Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Supplements Do You Take And Why?


sidelined

Recommended Posts

sidelined Apprentice

I currently am taking digestive enzymes, probiotics, Vitamin D, iron, B12 and folic acid due to possible Celiac Disease (unfortunately I went gluten free before learning this). 

 

Curious what everyone else here takes, why and if it has helped!

 

Thanks so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Questore Rookie

I take all liquid vitamins...ionic everything, plus ionic minerals of Postassium, Magnesium, Zinc, Calcium, and an Ionic Blood Sugar Support blend of Manganese, Vanadium, Chromium, Fulvic Acid, and all 72 trace minerals...four times a day in one cup of raw homemade veggie juice.  Can't taste them, and they absorb before they hit the Upper GI tract.

 

I have new probiotics and enzymes on order, so no idea how those help...I am sure they will add something to the mix.

 

I defininitely noticed the ionic minerals when I started them, as they are the electrolytes that help run your brain.  I know I have mal-absorption of zinc and protein (my fingernails show it), but this is only a week old with going off gluten, so I won't know for a while when I begin to absorb them again.  On the other hand, I feel awfully good for just 6 days on Gluten Free...have more energy and better sleep, with slightly less stomach cramps.

 

I don't worry about overdoing the vitamin and minerals...I watch my urine, and as soon as I notice it getting more than light yellow I cut back...and when it goes too pale, add them back in again.

 

I also take Primrose Oil and Remifemin for bad Hot Flashes...it cut the intensity by about 2/3.

cyclinglady Grand Master

Why are you taking iron? One of your earlier postings said that you were not anemic. Be careful. Too much iron is as bad as too little!

GF Lover Rising Star

I currently am taking digestive enzymes, probiotics, Vitamin D, iron, B12 and folic acid due to possible Celiac Disease (unfortunately I went gluten free before learning this). 

 

Curious what everyone else here takes, why and if it has helped!

 

Thanks so much!

 

I take Probiotics, Digestive Enzyme when needed, Fish Oil, Quercetin, and a Multi-Vitamin.  Unless a blood test tells you there is a deficiency you do not need to supplement additionally.  Overuse of supplements can be dangerous and they are not subject to FDA Guidelines.  There are studies that show there may be other substances and/or less or more of the titled supplement.

 

 

I take all liquid vitamins...ionic everything, plus ionic minerals of Postassium, Magnesium, Zinc, Calcium, and an Ionic Blood Sugar Support blend of Manganese, Vanadium, Chromium, Fulvic Acid, and all 72 trace minerals...four times a day in one cup of raw homemade veggie juice.  Can't taste them, and they absorb before they hit the Upper GI tract.

 

I have new probiotics and enzymes on order, so no idea how those help...I am sure they will add something to the mix.

 

I defininitely noticed the ionic minerals when I started them, as they are the electrolytes that help run your brain.  I know I have mal-absorption of zinc and protein (my fingernails show it), but this is only a week old with going off gluten, so I won't know for a while when I begin to absorb them again.  On the other hand, I feel awfully good for just 6 days on Gluten Free...have more energy and better sleep, with slightly less stomach cramps.

 

I don't worry about overdoing the vitamin and minerals...I watch my urine, and as soon as I notice it getting more than light yellow I cut back...and when it goes too pale, add them back in again.

 

I also take Primrose Oil and Remifemin for bad Hot Flashes...it cut the intensity by about 2/3.

 

Questor,

 

Using your Urine color as an indicator for supplement needs is not reliable as many things may effect the color.  In my opinion, you should be tested for deficiencies before you supplement heavily as you appear to be doing.  All of those supplements may be contraindicated and may also be dangerous.

 

Colleen

GFinDC Veteran

I take a creatine capsule most every day, it helps my energy.  It is also sposed to help control blood sugar.

 

I take a Naturemade plus 50 for Him multi-vitamin and minerals daily.  Usually daily.  I figure it might be helpful, especially the minerals.

 

I take a NatureMade 5000 IU vitamin D capusle often altho not so much now that it's summer here.  I keep them in the refrig since they are an oil.

 

I take a Raw thyroid capsule on Wednesdays.  It seems to help my overall feeling of wellness.

 

I take an Essential Enzymes sometimes when eating a large meal or having digestive issues.

 

I take a Betaine HCL if I eat a large meal of meat.

 

I take Jarrow pro-biotics once in a while.  If I am having a digestive problem I take them more often.

 

I eat a Brazil nut once a week although I'll probably get a selenium supplement to take instead.  I was feeling very run down and tired and started taking more selenium and it helped a lot.

 

It's true that some vitamins are stored in the body and other are not stored long term.  I think it's worth checking onto that issue.  There are water-soluble and oil soluble vitamins.  I am pretty sure it's the oil soluble ones that can be stored.  The water-soluble ones can go right on out.  So they need to be replenished daily, if you want to maintain their levels.

 

Discussion of water-soluble vitamins

Open Original Shared Link

Wi11ow Apprentice

I am taking a B complex and 2000 IU of Vitamin per the doctor and blood tests done recently. I was already taking a smaller amount.

 

I just started taking a probiotic based on information I learned from here.

 

2 Fish oil supplements for Omega 3 based on the amount of inflammation I have.

 

Magnesium based on low blood tests and the other meds I am on. I don't know how long I will be taking that

 

My iron/feririn level was low, but doc said he wasn't too worried about it yet.

I ran out of my multivitamin and haven't replaced it.

Adalaide Mentor

I take NatureMade gummies multi vitamins. They don't have iron so they don't make me sick, and they have folic acid which I am actually deficient in. Since citrus fruits give me migraines and I have issues with having enough energy, I figure a multi with C and Bs is better for me than just the folic acid I was told to take. My folic acid is a normal level again. I won't take anything else unless I test low. I don't see the point in supplementing a bunch of stuff I don't need as I eat a fairly well balanced diet and don't have money to waste on useless crap.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NatureChick Rookie

I would only take supplements if you've actually tested as being deficient in something. Most of the single-vitamin supplements are fairly high doses - which means that it is highly likely that you'll have side effects. Even vitamins that are water soluable can build up in your system enough to cause problems. Not to mention that many supplements are synthetic.

If you haven't been tested for deficiencies and just want to take supplements, taking a multivitamin would be safer because of the lower dosages, but even then, I wouldn't take one ever day because the chances are so good that you'll be getting too much of something you don't need. For instance, some people have had overdoses of B6 supplements just from how much B6 was in their multivitamin, resulting in nerve pain in their hands and feet that can become permanent.

Vitamin D supplements are hard on the kidneys. They raise blood calcium levels which causes vein problems as well. Better to get some sun than to take a supplement.

B12 supplements are all synthetic and cause acne and foliculitis. A better source is to eat animal-sourced foods.

Excess iron raises your risk of heart attack. If your supplement dose were too high, you'd become constipated, but otherwise the symptoms of having too much iron would go unnoticed though could still cause major problems.

I personally think that probiotics are overrated. If you've been on antibiotics or had diarrhea recently, they could help get things back on track, but they shouldn't be part of a long-term plan. Better would be a diet that helped healthy bacteria to thrive - meaning lots of organic fruits and vegetables in wide variety. If you wanted to take probiotics long term, again, I wouldn't do it daily.

I know less about digestive enzymes but again, unless you're trying to overcome a specific digestive problem for a certain type of food, I wouldn't presume that they'd be something that you should be taking just because gluten is a problem for you.

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748

    Betty Siebert
    Newest Member
    Betty Siebert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.