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Am I Back To Square One?

Snag

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Snag Rookie
Snag
Posted

It's been a while since I've been active. I've been six months gluten and grain free as prescribed by my naturopath. I have never been exactly diagnosed with celiacs or a gluten intolerance, but after explaining my symptoms to my naturopath, she said it was most definitely celiacs (and she did a few informal tests - eyes, skin etc). Besides, I've heard that to be properly tested by a doctor, you have to eat gluten for a season, and I truly, truly don't want to go back to that pain and trauma (think leaky gut, rash, trouble breathing, fatigue, dizziness, foggy head, bloatedness etc). 

 

It's been six months, and I've been feeling wonderful, particularly in the last two months. I have energy I never knew existed, I lost 6lbs from the bloat going down, I'm just feeling really, really good. After two months of giving it up, my husband and I found out we were expecting - 9 months of trying and no success. So, anyway, I'm rambling.

 

I accidentally had gluten this afternoon. It was sneaky and hidden. My naturopath gave me strict orders to not consume gluten at all for a year. She said after a year, I could slowly and gently reintroduce grains back into my diet, (but not glutenous ones, and that's the way life will go). She also said that if I were to eat gluten in that time, my gut would go back to square one again. What a pain. Is that true? Is it that every time we consume gluten - accidentally or not - our gut health deteriorates back to square one? I have a lot of respect for my naturopath, but I did have to raise an eyebrow at that. I'm definitely hoping that's not the case.

 

 

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kareng Grand Master
kareng
Posted

I am sorry your " naturopath" didn't get you tested for celiac before taking you off gluten. One exposure does not take you back to square one according to MDs that treat and study Celiac.

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"Follow-up tests are intended to test whether there’s significant (and repeated) exposure to gluten. A mistake (or two) may cause symptoms, but they will only activate the disease for a short time, though it must be noted that each celiac responds differently. It’s the repeated exposure for the long-term that keeps the disease active enough to cause damage."

Snag Rookie
Snag
Posted
  • Author

I am sorry your " naturopath" didn't get you tested for celiac before taking you off gluten. One exposure does not take you back to square one according to MDs that treat and study Celiac.

Open Original Shared Link

"Follow-up tests are intended to test whether there’s significant (and repeated) exposure to gluten. A mistake (or two) may cause symptoms, but they will only activate the disease for a short time, though it must be noted that each celiac responds differently. It’s the repeated exposure for the long-term that keeps the disease active enough to cause damage."

 

Yeah, it was a bit odd. I do like the lady, and her treatments work. Thanks, kareng. That was very helpful.

mamaw Community Regular
mamaw
Posted

sometimes  I guess they think  putting the  fear  of  hell if  you consume  gluten  will set  you back... which  it  could  happen  but  back to  square  one  !!!!  I agree  with  Kareng...  I do use  alternative  docs  as  well but  sometimes  they  can be  over the  top...... glad you are  okay  & congrats  on the baby  bump...

Snag Rookie
Snag
Posted
  • Author

sometimes  I guess they think  putting the  fear  of  hell if  you consume  gluten  will set  you back... which  it  could  happen  but  back to  square  one  !!!!  I agree  with  Kareng...  I do use  alternative  docs  as  well but  sometimes  they  can be  over the  top...... glad you are  okay  & congrats  on the baby  bump...

 

Exactly what I think it was - to drive fear into me, and it worked! lol. And I agree. I like my naturopath a lot; she's so thorough. But sometimes I do have to wonder if 10% of it is too much/latest nutrition trends! Thank you! :)

kareng Grand Master
kareng
Posted

Exactly what I think it was - to drive fear into me, and it worked! lol. And I agree. I like my naturopath a lot; she's so thorough. But sometimes I do have to wonder if 10% of it is too much/latest nutrition trends! Thank you! :)

From my point of view- she is doing a bad job. She should never have had you go gluten-free without ordering legitimate blood work to see if you actually have Celiac. That is just good plastic patient care. I think this is a big problem with going with non- medical people for your medical care.

user001 Contributor
user001
Posted

Did you say you were expecting? That is wonderful!

 

I would suspect that celiac disease is why you were not able to conceive for so long. I am glad you are feeling better.

 

My doctor just told me to do whatever I can to avoid gluten. He didn't say anything about 'square one'. I personally have a whole slew of issues when i consume gluten (knowingly or not) That is the worst part. For the health of the baby, i would suggest seeing a specialist on the subject. Pregnancy for a celiac can be risky. I would ask them to run the blood work anyway. My blood came back off the charts after eating gluten free for over 3 months. It should be able to tell them something.

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