Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Have Celiac Disease?


mjcoelnc

Recommended Posts

mjcoelnc Rookie

Hi, I have't been tested yet but my older and younger brothers both have Celiacs Disease.

 

Normally I eat alot of skinless chicken and Tilaptia fish. Well about a month ago I had Digournos 5 cheese pizza and had 3 slices. 2 hours after eating it I started to feel sick to my stomach. Then the gurgling started. I went to the bathroom and I started with fire hose diarrhea. Then I started vomiting. This all lasted for 3 hours. Next day I was fine cause I ate fish again. 2 weeks ago i had elbow noodles with sauce and the same thing happened. Well last night I had white rice and a box of sweet and our chicken that I have had severl times over the last 3 years. I was sick again. Only this time the vomiting was worse and i had chills and a slight fever of 99.9 afterward. I was fine by morning. I have constipation a lot and after i go I have cramping.

 

I also have Fibromyalgia, Ostopeenia in back and Oteoporosis in hips, Hashimoto/hypothyroidism, high blood pressure,joint pain, eye floaters and cateracts in both eyes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

How often are you getting the blood tests for Celiac? If you have a " first- degree" relative, you should be tested every few years. And if you aren't following that recommendation - you would want to get tested when you have some symptoms .

You have symptoms & related conditions, so I would say you need to get tested.

mjcoelnc Rookie

I haven't been tested yet. I have a doctor appointment July 31 so I am going to bring this up.

kareng Grand Master

Open Original Shared Link

Open Original Shared Link

You need to continue to eat gluten to help you get accurate tests.

mjcoelnc Rookie

Even if it makes me vomit  horribly and have horrible fire hoe diarrhea and made me lose 10 pound in  month?

kareng Grand Master

Open Original Shared Link

"A gluten challenge is the period of time when gluten is added back into a person’s diet to assist in the diagnosis of celiac disease. Antibodies take time to build into the blood stream before they can be detected through blood analysis. For a gluten challenge we recommend eating 1/2 slice of bread or a cracker each day for the duration of the challenge.

Prior to blood testing we recommend 12 weeks of eating gluten.

Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten.

In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy."

And some info for your doc

Open Original Shared Link

mjcoelnc Rookie

So today I had a cup of tea and a half slice of bread.. Now 2 hours later,I have a headache, i feel like throwing up but haven't thrown up yet. I have been having lots of gas, burping and passing gas. I feel totally wiped out. I noticed a have a sore in the bck of my mouth today.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Even if it makes me vomit  horribly and have horrible fire hoe diarrhea and made me lose 10 pound in  month?

Not everyone can make it through the gluten challenge.  Worn your doctor that it could be an impossibility for you, and perhaps he can get you in soon for a biopsy (requires only 2-4 weeks of 1-2 slices of bread per day or equivalent).  He might advise against all testing if it is that bad.

 

You can TRY to test on what you are eating now much chances are that it would be negative. Some people have higher levels of auto-antibodies that don't correlate to gluten consumption. After a long time gluten-free, most celiacs will have negative tests though.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748

    tdouglas2901
    Newest Member
    tdouglas2901
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.