Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Having Diarhea But Gf


melisadki

Recommended Posts

melisadki Explorer

Is D supposed to go away after going gluten free cause I am still having loose stools and D. I am so frustrated. I am also careful of not getting hidden gluten. Anyone have any ideas cause I am ready to give up here.. :( Also the nausea is still really bad and I still dont want to eat much......I miss my sandwhiches.. ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

Your signiture says you have been gluten-free for five days. If that is right, you have a few weeks until you will feel fully better.

Rachel--24 Collaborator

I think it takes time...how long have you been gluten-free now? I'm still having occassional nausea and I'm almost 3 months gluten-free now. My stools got better after 2 months but I think that was because I eliminated dairy. I never had D though....it was just never a symptom I had.

melisadki Explorer

I know its early thanks.... <_< I also suspect maybe a dairy allergy and then I wont have anything to eat....why live :( the diet is already very restrictive especially when trying to get pregnant. <_< I am hoping the dairy intolerance is just temporary I never had a problem with milk etc...until a few years ago.

Rachel--24 Collaborator

Oh yeah...I was wondering did you have nausea before going gluten-free? I don't remember having too much nausea until my first week of the diet...then it was bad. I think it was withdrawl..I just felt WAY worse the first week. I actually thought I was dying. I didn't mean to be going gluten-free....I was actually starting a candida diet at the time. It was only veggies and meats. The second week I felt alot better but it can also take several weeks to feel good.

melisadki Explorer

Yeah unfortunetly I did have the nausea prior as well. Food just doesnt agree with me anymore. Sometimes all I can get down is junk food which is bad but if the meat smell turns my stomach or whatever then I just cant eat it.. :(

I really do hope this gets better. I think I will keep with the dairy for now but try to cut back and just see if stuff gets better. I plan on getting some digestive enzymes here soon along with a good vitamin. Justing finding gluten-free ones are tricky.. :rolleyes:

Rachel--24 Collaborator
I plan on getting some digestive enzymes here soon along with a good vitamin.  Justing finding gluten-free ones are tricky.. :rolleyes:

<{POST_SNAPBACK}>

I take enzymes but just finally settled on a multivitamin. I also take probiotics. I cant tolerate lots of foods and chemicals after I'm glutened and then it will calm down. Its been almost 2 weeks now that I've been reacting to everything. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



melisadki Explorer

I bet thats tough...having all those senstivites. I am just plain afraid to do anymore allergy testing...cause I just dont think I can restrict anything else.....I am already so bummed with the diet.. :(

Speaking of eating I still havent eaten today cause I am so nausea and had D. I just hope it goes away so I can at least get one meal in.. :o

hez Enthusiast

Recovery time is different for everyone and it is dependent on how bad the damage is. If it was caught sooner than later it will take less time for your body to heal. In my case the damage was severe so I am still in recovery mode. I have been gluten-free since April. I think with time you will find peace with the diet and not find it so limiting. I remember being almost unable to figure out what to eat. Now it is a matter of what to eat because I have so many choices in my home. Keep reading this site. I have found the information priceless!

Hez

  • 2 weeks later...
melisadki Explorer

Ok its been a little over 2 weeks gluten-free and I am still getting quite a bit of Diarhea but i think it is from milk. I dont think I am getting an gluten.. :blink: Do any of you guys have a dairy intolerance on top of gluten intolerance? iF so does Lactaid seem to help any? It is really restrictive for me to give up cheese because I use this as a snack since I have to do low carb because of my sugar levels.. :angry:

I'm going to try it and see if it gets better.. :( Also my BM's are still on the light side.. ;) so I have no idea what is going on. I know its soon but shouldnt i be seeing more improvement buy now. :angry:

Lisa Mentor

I have been on the diet for, lets see, four months by now. I still feel uncomfortable going out of town. At two months, every other day was a good one. At three months every second day was good. And now at four, it is every three days.....healing will take time.

I know that when I have to be out of town or sitting in a meeting for six hours, Immodium has been a lifesaver. I have been hesitant to use it because I did not want to mask my symptoms....but I gave that up to have a life.

Keep strictly to the gluten-free diet and slowly but surely you will improve day by day. It is nothing that you can rush. It took a long time to do damage and you can't expect it to turn around in a few weeks.

Be patient, there is light at the end of the tunnel. This does not have to be aburden.

I cooked a wonderful dinner tonight that I would have ordered in any restaurant. Good food can truley be enjoyed:

Pork Tenderloin - Dry Rub from Paul Prudhommes' Fajita Magic for several hours

Baked and servered with Paul Newman's Peach Salsa

Uncle Ben's Rice with can of corn, and black beans, mixed together with butter. (disclaimer - all gluten-free to my knowledge)

Life can be good.

melisadki Explorer

Thanks I guess I expected to see some improvement by now. I am not even Celiac but Gluten Intolerant.. <_< yes cooking its alot of work but I think I have cooked more in the past 2 weeks then I have in 1 year... :lol:

bluelotus Contributor

Hi,

Sorry to hear that you are not 100% yet (I'm not either after a year, but that's my fault). I just wanted to mention, if you take Lactaid, call the company. I asked them for a list of their gluten-free Lactaid products and all that made the list was their milk. Someone else in the forum was able to find more info on the Lactaid website (I think) about which pills are gluten-free. If you aren't comfortable taking that brand, there are plenty of gluten-free ones you can find at health food stores too.

melisadki Explorer

I ended up getting a generic pill to lactaid but from the ingredients I dont think it has gluten. It is "Health Pride Dairy Digestive Supplement"

Ingredients:

lactase enzyme,dextrose, magnesioum stearate, microcrystaline cellulose, sodium citrate, and silicon dioxide.

Hopefully I'm not wrong though. I am so new to this stuff. :blink:

kevsmom Contributor

Have you checked into any other medications that you are taking? How about makup and lotions?

Do you have pets? I didn't even think of it until I read this on the board, but if you give a pet food or treats you need to wash your hands. The first ingredient in pet food and treats is usually wheat!

Also, be careful about contamination.

There are some decent bread products out there, although they are expensive. Splurge on yourself once in a while. :P

I have learned so much here. Just keep asking, reading and learning. We are all in this together.

I hope you feel better soon.

melisadki Explorer

Yes I have 5 furbabies.. :) I always wash my hands after so that should be ok.

Meds I checked on. My makeup and lotion I didnt because I didnt think gluten could enter the skin because particle is too big. :blink:

I think what makes it hard is my hubby agreed to do this with me. Well he is a truck driver for this bakery and is always bringing stuff home (supposedly to give to others) and there is a really nice box of donuts sitting in my kitchen right now. I am so tempted. He said he hasnt had any but he may be fibbing....all the temptations. :o

Actually though I am doing better then I thought and having fun with cooking. Although I do miss really good soft bread.. :(

kevsmom Contributor

Melisa -

If your hubby does get into the donuts, make sure he bruhes his teeth (with a gluten free toothpaste) before he kisses you. That should go over real well. :D Also it's real important to disinfect the table or counter where the box is and where he is eating them. Crumbs are all over the place.

I go through a lot of paper towels preparing and eating my food, just to make sure that my 16 year old hasn't left hidden sources somewhere.

You would be surprised, but there are some really decent breads out there. I bought a loaf of kinnikinnick bread. I stuck a couple of slices in the microwave for about 30 seconds with a couple of pieces of gluten free ham and a piece of cheese, and had a wonderful real tasting sandwich!!!

One of my local grocery stores carries Food For Life Wheat and Gluten Free Rice Pecan Bread (It's in the frozen food section near the waffles). If you nuke that for about 30 seconds, it makes a great peanut butter and jelly sandwich!! I also use it to make french toast!! This store also carries Pamela's cookies. They taste like real cookies.

I think the secret to getting some of the breads to taste decent is to heat them, either by nuking or toasting them. Some of the breads just don't taste good no matter what you do to them. :huh:

Treat yourself to some of the gluten free stuff that people recommend. It's expensive, but you need to develope the "I'm worth it" attitute. You won't fee so deprived.

I guess I should stop rambling on...Until next time.

Good Luck! :)

Cindy

Rachel--24 Collaborator
Meds I checked on.  My makeup and lotion I didnt because I didnt think gluten could enter the skin because particle is too big. :blink:

<{POST_SNAPBACK}>

Gluten cant get absorbed into your skin but if you have it in your lotion or lipstick or anything like that...theres a good chance it will end up in your mouth.

melisadki Explorer

Thanks you guys.

Ok I got a TMI question her:

Is there anything I can eat that will help bulk my BM's up a bit. They are still kinda loose. It just gets so old if you know what I mean. I did Colonix a few months back and that helped maybe I should do that again for awhile. Seems like lack of bread, and starches may be causing this.

Or maybe I am just overanalyzing everything.. :rolleyes:

julie5914 Contributor

Dairy seemed to be the key for me when I still having trouble after going gluten-free. I think it was casein and not lactose as I had been tested for lactose a few months ago and it was negative. Rice Dream ice cream isn't bad and vanilla rice milk isn't bad either once you get used to it. If they didn't make it I would have cheated already. Toughest part is butter, esp. when you are eating outside of the home. After about a week w/o dairy, the D totally stopped. I think I may be normal now in that department, though I'm hesitant to suggest that since I'm still not sure what normal is!

melisadki Explorer
Dairy seemed to be the key for me when I still having trouble after going gluten-free. I think it was casein and not lactose as I had been tested for lactose a few months ago and it was negative. Rice Dream ice cream isn't bad and vanilla rice milk isn't bad either once you get used to it. If they didn't make it I would have cheated already. Toughest part is butter, esp. when you are eating outside of the home. After about a week w/o dairy, the D totally stopped. I think I may be normal now in that department, though I'm hesitant to suggest that since I'm still not sure what normal is!

Thats sounds tough. What do you use in place of butter for toast and stuff. I heard margarine is so bad for your health.. :(

I didnt have D today and I had some milk last night but I took a lactaid pill with it. Maybe it is just lactose intolerant. I hope so. How do you get tested for casein allergy?

Rice milk is ok but just doesnt have the good cream texture. Also what do you do about getting enough calcium? I am really new to restricting so many foods its tough but i am almost to 3 weeks w/0 cheating.. :)

Also I lost 4 more pounds...Yippie!! :D

cookiedog Newbie

I used to try lactaid pills and they would allow me to eat/drink milk products at that moment and I wouldn't feel too bad, but at 4am I would wake up with terrible cramps and D. After this happening everytime, I finally realized it is not worth that ice cream sandwich or glass of milk anymore. I hope they work for you, I really do! I've been lactose intolerant for years, as soon as I would finish the glass of milk, the roof of my mouth would hurt and swell and feel raw, then it progressed to bm then on and on. But anyways. They just didn't work for me but thank goodness we are all different huh?

melisadki Explorer

Could it also be the extra fat since this is more like a low carb diet? More fatty food since breakfast is eggs, bacon...and lunch is meat with no bread...maybe the lack of fiber? I may have to get a fiber supplement and start adding more veggies.

I will be having a laproscopy done in Dec to look for endometriosis and my symtoms seem to flare up around my period so that is always an option too. I hope not but I guess I will find out soon.

I think I could give up milk....but ice cream..and cheese... :angry:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,545
    • Most Online (within 30 mins)
      7,748

    PatientOne
    Newest Member
    PatientOne
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.