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Can I Have Help Intrepreting Test Scores? New Here


nme23

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nme23 Apprentice

I had to have testing for celiac disease. I got my results but note sure how to interpret. Can anyone help me!

Results my gliadin Iga Ab level is 105.7 what does this mean per the test up to 14.0 is normal

tissue transglutaminase ab iga results were 127 per the test 14.0 being the highest for normal.
Thanks if you can help me


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kareng Grand Master

Sounds positive.  What did the doctor say?  Are you being referred to a GI for an endoscopy?  That is usually the next step.  Continue to eat a normal gluten containing diet until all testing is done (for the best results).

nme23 Apprentice

This was from the GI doc. Her nurse called and said I am positive for celiac and to go gluten free immediately. They said they will send me a letter but I have yet to receive it. 4 days have gone by. I was not told I have to have a scope completed. So i am just confused, not sure to call the doc again and see what to do. And they did not schedule any follow up apts but maybe that is instruction in the letter

cyclinglady Grand Master

I would call the doctor back. The standard protocol is to do an endoscopy after positive blood test results. I would be curious as to why they do not want to do it.

ravenwoodglass Mentor

This was from the GI doc. Her nurse called and said I am positive for celiac and to go gluten free immediately. They said they will send me a letter but I have yet to receive it. 4 days have gone by. I was not told I have to have a scope completed. So i am just confused, not sure to call the doc again and see what to do. And they did not schedule any follow up apts but maybe that is instruction in the letter

Welcome to the board. Ask any questions you need to and be sure to read the newbie thread at the top of the coping page.

Your results were very high. Some doctors will skip the scope when test levels are as high as yours were. Do call the doctor and find out if he does want to do a scope though. Keep eating gluten until you call the office.

nme23 Apprentice

Thank you for the responses.  I called and was told since my numbers were so high it is a definate an NO more gluten and I do not have to be scoped.  I guess my journey begin here. I will definately be looking into the other posts. 

SMRI Collaborator

With numbers that high, not having a scope is pretty common.  Head over to the "Coping" page here and read the intro post to get information about cleaning your kitchen, etc.  The worst part is reading labels.  Grocery shopping takes twice as long.  Don't assume something is gluten-free because it's hidden everywhere.  There is a thread about that too--stuff like frozen veges (some), licorice, etc.


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ravenwoodglass Mentor

 Don't assume something is gluten-free because it's hidden everywhere.  There is a thread about that too--stuff like frozen veges (some), licorice, etc.

Just read the labels. Gluten does not usually hide it will be in the ingredients. For example licorice clearly lists wheat flour in the ingredients it doesn't hide. Single ingredient frozen veggies are usually fine but if there is any kind of sauce if gluten is in it gluten will be in the ingredient list. Read the label on processed items and you will be fine. 

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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