Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Genetics Testing Again

Renaye

Recommended Posts

Renaye Contributor
Renaye
Posted

After 3 years of being gluten-free, I convinced my new gastro do re-do the inconclusive genetics test. I have other issues such as possible Sjogrens and is seeing a rheumy for that. My insurance will not cover it but I would like to know, especially for my kids. I have less stomach pain but still am constipated to the point that I use Miralax daily. I have gained my weight back and am less fatigued but not sure if that is due to taking

Plaquenil or gluten-free diet.

Now I feel that maybe it is not worth it. If it is negative then I don't have it? Any thoughts? I am checking with my insurance before proceeding.

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BlessedMommy Rising Star
BlessedMommy
Posted

If your bloodwork is positive, you can be fairly confident that you have celiac. Bloodwork is more accurate than a biopsy. A negative biopsy often means that they missed the damage.

ravenwoodglass Mentor
ravenwoodglass
Posted

You had positive blood work so you have celiac no matter what genes you carry. Gene testing is really a pretty new science and they are learning more every day. While most doctors only test for DQ2 or DQ8 it is possible to have firmly diagnosed celiac without either of those two genes. You could also have something else going on of course including possible other intolerances like dairy or soy. I get stomach pain and constipation from soy, for example. 

Renaye Contributor
Renaye
Posted
  • Author

I am DGP IgG and DPG IgA positive. All other tests are negative. Not sure how accurate those tests are.

My diet is clean of gluten, eggs, dairy and peanuts. The only thing that I eat that has soy in it is my mayo and not sure what to substitute for that. But I need mayo!!

Gastro suggested fiber along with Miralax. Took gluten free gummy chews last night that had 5 grams of fiber at bedtime. Hopefully this will move things along.

ravenwoodglass Mentor
ravenwoodglass
Posted

Those tests are very good and very specific to celiac. 

I hope the doctor's suggestion works. It is frustrating when we continue to have problems and I hope these clear up soon for you.

BlessedMommy Rising Star
BlessedMommy
Posted

The only thing that I eat that has soy in it is my mayo and not sure what to substitute for that. But I need mayo!!

 

Open Original Shared Link

Ele Newbie
Ele
Posted

Open Original Shared Link

Hi everyone!

 

I have the same problem. I have a gluteen-free diet since two years, but the bloodwork doesn't identify my celiac disease. I'm allergic at flour mite, so I think that is the problem. What do you think about this? 

 

Sorry for my English, but I'm Italian and I'm just started a new metod for learning English better  ^_^

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

Welcome Ele!  Allergy to wheat is treated the same way as celiac, one does an elimination diet.  You can help lean about the diet and find people who can understand your struggles here.  You can improve your English as you read also!  I am also two years gluten free.

Renaye Contributor
Renaye
Posted
  • Author

Thanks Blessedmommy! I use this product only it has a blue lid and contains soy. My grocery store does not offer the soy free one but I will look elsewhere for it.

Thanks again!

Ele Newbie
Ele
Posted

Welcome Ele!  Allergy to wheat is treated the same way as celiac, one does an elimination diet.  You can help lean about the diet and find people who can understand your struggles here.  You can improve your English as you read also!  I am also two years gluten free.

Thank 1desperateladysaved!

 

I'm very happy now! You give me very important information!!!! thank for your kindness!!!!  :D  :D  :D

Adalaide Mentor
Adalaide
Posted

Hellman's/Best Foods makes a mayo with a yellow lid that is soy free. And it isn't something you have to go look for at a health food store or that costs 3 times as much as regular mayo.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,116
    • Most Online (within 30 mins)
      7,748
    Mary Pack
    Newest Member
    Mary Pack
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.