tests to help diagnose diabetes and it is relatively new (and cheap). You probably need a Oral Glucose Tolerance test. If your insurance will not pay, you can test at home with a cheap meter. Here is a link to how to test yourself if you are interested:

Open Original Shared Link

You had a random blood sugar of over 170. The ER doc/discharge instructions recommended more glucose testing. Normal people do not go over 140 no matter how much sugar or waffles they consume!

Regarding the celiac disease test. Ask how much it is to pay out of pocket. I think the cost is about $400, but labs vary and are usually willing to negotiate a cash discount. Think about it.....how much are you paying for that smart phone? Got an iPad? Nice TV? How much is it worth to feel well?

Gluten free food for thought!

cyclinglady Grand Master
cyclinglady
Posted

Oh! Correlation between celiac and diabetes is a shared gene. Not all diabetics (type 1) get celiac disease (approx. 10%) and not all celiacs develop type 1 diabetes. Both are autoimmune disorders. That is why so many of us have diabetes type 1, thyroiditis, RA, lupus, etc. which are all autoimmune disorders.

Your insurance would be more willing to pay if you already had at least one autoimmune disorder or documented illnesses like anemia, osteoporosis, etc. that often go hand-in-hand with celiac disease.

Correct me if I am wrong about stats etc., gang! I am getting tired!

nvsmom Community Regular
nvsmom
Posted

That sounds right to me.  :)

 

I missed that your blood glucose spiked up to 170... that's not good. It sounds like you could be wading into type 2 diabetes or prediabetes. A glucometre might be a good investment to make just so you can check if that was unusual.

 

Type 2 diabetes is not linked to celiac disease - as far as I know.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Georgia-guy Enthusiast
Georgia-guy
Posted
  • Author

Haha. I was misinformed by the assistant at the doc office. I pulled up the blood work online (patient portal is awesome, the doc doesn't even know when I check up on things) and my A1C came back at 5.3, range for diabetes is........5.7-6.4. That doesn't seem like it's the middle of normal to me.

As for the comment about the smart phone, TV, etc: I pay $50 a month for my phone service cuz I have to have calling, texting, and data for work. My tv is from the 1990's. I'm just starting to recover financially from my ex screwing me over when she got tired of me going to the doc too much when I "didn't look sick" (lesson learned there). It is funny you mention SLE because I have had several docs run an ANA test (can't tember numbers, but those did come back normal).

Georgia-guy Enthusiast
Georgia-guy
Posted
  • Author

Below is a link to a site I found for a lab work place in Atlanta that offers celiac testing without a doctor's orders. Can someone tell me which of the tests listed I would need to get done?

Open Original Shared Link

nvsmom Community Regular
nvsmom
Posted

Below is a link to a site I found for a lab work place in Atlanta that offers celiac testing without a doctor's orders. Can someone tell me which of the tests listed I would need to get done?

Open Original Shared Link

The Celiac Disease Complete Panel (second test) looks the best to me. Really all it is missing is the EMA IgA, and that one is rarely positive if the tTG IgA is not.

 

Good luck.

Maggie07 Newbie
Maggie07
Posted

Hi I'm new here. I'm not diagnosed but the symptoms I have make me wonder more and more. The past 5 months have been hell on my health. I am hypothyroid but don't gain weight, I lose it. The skin issues:burning, itching, scratching on my legs and hands make me want to cry. I have been complaining for months about the tiredness, foggy-brain, and upset stomach/gut. We did B12 shots, checked the thyroid and my GP ran all the ususal bloodtests and everything showed up normal, aside from low iron. I had allergy-testing redone after two sudden reactions; with nothing new to add to my allergies. Went back to my GP because my lymphnodes are swollen and sore. Still nothing.  I started seeing a Naturopathic doctor who ordered IGG/IGE testing not covered by OHIP or my insurance, which I had done today. Before the tests I went on a vegan diet- I was starting to feel better; but this past weekend I had to eat a wide variety of foods (IE> everything) before the IGG/IGE bloodwork. I feel horrible today: bloating, cramping, upset stomach, nausea, my joints are sore and I can hardly concentrate to type this.

What do I need to get my doctor to do? He's scheduled me with a dermatologist next week about my skin.

 I am so frustrated, exhausted and depressed. It's affecting my work and home life to the point i'm considering stress-leave.

Georgia-guy Enthusiast
Georgia-guy
Posted
  • Author

...I am hypothyroid but don't gain weight, I lose it. The skin issues:burning, itching, scratching on my legs and hands make me want to cry. I have been complaining for months about the tiredness, foggy-brain, and upset stomach/gut. We did B12 shots, checked the thyroid and my GP ran all the ususal bloodtests and everything showed up normal, aside from low iron...

Went back to my GP because my lymphnodes are swollen and sore. Still nothing...

Before the tests I went on a vegan diet- I was starting to feel better

but this past weekend I had to eat a wide variety of foods (IE> everything) before the IGG/IGE bloodwork. I feel horrible today: bloating, cramping, upset stomach, nausea, my joints are sore and I can hardly concentrate to type this.

What do I need to get my doctor to do? He's scheduled me with a dermatologist next week about my skin.

I am so frustrated, exhausted and depressed. It's affecting my work and home life to the point i'm considering stress-leave.

Maggie, welcome! I am fairly new as well, and have been having issues as far back as I can remember. From what I've read reading about celiac (someone please correct me if I'm wrong) thyroid and nutrient deficiency problems are often connected to celiac, in particular on nutrients is low iron. Pretty much all the symptoms you list are things I have found connected to celiac. Here is a link to the University of chicago's celiac website showing the 300+ symptoms that can be associated with celiac:

Open Original Shared Link

I do not have in front of me a list of the tests that are recommended (nvsmom, can you provide that?). But I will say, you mentioned you started a vegan diet...keeping gluten in your diet until testing is complete (results back in and diagnosis made) is vital. If a doctor tells you that you can stop eating gluten and get tested, tell them to do some research. The celiac tests look for your body's reaction to gluten, just like if a car cuts you off, you're gonna hit the brakes, but if there is no car cutting you off, there is no hitting the brakes reaction.

(As a side not, I noticed 07 in your name, is that referencing the year 2007? I ask because that's the year I graduated high school.)

Georgia-guy Enthusiast
Georgia-guy
Posted
  • Author

The Celiac Disease Complete Panel (second test) looks the best to me. Really all it is missing is the EMA IgA, and that one is rarely positive if the tTG IgA is not.

Good luck.

If I were to just get one or two of those tests done, then bring results to the doc to do the full panel at my insutance's expense, which one or two would be the best (most likely to provide an accurate positive)
Georgia-guy Enthusiast
Georgia-guy
Posted
  • Author

The Celiac Disease Complete Panel (second test) looks the best to me. Really all it is missing is the EMA IgA, and that one is rarely positive if the tTG IgA is not.

Good luck.

If I were to just get one or two of those tests done, then bring results to the doc to do the full panel at my insutance's expense, which one or two would be the best (most likely to provide an accurate positive)?
BlessedMommy Rising Star
BlessedMommy
Posted

That site looks great! I might eventually order the nutrient test. Looks like they use labs all over the U.S. Thanks for sharing the link!

Maggie07 Newbie
Maggie07
Posted

Maggie, welcome! I am fairly new as well, and have been having issues as far back as I can remember. From what I've read reading about celiac (someone please correct me if I'm wrong) thyroid and nutrient deficiency problems are often connected to celiac, in particular on nutrients is low iron. Pretty much all the symptoms you list are things I have found connected to celiac. Here is a link to the University of chicago's celiac website showing the 300+ symptoms that can be associated with celiac:

Open Original Shared Link

I do not have in front of me a list of the tests that are recommended (nvsmom, can you provide that?). But I will say, you mentioned you started a vegan diet...keeping gluten in your diet until testing is complete (results back in and diagnosis made) is vital. If a doctor tells you that you can stop eating gluten and get tested, tell them to do some research. The celiac tests look for your body's reaction to gluten, just like if a car cuts you off, you're gonna hit the brakes, but if there is no car cutting you off, there is no hitting the brakes reaction.

(As a side not, I noticed 07 in your name, is that referencing the year 2007? I ask because that's the year I graduated high school.)

Thank you for the information all. I have reintroduced gluten (bread, bagel, cookies, cereal) for 5 days now and last night I had a horrible reaction to a veggie burger on a bun? (I suspect.) Woke up to a swollen face, hands and legs. Went back to the doctor (two days in a row) and he ordered celiac blood testing, thyroid (because my throat feels swollen but not in a hurts to swallow-way) and referral to an endocrinologist. I am scared to eat anything now! The allergist tests showed no allergies to foods. Waiting for all my bloodwork results now...I am drained.

Georgia_guy: Maggie was the name of my black lab/setter who died in 2007  :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748
    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.