Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There Medication For Celiac That Allows You To Consume Gluten?

China Suttle

Recommended Posts

China Suttle Newbie
China Suttle
Posted

My stepdaughter's mother told us about 2 months ago that my stepdaughter (she is 7) was diagnosed with Celiac disease. We assume this is true, because why would someone lie about that sort of thing, but lately there have been some inconsistencies in her story. My stepdaughter told her dad and me that she is going to start taking some medicine that allows her to eat food containing gluten. We had never heard of a type of medicine like that, but we are new to things about Celiac and gluten-free, so we aren't really sure what to believe. Her mother told us this morning about the same medicine, but it still sounded strange. My stepdaughter has told us that since they found out that she has Celiac her mother has still not put her on a gluten-free diet, even before she supposedly started taking this pill, so naturally we are scared to death. Can someone please enlighten me, and calm my nerves, and let me know if such a pill exists?



~China~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

There are no such pills. There are lots of rip off products you can buy.  If the child has really been diagnosed with Celiac disease, the mother, by failing to treat a chronic disease,  may be guilty of medical negligence.  Your husband may want to consult a lawyer.  

 

 

Open Original Shared Link

 

"The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine."

 

 

 

Open Original Shared Link

 

 

"Do supplements like GlutenEase (or Gluten Cutter, Digest Gluten Plus, Glutenase) offer protection against accidentally eating gluten?

We put no validity in these supplements. In fact, they may offer a false sense of protection when they provide no protection at all."

China Suttle Newbie
China Suttle
Posted
  • Author

There are no such pills. There are lots of rip off products you can buy.  If the child has really been diagnosed with Celiac disease, the mother, by failing to treat a chronic disease,  may be guilty of medical negligence.  Your husband may want to consult a lawyer.  

 

 

Open Original Shared Link

 

"The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine."

 

 

 

Open Original Shared Link

 

 

"Do supplements like GlutenEase (or Gluten Cutter, Digest Gluten Plus, Glutenase) offer protection against accidentally eating gluten?

We put no validity in these supplements. In fact, they may offer a false sense of protection when they provide no protection at all."

Thank you. That is what we thought. Now she is saying that she may not have Celiac at all, so I guess we will see what happens. Thank you so much for this information.

kareng Grand Master
kareng
Posted

Also meant to say- maybe her dad should go with them to the doctor? Make sure it's a " real" doctor? Not a chiropracter or "naturopath"?

nvsmom Community Regular
nvsmom
Posted

I would look into her medical records.  If she had a positive blood test (tTG IgA, tTG IgG, DGP IgA, DGP IgG, EMA IgA) then she has celiac disease.  If her total serum IgA was low, then her tTG IgA, DGP IgA, and EMA IgA tests will show a false negative and can not be used to diagnose her.  Does she have a positive endoscopic biopsy (at least 6 samples taken)?  She needs to be eating gluten in the 2-3 months prior to testing or the tests could be falsely negative.

 

Genetic testing will just say if she is part of the population which COULD get celiac disease, not if she has celiac disease.

 

Oops, Kareng just posted... ditto everything that she said.  :)

China Suttle Newbie
China Suttle
Posted
  • Author

Also meant to say- maybe her dad should go with them to the doctor? Make sure it's a " real" doctor? Not a chiropracter or "naturopath"?

She is covered under our insurance, so we have a list of all the doctors she sees, but it only says "office visit", "labs", etc. As far as we know he is a well respected doctor, but, not to disclose too much about our life, we have had issues with my stepdaughter's mother lying to us, so it is hard to believe anything she says...especially when it is something that concerns my stepdaughter's health and well-being. Thank you so much for your advice, I really appreciate it.

China Suttle Newbie
China Suttle
Posted
  • Author

I would look into her medical records.  If she had a positive blood test (tTG IgA, tTG IgG, DGP IgA, DGP IgG, EMA IgA) then she has celiac disease.  If her total serum IgA was low, then her tTG IgA, DGP IgA, and EMA IgA tests will show a false negative and can not be used to diagnose her.  Does she have a positive endoscopic biopsy (at least 6 samples taken)?  She needs to be eating gluten in the 2-3 months prior to testing or the tests could be falsely negative.

 

Genetic testing will just say if she is part of the population which COULD get celiac disease, not if she has celiac disease.

 

Oops, Kareng just posted... ditto everything that she said.   :)

We are trying to get our hands on her medical records, so we can make sure everything checks out. Supposedly she was diagnosed with Crohn's and Celiac, but now her mother has said that it might just be Crohn's. I really do not know what to believe. I guess we will just have to get in touch with the doctors to get all of her records, so we can find out what is really wrong. It is really hard for us to get her records without causing issue with her mother, so we are trying to find a way to get them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cap6 Enthusiast
cap6
Posted

Kareng - Thanks for posting the link for the glutenease, digestgluten etc.  I cringe when I hear people suggesting those products.  The last big celiac convention that I attended some of the leading celiac doctors addressed those "gluten aids" stating that they are basically a waste of money.   

kareng Grand Master
kareng
Posted

We are trying to get our hands on her medical records, so we can make sure everything checks out. Supposedly she was diagnosed with Crohn's and Celiac, but now her mother has said that it might just be Crohn's. I really do not know what to believe. I guess we will just have to get in touch with the doctors to get all of her records, so we can find out what is really wrong. It is really hard for us to get her records without causing issue with her mother, so we are trying to find a way to get them.

You might want to read up on Chrohns . That is very serious. I still think the father should go to the doctor appointments with a list of questions.

kymbp Newbie
kymbp
Posted

Is the child seeing a reputable gastroenterologist?  Whether it Celiac or Chrohn's there should be a gastroenterologist involved in the diagnosis.  Both disorders run in my family and the diagnosis for both usually involve a battery of fairly invasive tests--not just blood work.

 

If none of the doctors she has seen so far are a gastroenterologist, perhaps you and your husband should take the initiative to have her checked out by one.

 

If she is a Celiac and not gluten abstainate, she is being put at risk for future problems with Lymphoma.  It needs to be taken seriously.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,554
    • Most Online (within 30 mins)
      7,748
    Becky 0163
    Newest Member
    Becky 0163
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.