Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Diagnosis

Chrissie32

Recommended Posts

Chrissie32 Newbie
Chrissie32
Posted

Greetings from the U.K. Liking this forum a lot - seems very supportive and informative.

 

I have been given a positive blood test result today and am currently awaiting a biopsy date. Am just curious about eating gluten until then...I understand I will need to have some in my system when the biopsy done but am keen to start the diet as soon as I can because I think I will struggle with it and I'll have to be disciplined!

 

I should also mention I have also been diagnosed with gallstones and a possible bile duct blockage so I don't know if this will complicate things?

 

Any feedback would be appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Hi Chrissie and Welcome to the Forum.

 

You should keep eating gluten until all testing is complete.  If you have already had the endoscopy procedure and are ONLY waiting for the results then you should be fine to stop eating gluten now, however if you still have to have the procedure then wait until it is finished.

 

Good Luck.

 

Colleen

cyclinglady Grand Master
cyclinglady
Posted

Follow Colleen's advice which is standard Celiac protocol per the University of Chicago's Celiac website (they are one of the leading experts in the field of Celiac Disease).  

 

Do not do what I did!  Anemia was my only symptom (I attributed my craziness to perimenopause) and I was in shock about my positive celiac blood test.  "Really my husband has this and now me?  What are the odds?"  I know exactly what being gluten free was all about having dealt with it for 13 years, so I went on a binge.  I ate at every restaurant and bakery that I adored for the next seven weeks.  I ate, literally, a loaf of sourdough bread (not within my husband's sight) a day.  I ate every brand of my favorite cookies and goodies.  By the end of seven weeks, I had stomach pain (lump in stomach).  

 

My advice is to eat normal amounts of gluten until all testing is complete!  By the way, it's been a year and I feel pretty good!  No more anemia!  Back to being physically strong!  

 

 

 

Good luck!

Chrissie32 Newbie
Chrissie32
Posted
  • Author

 Thank you both for your replies. I was interested to read about the lump in your stomach cycling lady, I often have bloating in my stomach (left side) and I never thought before today that it could be celiac related! I do plan on enjoying as many foods as I can before going gluten free that's for sure!

IrishHeart Veteran
IrishHeart
Posted

 Thank you both for your replies. I was interested to read about the lump in your stomach cycling lady, I often have bloating in my stomach (left side) and I never thought before today that it could be celiac related! I do plan on enjoying as many foods as I can before going gluten free that's for sure!

 You will still enjoy many foods if you have to go gluten-free too!

I promise! 

nvsmom Community Regular
nvsmom
Posted

 Thank you both for your replies. I was interested to read about the lump in your stomach cycling lady, I often have bloating in my stomach (left side) and I never thought before today that it could be celiac related! I do plan on enjoying as many foods as I can before going gluten free that's for sure!

Enjoy a cinnamon bun for me.  ;)  

 

All you need is the equivalent of 1-2 slices of bread per day, so you don't need to be excessive and make yourself too sick before getting tested.  If I was you, I would pick my favourites and eat those items until the biopsy... and enjoy the eating out without worrying about being glutened.  ;)

 

Welcome to the board.  :)

LauraTX Rising Star
LauraTX
Posted

If you see a probable diagnosis coming, just take this time to do your research and look up the foods you already use, what your favorite store carries, etc.  Welcome to the forum, and let us know how everything turns out! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Chrissie32 Newbie
Chrissie32
Posted
  • Author

I did nip into Sainsburys on my way home last night and stocked up on some of their gluten free products. Will try them out over the weekend :)

Maggie07 Newbie
Maggie07
Posted

Great to hear about those of you who were diagnosed, gone gluten free and now feeling better! I am struggling keeping a positive outlook while testing...it's encouraging to read about the light at the end of the cannoli (tunnel). Lol

IrishHeart Veteran
IrishHeart
Posted

Great to hear about those of you who were diagnosed, gone gluten free and now feeling better! I am struggling keeping a positive outlook while testing...it's encouraging to read about the light at the end of the cannoli (tunnel). Lol

 

:D well, keeping a sense of humor will help tons while healing!

Hi Maggie and welcome to the forum!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,837
    • Most Online (within 30 mins)
      7,748
    Juliane
    Newest Member
    Juliane
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.