Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Only React To Some Products?


Robb

Recommended Posts

Robb Newbie

Hello all!

 

Please forgive me if this is not in the correct section or has been answered. I've had a look around but almost all the answers are black or white but my issue doesn't seem to fit. I seem to have a food sensitivity/allergy but I can't figure it out. The result seems to be gluten intolerance but the reaction isn't usually present when I eat wheat; it only appears when I eat certain products. I haven't been able to find a link between them either. Basically, I'm at a loss.

 

I can eat breads, pasta, soups, and cookies without any issues. I can eat strawberry pop tarts, but if I eat a chocolate pop tart I react. I can eat Betty Crocker cakes and Pogo's but if I eat one Aunt Jemima buttermilk pancake I react. Eating pasta is not a problem but I cannot eat KD. I have eaten white bread from the bakery without any problems but every once in a while I'll get it from a different bakery and react. I have noticed that I react less, or not at all, when the bread is toasted but that could just be in my head. Stove Top stuffing is out of the question, but home made is fine.

 

Forget going to McDonalds, I react to everything. Wendy's or Harvey's are no problem though. I react to one Chinese food restaurant but not another (both use MSG but I don't know how much). I like Guinness and have never reacted to it, but I don't drink other beers so I dunno. 

 

It's like a game of roulette... what will I react to and what won't I.

 

How I react is thankfully limited for the most part to my GI tract. I have gotten stuffy nosed but that was mainly from McD's or KD. Needless to say I don't eat either anymore. It all happens about 2-6 hours after I eat. My stomach will start rumbling and making all sorts of noises. From there it can vary but usually within an hour of the rumbling comes the bathroom. I end up with very loose, sometimes watery stool often with a yellow hue that I understand is bile. I'll continue to make trips to the bathroom over the next few hours until it is out of my system. I never have burning or pain but sometimes, as the case with KD or Stove Top stuffing, I have an overwhelming urge to get it out of my system ASAP if you know what I mean.

 

I never have joint pain, headache, or any other symptoms. Well, I souldn't say that as I do have a type of rash at my hairline that acts as dry scalp (flakey) and red but as I avoid these products it goes away. After the offending substance has left my system everything is back to 'normal' as well. I can keep eating all other forms of wheat and not have any problems. I have talked to my doctor about getting tested but was told he wouldn't do a blood test as it's not accurate and a biopsy wouldn't be appropriate. His suggestion was to just avoid what is causing the reaction. Problem is I have no idea what it could be as I'm doubting if it is wheat or not. Finding a new doctor is not possible either. Even though I'm in Canada and in a large city I'm also in an underserviced area. Basically, if you have a doctor keep them or you may not find another. Doctors are turning away patients and telling them to go to the hospital if they need treatment or 'call around'.

 

That said, I'm not looking for a diagnosis but rather some insight anyone may have. I read something about sulphates today, but I'll have to read more on that. If anyone has anything they could share or any ingredients I may want to look for I'd appreciate it.

 

Thanks!

 

(sorry for the long post)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Maybe it has nothing to do with gluten?  Maybe there is an ingredient in one brand that is not in another?   Like soy or a food coloring? 

Robb Newbie

I never even thought of food colouring, thanks!

 

The Aunt Jemima buttermilk pancake mix only lists "colour" as an ingredient.  I'll have to look more into that. I've only reacted to products containing wheat and there was no common ingredient that I could see in one that wasn't in the other so I was at a bit of a loss. Thanks again!

 

Any other suggestions or insights are more than welcome   :)

nvsmom Community Regular

It could be gluten. I didn't react obviously every time I ate gluten. 

 

Food sensitivities are hard to figure out because the reaction can occur within minutes or days of eating the product.  To see if a food is at fault, you would need to be without that food for weeks before its symptoms have left you.  People who try the gluten-free diet often need to be gluten-free for more than 3 months before judging it's effectiveness.

ravenwoodglass Mentor

Have you had a celiac panel done? If not it would be a good idea to start there. 

Robb Newbie

I've tried the gluten-free diet for six weeks and nothing changed when I reintroduced gluten, until I ate something likely to make me react. I started thinking GMO's but then I wondered if it was over processed wheat products such as pillsbury crescent rolls (I can eat one, maybe two). I don't seem to have a problem with anything that doesn't contain wheat. I think that's why my doctor said he suspected gluten intolerance. Unfortunately he won't do a celiac panel, and no one is accepting new patients, so I'm stuck there.   :( 

1desperateladysaved Proficient

Have you checked or considered High fructose corn syrup, or corn in general.  Allergies sometimes don't appear every contact.

 

Dee


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,485
    • Most Online (within 30 mins)
      7,748

    spoonmom
    Newest Member
    spoonmom
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.