Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lab Interpretation


GrannyPantiesRock

Recommended Posts

GrannyPantiesRock Newbie

Hello everyone. I'm new here. I was tested for celiac disease by my OB/GYN. I was undergoing a fertility workup up after having a miscarriage in January with no success at trying to conceive since. When she saw that I take daily benedry and loratadine for chronic hives on my lips, hands, and feet, she decided to run the test and told me the results were positive. I reported this to my primary care doc and he suggested endoscopy, but I don't really see the point. Positive is positive, right? As I understand it, the blood tests have a high rate of false negative, but not false positive. So what would be the point of endoscopy? I never had GI symptoms anyhow... just hives. Here are my results. Thanks for the unput.

 

Endomysial AB IgA - positive

tTG IgA - 12

Immunoglobulin A QN - 221 (normal)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Welcome to the board.  :)

 

I was dignosed as a celiac with a positive tTG IgA and EMA IgA as well.  The first test is about 95% specific to celiac disease but the second is about 99% specific tp celiac disease.  You are correct, you have celiac disease. 

 

I think doctors like to do the endoscopy on clear cut cases because that's what they were trained to do back in medical school.  Many of them seem to not realize that the biopsy is better used as a tool to help catch those who do not have clear test results, or an unexpected negative, rather than as a third confirmation of the disease.

 

That being said, many find the endoscopy useful because it gives them a starting point in their recovery, so if things do not go well, they can go back and do another biopsy to compare. Others find it easier to stay gluten-free when they have overwwhelming eveidence that they need to change their diets; of course that doesn't always happen as the biopsy misses somewhere between 10 and 20% of all celiacs.

 

It's a personal choice. Do it if you want to have it done or if the doctor wants it done and you agree with that reason, otherwise feel free to skip it -  it won't help with your recovery.

 

The hives were possibly dermatitis herpetifomis. There is a forum around here that focuses on that exlusively - it might be of help to you.

 

Hope you are well soon.

mjcoelnc Rookie

I used to get hives very badly when I was a kid. All over my body. I saw an allergist for it and it was found out to be that if I have to much salt I break out with hives till this day. I take Zyrtec to help keep the hives away if I getting to much salt in my system either through food or medicines. I have cut down on the salt intake drastically. But I noticed the other day, that I forgot to take my Zyrtec for 2 days cause of being sick, and I started breaking out.

 

Good luck with things.

Tricia7 Newbie

After years of having abnormal periods mine have become a lot more normal in like 2 months or less of being gluten free. I had thought I was having early menopause or pre-menopause (in my 40's) nope. It was just another thing that wheat and gluten were messing up in my body.  

 

Hopefully for you it will help with your fertility.  You might get pregnant sooner than you think without the gluten!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,109
    • Most Online (within 30 mins)
      7,748

    Kathy001
    Newest Member
    Kathy001
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.