Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Foods Besides Gluten Foods Set You Off?

3bears2

Recommended Posts

3bears2 Explorer
3bears2
Posted

I think high fat foods, beef, dairy and some soy foods set me off. Also many hurbs and tomatoes. What about you? Pickled foods do too. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


icelandgirl Proficient
icelandgirl
Posted

I think high fat foods, beef, dairy and some soy foods set me off. Also many hurbs and tomatoes. What about you? Pickled foods do too.

Both high fat and high sugar give me D...not sure if it's the lack of gallbladder or something else. I had my gallbladder out 2 weeks after diagnosis so I never got to see how I did gluten free with a gallbladder.

I'm doing a trial elimination of soy and dairy...After 6 days I don't notice any less bloating.

beth01 Enthusiast
beth01
Posted

Soy, garlic, dairy, eggs whole( baked into recipes don't bother me) and whole rice bothers me.  I was using a huge tub of " I can't believe it's not butter" that I bought after my diagnosis that I was using in everything I needed butter for not ever even thinking twice that soy is on the ingredient list in like four different places.  I stopped using it on Thursday and feel considerably better already. High fat foods and high sugar foods also bother me. Damn food

 

 

* added content

dilettantesteph Collaborator
dilettantesteph
Posted

If high fat and protein is botheriing you, look into exocrine pancreatic insufficiency: https://www.celiac.com/forums/topic/105648-exocrine-pancreatic-insufficiency/?hl=%2Bexocrine+%2Bpancreatic+%2Binsufficiency

w8in4dave Community Regular
w8in4dave
Posted

Corn , Soy, Lactose, Think i'm getting some lactose back! I can eat regular butter now! I don't care about soy, and corn , well I don't care if I ever get HFCS (High Fructose corn syrup) back , but it would be nice to eat corn chips! Soy I really don't care about tho either. 

Austin Guy Contributor
Austin Guy
Posted

In order of the worst symptoms:  soy, peanuts (both legumes so I hesitant to try other legumes), eggs, dairy.

Ele Newbie
Ele
Posted

Lactose, tomatoes, melon, watermelon, kiwi, shrimp, soy, legumes. recently I'm getting back potatoes (but before eating I put them in to water for a lot of time), oranges and green beans 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


klisja Rookie
klisja
Posted

What does not set me off is: rice, GFcornflakes, eggs, lactosfree milk, coffie, salt, gum, crispbread made of rice and cornflour, cheese, butter, chicken (don't know about fish and other meets, chicken is the only thing that taste good just with salt).

 

Anything else can set of some symptoms. I don't know what kind of food intoleranca I have, if other things irritate the system because I am not healed after gluten damage or something else is bothering me. I haven't tested positive for celiac though.

Ele Newbie
Ele
Posted

What does not set me off is: rice, GFcornflakes, eggs, lactosfree milk, coffie, salt, gum, crispbread made of rice and cornflour, cheese, butter, chicken (don't know about fish and other meets, chicken is the only thing that taste good just with salt).

 

Anything else can set of some symptoms. I don't know what kind of food intoleranca I have, if other things irritate the system because I am not healed after gluten damage or something else is bothering me. I haven't tested positive for celiac though.

Hi Klisja,

 

Have you ever do a test for the allergy at nickel? My mother has this problem and the foods that she can eat are very limited... I don't know if this can help you, but if you don't feel good I think that prove something else is important.  :)

 

(sorry for my English... I'm Italian and I'm just started a new method for learning English better  ^_^ )

SillyBoo Newbie
SillyBoo
Posted

I cannot eat eggs, dairy, or soy. I'm in the midst of an elimination diet right now, and sadly (but not unexpectedly) reacted to corn. Nightshades are also suspect, but I haven't put them to the test yet. However, after avoiding them completely for the past 3 weeks, the joint pain is gone. I will miss potatoes and tomatoes the most. :-(

 

When I first got diagnosed 8 years ago, there were very few foods I could eat without a reaction. Over the years I have gradually added things back in as I healed. But apparently there are some things that seem to have a permanent place on my naughty list.

BlessedMommy Rising Star
BlessedMommy
Posted

Dairy and excess sugar bother me. I feel much better on a dairy free, low sugar diet.

klisja Rookie
klisja
Posted

Hi Klisja,

 

Have you ever do a test for the allergy at nickel? My mother has this problem and the foods that she can eat are very limited... I don't know if this can help you, but if you don't feel good I think that prove something else is important.  :)

 

(sorry for my English... I'm Italian and I'm just started a new method for learning English better  ^_^ )

 

Hi Ele, thanks for responding.

 

I haven't been tested for anything but celiac (wich was negative) and some common allergies. I have looked into nickel but I have yet to test if that is the case. I have alot of testing to do to see what kind of chemicals I don't tolerate, if I can stay clean for a while (but that is soooooo hard :blink: ).

 

Your english is just fine, I am from Iceland and know how puzzling it can be sometimes to line up the right words in a sentence :P

icelandgirl Proficient
icelandgirl
Posted

Hi Ele, thanks for responding.

 

I haven't been tested for anything but celiac (wich was negative) and some common allergies. I have looked into nickel but I have yet to test if that is the case. I have alot of testing to do to see what kind of chemicals I don't tolerate, if I can stay clean for a while (but that is soooooo hard :blink: ).

 

Your english is just fine, I am from Iceland and know how puzzling it can be sometimes to line up the right words in a sentence :P

Hi klisja...I'm from Iceland too! Crazy!
klisja Rookie
klisja
Posted

Hi klisja...I'm from Iceland too! Crazy!

 

Nice! Cool to see a fellow icelander here :D

millerb68 Newbie
millerb68
Posted

Pretty much everything, unfortunately. I'm so frustrated right now. My food intolerance issues started with lactose intolerance in 2005, then onions and green peppers, then a bunch of other things. Last year, while working with a dietitian, I had some food sensitivity testing done, and found many other things, from meat to fruits and vegetables and tea(!), that I have reactions to. I was just diagnosed with celiac disease and leaky gut this May. Now, my dietitian thinks I may have sensitivities to high FODMAPs foods, which I understand, as many of those foods were also on my test results last year. However, being dairy-free, meat-free and gluten-free already, eliminating high FODMAPs foods leaves me very little to eat.  I'm currently eliminating oats to see if they are causing continued issues, so I'm stumped for breakfast foods. 

 

Sometimes I get so envious of people I see in restaurants who can eat whatever and not have to worry about it making them sick! 

klisja Rookie
klisja
Posted

Pretty much everything, unfortunately. I'm so frustrated right now. My food intolerance issues started with lactose intolerance in 2005, then onions and green peppers, then a bunch of other things. Last year, while working with a dietitian, I had some food sensitivity testing done, and found many other things, from meat to fruits and vegetables and tea(!), that I have reactions to. I was just diagnosed with celiac disease and leaky gut this May. Now, my dietitian thinks I may have sensitivities to high FODMAPs foods, which I understand, as many of those foods were also on my test results last year. However, being dairy-free, meat-free and gluten-free already, eliminating high FODMAPs foods leaves me very little to eat.  I'm currently eliminating oats to see if they are causing continued issues, so I'm stumped for breakfast foods. 

 

Sometimes I get so envious of people I see in restaurants who can eat whatever and not have to worry about it making them sick! 

 

Hey Millerb68

 

Have you looked into amines, salicylates and glutamates and tried failsafe diet? It's a tough challenge but might help, here is a great site Open Original Shared Link

 

The food restrictions bother me less then peoples behavior around my intolerances. Sometimes I feel like a freak!

millerb68 Newbie
millerb68
Posted

Hey Millerb68

 

Have you looked into amines, salicylates and glutamates and tried failsafe diet? It's a tough challenge but might help, here is a great site Open Original Shared Link

 

The food restrictions bother me less then peoples behavior around my intolerances. Sometimes I feel like a freak!

Thank you, Klisja! I will look into that! I hadn't even thought about additives. I eat mostly whole foods (fruits, veggies, few grains), but I bet there are some hidden additives in things I'm not thinking about. 

 

Yes, people's behavior around my intolerances brings a lot of eye rolls. They think I'm being difficult or picky! 

klisja Rookie
klisja
Posted

Thank you, Klisja! I will look into that! I hadn't even thought about additives. I eat mostly whole foods (fruits, veggies, few grains), but I bet there are some hidden additives in things I'm not thinking about. 

 

Yes, people's behavior around my intolerances brings a lot of eye rolls. They think I'm being difficult or picky! 

 

Excactly, people find me sooo boring hahaha. Hope this helps, good luck on your journey :)

  • 2 weeks later...
w8in4dave Community Regular
w8in4dave
Posted

I hate to hear people treating other people bad because of their intolerances. Not like you chose this for your self. I really feel Bad for anyone with all the intolerances. I just have a few. I feel so lucky. But when I tell someone my intolerances they say. Wow! What on earth can you eat? 

  • 2 weeks later...
Finally-45 Contributor
Finally-45
Posted

I think high fat foods, beef, dairy and some soy foods set me off. Also many hurbs and tomatoes. What about you? Pickled foods do too.

I think high fat foods, beef, dairy and some soy foods set me off. Also many hurbs and tomatoes. What about you? Pickled foods do too.

This pattern is very common among people with mastocytosis.

klisja Rookie
klisja
Posted

I hate to hear people treating other people bad because of their intolerances. Not like you chose this for your self. I really feel Bad for anyone with all the intolerances. I just have a few. I feel so lucky. But when I tell someone my intolerances they say. Wow! What on earth can you eat? 

 

I think people don't like when your different, "you ought to be like the group and eat cake!". Once at work I had a piece of candy and one lady said she was so happy seeing me eating candy! I notice when I eat with other people that they don't relax and eat their food, they are watching what other are doing with their food. Pretty weird.

  • 2 weeks later...
Twenty4Oceans Newbie
Twenty4Oceans
Posted

I'm sensitive to gluten and dairy (casein, whey, and lactose). Sometimes, I feel like the dairy is harder to avoid, and have to ask about vegetable sides containing butter whenever I go out to eat--still figuring out all the places where family and restaurants sneak in milk, butter, and flour. 

John Burlingame Explorer
John Burlingame
Posted

Im sensitive to Gluten and dairy and allergic to soy. had a run in the other day put me to shame. I make all my food at home, if I leave, I make sure to bring food with me. Some sodas are ok. found out why fanta made me sick, had soy in it. you just dont think about whats in food until this stuff happens to you. I wish I knew what the the gluten tasted like before the modified the strain.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
    3. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    4. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    5. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.