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What Foods Besides Gluten Foods Set You Off?

3bears2

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3bears2 Explorer
3bears2
Posted

I think high fat foods, beef, dairy and some soy foods set me off. Also many hurbs and tomatoes. What about you? Pickled foods do too. 

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icelandgirl Proficient
icelandgirl
Posted

I think high fat foods, beef, dairy and some soy foods set me off. Also many hurbs and tomatoes. What about you? Pickled foods do too.

Both high fat and high sugar give me D...not sure if it's the lack of gallbladder or something else. I had my gallbladder out 2 weeks after diagnosis so I never got to see how I did gluten free with a gallbladder.

I'm doing a trial elimination of soy and dairy...After 6 days I don't notice any less bloating.

beth01 Enthusiast
beth01
Posted

Soy, garlic, dairy, eggs whole( baked into recipes don't bother me) and whole rice bothers me.  I was using a huge tub of " I can't believe it's not butter" that I bought after my diagnosis that I was using in everything I needed butter for not ever even thinking twice that soy is on the ingredient list in like four different places.  I stopped using it on Thursday and feel considerably better already. High fat foods and high sugar foods also bother me. Damn food

 

 

* added content

dilettantesteph Collaborator
dilettantesteph
Posted

If high fat and protein is botheriing you, look into exocrine pancreatic insufficiency: https://www.celiac.com/forums/topic/105648-exocrine-pancreatic-insufficiency/?hl=%2Bexocrine+%2Bpancreatic+%2Binsufficiency

w8in4dave Community Regular
w8in4dave
Posted

Corn , Soy, Lactose, Think i'm getting some lactose back! I can eat regular butter now! I don't care about soy, and corn , well I don't care if I ever get HFCS (High Fructose corn syrup) back , but it would be nice to eat corn chips! Soy I really don't care about tho either. 

Austin Guy Contributor
Austin Guy
Posted

In order of the worst symptoms:  soy, peanuts (both legumes so I hesitant to try other legumes), eggs, dairy.

Ele Newbie
Ele
Posted

Lactose, tomatoes, melon, watermelon, kiwi, shrimp, soy, legumes. recently I'm getting back potatoes (but before eating I put them in to water for a lot of time), oranges and green beans 

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klisja Rookie
klisja
Posted

What does not set me off is: rice, GFcornflakes, eggs, lactosfree milk, coffie, salt, gum, crispbread made of rice and cornflour, cheese, butter, chicken (don't know about fish and other meets, chicken is the only thing that taste good just with salt).

 

Anything else can set of some symptoms. I don't know what kind of food intoleranca I have, if other things irritate the system because I am not healed after gluten damage or something else is bothering me. I haven't tested positive for celiac though.

Ele Newbie
Ele
Posted

What does not set me off is: rice, GFcornflakes, eggs, lactosfree milk, coffie, salt, gum, crispbread made of rice and cornflour, cheese, butter, chicken (don't know about fish and other meets, chicken is the only thing that taste good just with salt).

 

Anything else can set of some symptoms. I don't know what kind of food intoleranca I have, if other things irritate the system because I am not healed after gluten damage or something else is bothering me. I haven't tested positive for celiac though.

Hi Klisja,

 

Have you ever do a test for the allergy at nickel? My mother has this problem and the foods that she can eat are very limited... I don't know if this can help you, but if you don't feel good I think that prove something else is important.  :)

 

(sorry for my English... I'm Italian and I'm just started a new method for learning English better  ^_^ )

SillyBoo Newbie
SillyBoo
Posted

I cannot eat eggs, dairy, or soy. I'm in the midst of an elimination diet right now, and sadly (but not unexpectedly) reacted to corn. Nightshades are also suspect, but I haven't put them to the test yet. However, after avoiding them completely for the past 3 weeks, the joint pain is gone. I will miss potatoes and tomatoes the most. :-(

 

When I first got diagnosed 8 years ago, there were very few foods I could eat without a reaction. Over the years I have gradually added things back in as I healed. But apparently there are some things that seem to have a permanent place on my naughty list.

BlessedMommy Rising Star
BlessedMommy
Posted

Dairy and excess sugar bother me. I feel much better on a dairy free, low sugar diet.

klisja Rookie
klisja
Posted

Hi Klisja,

 

Have you ever do a test for the allergy at nickel? My mother has this problem and the foods that she can eat are very limited... I don't know if this can help you, but if you don't feel good I think that prove something else is important.  :)

 

(sorry for my English... I'm Italian and I'm just started a new method for learning English better  ^_^ )

 

Hi Ele, thanks for responding.

 

I haven't been tested for anything but celiac (wich was negative) and some common allergies. I have looked into nickel but I have yet to test if that is the case. I have alot of testing to do to see what kind of chemicals I don't tolerate, if I can stay clean for a while (but that is soooooo hard :blink: ).

 

Your english is just fine, I am from Iceland and know how puzzling it can be sometimes to line up the right words in a sentence :P

icelandgirl Proficient
icelandgirl
Posted

Hi Ele, thanks for responding.

 

I haven't been tested for anything but celiac (wich was negative) and some common allergies. I have looked into nickel but I have yet to test if that is the case. I have alot of testing to do to see what kind of chemicals I don't tolerate, if I can stay clean for a while (but that is soooooo hard :blink: ).

 

Your english is just fine, I am from Iceland and know how puzzling it can be sometimes to line up the right words in a sentence :P

Hi klisja...I'm from Iceland too! Crazy!
klisja Rookie
klisja
Posted

Hi klisja...I'm from Iceland too! Crazy!

 

Nice! Cool to see a fellow icelander here :D

millerb68 Newbie
millerb68
Posted

Pretty much everything, unfortunately. I'm so frustrated right now. My food intolerance issues started with lactose intolerance in 2005, then onions and green peppers, then a bunch of other things. Last year, while working with a dietitian, I had some food sensitivity testing done, and found many other things, from meat to fruits and vegetables and tea(!), that I have reactions to. I was just diagnosed with celiac disease and leaky gut this May. Now, my dietitian thinks I may have sensitivities to high FODMAPs foods, which I understand, as many of those foods were also on my test results last year. However, being dairy-free, meat-free and gluten-free already, eliminating high FODMAPs foods leaves me very little to eat.  I'm currently eliminating oats to see if they are causing continued issues, so I'm stumped for breakfast foods. 

 

Sometimes I get so envious of people I see in restaurants who can eat whatever and not have to worry about it making them sick! 

klisja Rookie
klisja
Posted

Pretty much everything, unfortunately. I'm so frustrated right now. My food intolerance issues started with lactose intolerance in 2005, then onions and green peppers, then a bunch of other things. Last year, while working with a dietitian, I had some food sensitivity testing done, and found many other things, from meat to fruits and vegetables and tea(!), that I have reactions to. I was just diagnosed with celiac disease and leaky gut this May. Now, my dietitian thinks I may have sensitivities to high FODMAPs foods, which I understand, as many of those foods were also on my test results last year. However, being dairy-free, meat-free and gluten-free already, eliminating high FODMAPs foods leaves me very little to eat.  I'm currently eliminating oats to see if they are causing continued issues, so I'm stumped for breakfast foods. 

 

Sometimes I get so envious of people I see in restaurants who can eat whatever and not have to worry about it making them sick! 

 

Hey Millerb68

 

Have you looked into amines, salicylates and glutamates and tried failsafe diet? It's a tough challenge but might help, here is a great site Open Original Shared Link

 

The food restrictions bother me less then peoples behavior around my intolerances. Sometimes I feel like a freak!

millerb68 Newbie
millerb68
Posted

Hey Millerb68

 

Have you looked into amines, salicylates and glutamates and tried failsafe diet? It's a tough challenge but might help, here is a great site Open Original Shared Link

 

The food restrictions bother me less then peoples behavior around my intolerances. Sometimes I feel like a freak!

Thank you, Klisja! I will look into that! I hadn't even thought about additives. I eat mostly whole foods (fruits, veggies, few grains), but I bet there are some hidden additives in things I'm not thinking about. 

 

Yes, people's behavior around my intolerances brings a lot of eye rolls. They think I'm being difficult or picky! 

klisja Rookie
klisja
Posted

Thank you, Klisja! I will look into that! I hadn't even thought about additives. I eat mostly whole foods (fruits, veggies, few grains), but I bet there are some hidden additives in things I'm not thinking about. 

 

Yes, people's behavior around my intolerances brings a lot of eye rolls. They think I'm being difficult or picky! 

 

Excactly, people find me sooo boring hahaha. Hope this helps, good luck on your journey :)

  • 2 weeks later...
w8in4dave Community Regular
w8in4dave
Posted

I hate to hear people treating other people bad because of their intolerances. Not like you chose this for your self. I really feel Bad for anyone with all the intolerances. I just have a few. I feel so lucky. But when I tell someone my intolerances they say. Wow! What on earth can you eat? 

  • 2 weeks later...
Finally-45 Contributor
Finally-45
Posted

I think high fat foods, beef, dairy and some soy foods set me off. Also many hurbs and tomatoes. What about you? Pickled foods do too.

I think high fat foods, beef, dairy and some soy foods set me off. Also many hurbs and tomatoes. What about you? Pickled foods do too.

This pattern is very common among people with mastocytosis.

klisja Rookie
klisja
Posted

I hate to hear people treating other people bad because of their intolerances. Not like you chose this for your self. I really feel Bad for anyone with all the intolerances. I just have a few. I feel so lucky. But when I tell someone my intolerances they say. Wow! What on earth can you eat? 

 

I think people don't like when your different, "you ought to be like the group and eat cake!". Once at work I had a piece of candy and one lady said she was so happy seeing me eating candy! I notice when I eat with other people that they don't relax and eat their food, they are watching what other are doing with their food. Pretty weird.

  • 2 weeks later...
Twenty4Oceans Newbie
Twenty4Oceans
Posted

I'm sensitive to gluten and dairy (casein, whey, and lactose). Sometimes, I feel like the dairy is harder to avoid, and have to ask about vegetable sides containing butter whenever I go out to eat--still figuring out all the places where family and restaurants sneak in milk, butter, and flour. 

John Burlingame Explorer
John Burlingame
Posted

Im sensitive to Gluten and dairy and allergic to soy. had a run in the other day put me to shame. I make all my food at home, if I leave, I make sure to bring food with me. Some sodas are ok. found out why fanta made me sick, had soy in it. you just dont think about whats in food until this stuff happens to you. I wish I knew what the the gluten tasted like before the modified the strain.

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      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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